Has anyone been given Azithromycin?

[Ephedra]

I don't trust Drs.  So when I'm prescribed anything at all, I will look further into it.  The FDA warns about the possibility of deadly heart rhythms with this medication.  They state that the "overall risk is low".  However, I do have some risk factors.  And after reading some of the reviews of individuals supposedly suffering life long heart related problems from this drug, I was somewhat reluctant.  I have an open mind when reading reviews and so I decided to proceed with caution.  I've been cautiously taking it for over a month now.  I listen to my heart from time to time, and I can certainly hear an arrhythmia when I breathe.  My lips are numb and I just don't feel right.  I don't want to question the Dr and I do want to get better, but I don't even think this medication has much benefit.  I could be wrong, so I'm not sure if I should stop the Azithromycin or continue.  Has anyone had any experience with this drug?

Thanks!      

[JackieCalifornia]

"I took it [azithromycin] orally and IV- did OK for 2 years then relapsed badly. It might have drove it temporarily into cyst form or it missed the ones encased in biofilms"

That is consistent with my understanding.  What did your doc say, or better question:  have you seen a new Lyme doc?  I would.  Let us know if you need help finding one, or email to

                            ***@****

(If the bot blocks the URL, it is:  contact   [at]    ILADS   [dot]   com]

and tell them where you live and how far you can travel.  They will send you names of ILADS members nearby.  There is no test to join ILADS, so some of the docs may be a bit far out there, and if you get a dud, go back to ILADS and request another name.  

[noach2343]

While on the IV there was one other antibiotic but no flagyl. They thought I had pneumonia while it was pulmonary embolisms

[JackieCalifornia]

Was the azithromycin paired with something like Flagyl/metroniazole?  Without Flagyl etc. to break through the cysts the bacteria hide in, the 'zith' isn't able to reach the bacteria.

[noach2343]

I took it orally and IV- did OK for 2 years then relapsed badly. It might have drove it temporarily into cyst form or it missed the ones encased in biofilms

[Ephedra]

I thought pulsing sounds interesting and something that may be very effective, but it'd probably have to be done right for it to work.  

[JackieCalifornia]

Perhaps if the full-on approach doesn't work, even if using cystbusters to break through the biofilm, then pulsing may have an effect, but I don't know on what basis.  Full-on worked for me, so I didn't explore pulsing.