My doctors seem to prefer theh idea that I am crazy and a nuisance to the idea that I might have Lyme disease. They prefer to put a bandaid on the symptoms than find the cause, but the seizures have me scared.
I live in central/upstate NY. Four years ago, I had a respiratory illness my doctor could not identify. It sent me to the ER many times. Since then, I have had breathing problems, joint pains, bone pain, almost constant nausea, hot flashes (They lasted a long time, not like a flash at all), forgetfulness/confusion, Thyroid problems, and now seizures. I have asked multiple doctors multiple times to be tested for Lyme, but they just look at me like I have two heads.
I have been having seizures for about 2 years now. They are now coming frequently. The epilepsy doctors in Syracuse seem to be trying to sweep me under the rug (pretend I do not exist). The doctors here act as though I have a screw loose and am making it up. THe Binghamton doctors have tried to chase it down as a lung or heart disease, but have had no results. I am desperate. Does anyone know someone who is a specialist in Lyme?
I have an appt with my primary care physician tomorrow and would liek a Lyme test. I understand that there are certain tests that are good and others that are unreliable. Ditto for where they send the samples for testing. Can anyone give me specifics on what tests should be ordered and where the samples should be sent?
Thanks for sharing your experience.