Ha--CFS--Marshall Protocol--Might as well stick with it...

[dolfnlvr]

So, you know from my previous post that I'm having a "down" period right now.  I'm exhausted, foggy brained, and I've been struggling with migraine associated vertigo (so diagnosed by another dr).  So I start thinking, maybe this is all CFS--which, lucky enough for me, has no treatment and is actually a WORSE situation than Lyme.  But being the impatient patient that I am, instead of waiting to chat with the Dr about this, I start surfing, and of course, I come upon a myriad of sites that support any thought I may ever have about my health from cancer to warts :-).  

One particular site though made me laugh and come "home" to my Lyme group--and to realize that I shall wait and speak with my LLMD and put my hands up for now.  Apparently, there is a fad group out there claiming that CFS is caused by a "bacterial biofilm" (yet to be accurately defined on the site) that is only curable using the Marshal Protocol, which I believe we all adequately dismantled and scared away a young visitor about three weeks ago by discussing.  So I thought, well, if CFS is "cured" using a treatment also meant to "cure" Lyme disease, I guess it's 6 of one and half a dozen of the other with which road I travel.  

And, really, the MP, is not my cup of tea--so,

No response necessary--just sharing LOL

[Ricobord]

If you like doing research, you can Google Eva Sapi.  She is the researcher who has done a lot of research on the Borrelia bacteria.  She presented at an ILADS '09 conference that Doxy encouraged the spirochetes to form cysts. In another study, she compared Doxy to a handful of other popular meds for Lyme and what percentage of spirochetes and cysts were killed and published the results.  There are also some cool pictures of spirochetes, colonies, and "ring forms" where 1 or 2 spirochetes curl up in a ring. It is interesting and creepy at the same time.

As one scientist has said, this thing is a couple rungs up the evolutionary ladder than other infectious bacteria.

[mojogal]

Yes I know what you mean.
Well I was on a protocol of doxy and flagyl before I found out I had Barts. Now I am following Burascanos protocol for Barts, which is levaquin and welchol for detox, I am having problems with the welchol so had to cut back. My idea is so many LLMD's try so many different protocols it is just a matter of luck. What works for some may not work for others.

[dolfnlvr]

Coinfections:

Been tested for Babesia, Myco and ehrlicia (sp?).  Not sure about bart.  I have an appt with LLMD tomorrow, and will discuss all this with her. I recently read where Amoxicillin isn't the most useful antibiotic against Lyme, even with probenecid as a booster--and recent research shows that doxy might taunt the buggers into cysts, but there is evidence that tetracyclines are a good bet.  

I just don't want to harm myself trying to get back to health.  And it is all just so unkown...

Ha, it's crazy--I haven't read this much about what was going on with my body since I was pregnant and couldn't get my hands on enough material to stretch from day to day :-)

That had such a much better outcome though :(

[JackieCalifornia]

I have thought vaguely that Marshall is on the same train as the rest of the LLMDs, he's just in the club car playing with a slightly different set of rules in the game of Lyme.  

Mainstream LLMDs (if that makes sense ... meaning LLMDs minus the really fringe Lyme docs) seem to accept the idea that one reason Lyme is hard to kill is that it hides in tissue in unique ways that make it hard for antibiotics to reach ... the 'cysts' aka 'biofilms'.  

I can't make rational sense of the heart of Marshall's argument about no sun and so on.  But maybe there are large areas of agreement between him and the main LLMD approach a la Columbia U and ILADS...it's just that the treatment approach Marshall has is ... kind of far out there imho.

It's the wild wild west of medicine .... ain't it.  :)

[mojogal]

My Lyme brain doesn't let me remember if you ever had a co-infection test? I was told I had CFS when in reality it was Lyme/Barts.