Aa
Felling alone fighting and lots of questions
After wasting 2 years being tested for everything now the doctors are considering what i was saying since 2013: I was in UK in 2012 ,i was bitten by what i thought was mosquitoes,I came back to my country and after 3 months started having weird symptoms.
Now they think yes ....it is 99% it is lyme but here there are no lyme,so no doctors knowing
I freak out every new symptom i am having
I could live with my pain untill january this year when it was just too much to handle and i ended in bed all day
More tests nothing found....
I'm now on IV Ceftriaxone after fightingfor treatment.
Doctor ordered just 20 days but i decided to continue on my own and i am day 27
I'm having the usual symptoms but what it is new is i;m having tender painfull roof of mouth ,and mouth ulcers also some hives
I know it is not allergic reaction because i had it before Ceft.
Could mouth sores and itchy sking be symptoms of lyme?
This is so crazy....i had dry eyes and dry mouth and thought it was Sjogren's, a dead leg and felt down the floor and thought MS,symptoms in my skin and though lupus.
I have nobody to help me here and the doctor after 20 days of antibiotics said : bye and good luck.
Now they think yes ....it is 99% it is lyme but here there are no lyme,so no doctors knowing
I freak out every new symptom i am having
I could live with my pain untill january this year when it was just too much to handle and i ended in bed all day
More tests nothing found....
I'm now on IV Ceftriaxone after fightingfor treatment.
Doctor ordered just 20 days but i decided to continue on my own and i am day 27
I'm having the usual symptoms but what it is new is i;m having tender painfull roof of mouth ,and mouth ulcers also some hives
I know it is not allergic reaction because i had it before Ceft.
Could mouth sores and itchy sking be symptoms of lyme?
This is so crazy....i had dry eyes and dry mouth and thought it was Sjogren's, a dead leg and felt down the floor and thought MS,symptoms in my skin and though lupus.
I have nobody to help me here and the doctor after 20 days of antibiotics said : bye and good luck.
About the doctors there being nervous about diagnosing and treating Lyme: the internet may help them. I just searched online for
ILADS Horowitz
and found articles, posts and even video by Dr Horowitz, all on the topic of Lyme. He is very well known and respected here, and your doctors (and you!) may find the information quite useful.
The entire ILADS website may also be of interest, but Horowitz's presentations online may be a good starting place.
ILADS Horowitz
and found articles, posts and even video by Dr Horowitz, all on the topic of Lyme. He is very well known and respected here, and your doctors (and you!) may find the information quite useful.
The entire ILADS website may also be of interest, but Horowitz's presentations online may be a good starting place.
If you are going to be treating on your own I would get Horowitz's book called "why can't I get better" he has several protocols in there that you could follow or if you want to try the natural route you could get the Cowden program on Nutramedix.com.
I have Bartonella and my feet are always burning. Both of the above, cover
Bartonella. Good luck.
I have Bartonella and my feet are always burning. Both of the above, cover
Bartonella. Good luck.
Thanks so much for answering
I can't send blood outside the country to be tested and tests here are useless
Impossible to find here a doctor understanding lyme just because the cases here were a few and mist of them from people contracting the illness abroud
The best i could find was an infectologist who gave me 20 days of iv Ceftriaxone
Yes....they suspect lyme now but don't want to treat it (i think it is because the lack of knoledge and the fear of making a mistake)
I can buy antibiotics without prescroption here but don't know how to continue
I suspec i have bartonella too because my feet are allways aching i'm in bed all day and i've developed erytrhomelalgya wich is very painfull.
I'm in a complicated situation and i want my health and life back
Thanks again
I can't send blood outside the country to be tested and tests here are useless
Impossible to find here a doctor understanding lyme just because the cases here were a few and mist of them from people contracting the illness abroud
The best i could find was an infectologist who gave me 20 days of iv Ceftriaxone
Yes....they suspect lyme now but don't want to treat it (i think it is because the lack of knoledge and the fear of making a mistake)
I can buy antibiotics without prescroption here but don't know how to continue
I suspec i have bartonella too because my feet are allways aching i'm in bed all day and i've developed erytrhomelalgya wich is very painfull.
I'm in a complicated situation and i want my health and life back
Thanks again
I had mouth sores and canker sores as a herx and sometimes from a yeast infection that antibiotics can give you. You could try a medication like nystatin which helps get rid of the yeast.
Your comment ("after wasting 2 years being tested for everything, now the doctors are considering what i was saying since 2013") could be said by many of us in the U.S. as well, so you are not alone in that regard. There are many MDs who do not understand Lyme or take it seriously, but the MDs who do understand Lyme can be very helpful.
(When I was ill with Lyme, I saw 20 different MDs before I was finally tested for Lyme. The test was positive, but Dr. #20 told me that I could not have Lyme, because I did not 'look sick enough'. I am not surprised that MDs in other countries have the same lack of understanding.)
I searched online for
lyme disease argentina
and found many links that may be helpful to you in finding a wise MD to work with you in diagnosis and treatment. Many of the links are recent, and here is one that is 20+ years old:
------------------------------------------------------------------------------
Revista de Saúde Pública
Print version ISSN 0034-8910
Rev. Saúde Pública vol.27 n.4 São Paulo Aug. 1993
http:// dx.doi.org/10.1590/S0034-89101993000400011
NOTAS E INFORMAÇÕES NOTES AND INFORMATION
Lyme Disease: antibodies against Borrelia burgdorferi in farm workers in Argentina // Doença de Lyme: anticorpos anti Borrelia burgdorferi nos trabalhadores rurais da Argentina ...
--------------------------------------------------
I do not read Spanish well, but there are links online to Lyme sites in Argentina. While the link [above] is old, there has been some awareness of Lyme in Argentina for many years. It may be that the Lyme physicians in Argentina are not well known, but that is the same in the US: physicians who understands Lyme well often stay quiet to avoid problems with physicians who are not serious about Lyme and its misery.
Another way to locate a Lyme specialist in Argentina is to go to the ILADS [dot] org website and ask for names of Lyme specialists near you (such as 'within 50 miles of Buenos Aires, Argentina'). Physicians who do not truly understand Lyme disease are difficult to work with, and in my experience, the most important step is to find a physician who is expert and open-minded about Lyme (and its co-infections) and in testing and treatment for Lyme.
----------------------------------------------------------------------
In the U.S., there is no test or qualification to be a Lyme-specialist physician, so always consider whether the physician you consult seems to be both wise and reasonable. Reading as much as you can about Lyme diagnosis and treatment is good to do, so that you can determine for yourself whether your Lyme physician is making sense and following current testing, diagnosis and treatment standards.
Here in the U.S., many physicians do not understand Lyme disease and treatment, but think that they do understand it fully. It may be that the physicians you have already seen are like the U.S. physicians who do not understand Lyme, and that is the reason for their reaction and guidance to you so far.
(When I was ill, I consulted with 20 physicians before I was finally diagnosed with Lyme disease (and with another infection the 'Lyme' ticks often carry along with Lyme); even this physician did not take the test results seriously, however, and said, 'You do not look sick enough to have Lyme' and dismissed the possibility. I took the positive test results (always get and keep copies of ALL test results!) and I found a Lyme specialist who understood that I DID indeed have Lyme disease and a co-infection. I was then treated successfully with certain antibiotics prescribed by the Lyme specialist. I have now been quite healthy for 5+ years, with no signs of Lyme disease at all.)
It may seem that there are not many good Lyme specialist MDs, but it may be that they simply are quiet, due to political controversy in the Argentine medical profession. This is how it all is in the U.S. even now, but it is beginning to change slowly.
Best wishes to you -- let us know how we can help.
(When I was ill with Lyme, I saw 20 different MDs before I was finally tested for Lyme. The test was positive, but Dr. #20 told me that I could not have Lyme, because I did not 'look sick enough'. I am not surprised that MDs in other countries have the same lack of understanding.)
I searched online for
lyme disease argentina
and found many links that may be helpful to you in finding a wise MD to work with you in diagnosis and treatment. Many of the links are recent, and here is one that is 20+ years old:
------------------------------------------------------------------------------
Revista de Saúde Pública
Print version ISSN 0034-8910
Rev. Saúde Pública vol.27 n.4 São Paulo Aug. 1993
http:// dx.doi.org/10.1590/S0034-89101993000400011
NOTAS E INFORMAÇÕES NOTES AND INFORMATION
Lyme Disease: antibodies against Borrelia burgdorferi in farm workers in Argentina // Doença de Lyme: anticorpos anti Borrelia burgdorferi nos trabalhadores rurais da Argentina ...
--------------------------------------------------
I do not read Spanish well, but there are links online to Lyme sites in Argentina. While the link [above] is old, there has been some awareness of Lyme in Argentina for many years. It may be that the Lyme physicians in Argentina are not well known, but that is the same in the US: physicians who understands Lyme well often stay quiet to avoid problems with physicians who are not serious about Lyme and its misery.
Another way to locate a Lyme specialist in Argentina is to go to the ILADS [dot] org website and ask for names of Lyme specialists near you (such as 'within 50 miles of Buenos Aires, Argentina'). Physicians who do not truly understand Lyme disease are difficult to work with, and in my experience, the most important step is to find a physician who is expert and open-minded about Lyme (and its co-infections) and in testing and treatment for Lyme.
----------------------------------------------------------------------
In the U.S., there is no test or qualification to be a Lyme-specialist physician, so always consider whether the physician you consult seems to be both wise and reasonable. Reading as much as you can about Lyme diagnosis and treatment is good to do, so that you can determine for yourself whether your Lyme physician is making sense and following current testing, diagnosis and treatment standards.
Here in the U.S., many physicians do not understand Lyme disease and treatment, but think that they do understand it fully. It may be that the physicians you have already seen are like the U.S. physicians who do not understand Lyme, and that is the reason for their reaction and guidance to you so far.
(When I was ill, I consulted with 20 physicians before I was finally diagnosed with Lyme disease (and with another infection the 'Lyme' ticks often carry along with Lyme); even this physician did not take the test results seriously, however, and said, 'You do not look sick enough to have Lyme' and dismissed the possibility. I took the positive test results (always get and keep copies of ALL test results!) and I found a Lyme specialist who understood that I DID indeed have Lyme disease and a co-infection. I was then treated successfully with certain antibiotics prescribed by the Lyme specialist. I have now been quite healthy for 5+ years, with no signs of Lyme disease at all.)
It may seem that there are not many good Lyme specialist MDs, but it may be that they simply are quiet, due to political controversy in the Argentine medical profession. This is how it all is in the U.S. even now, but it is beginning to change slowly.
Best wishes to you -- let us know how we can help.
Welcome to MedHelp Lyme --
Do I understand correctly that you are still in England?
Do I understand correctly that you are still in England?
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