Is this normal?

[Mnap]

After having a high fever for 3 days followed by 3 more days of non-stop sleeping, my joints were attacked and I felt like I couldn't move.  I couldn't even open my hands or walk down the stairs without a lot of pain.  My doctor thought I might have Lyme and prescribed Doxycycline for 3 weeks.  I have one pill left and I'm still exhausted and my joints *particularly my knees, feet, hands, wrists and shoulders) are still hurting.  I feel better once I'm moving and have been doing low impact exercise on most days.

Is this normal?  Does it take a while to get over this or could I have been mis-diagnosed?  I am a healthy 48 year-old female.  

Thank you in advance for your help.  It is very much appreciated.

M

[JackieCalifornia]

Sorry to hear this, but it's a situation many of us have been through -- it took me 20+ docs to finally get a Lyme test, and tho it was positive, the doc said I wasn't sick enough to have Lyme.

So sometimes even a positive test won't get the doc's attention!

It's all very silly, that we have to (1) be sick AND (2) struggle with the docs, but it's just the way it is right now.

Just plow ahead with finding a doc who understands.  

Until you have a doc who takes Lyme and the co-infections seriously, I would not worry about what it might be if it's not Lyme+.  'Don't borrow worry' as the saying goes.

Hang in there -- AND be sure to get hard copies of ALL those test results -- your post says the doc called you with the results.  A future doc could look at those and see something entirely different, or be able to put those tests in context with future results.  It's potentially useful data.  A 3 ring binder is a useful thing, and ALWAYS keep your own set of results -- getting everything later from a doc's office is not easy, and you're never sure you get everything -- the clerks are lazy, in my experience, and they see no point in handing over test results that were negative, etc. --- but they don't  have the conversation with you:  they just don't copy the tests, and you'll never know what you didn't receive.

My position is that I paid for the tests, and I want copies of them.  Now, not later.  Be strong!  We've all been there.

[Mnap]

My doctor called yesterday to let me know all of my tests came back negative:

Sedimentation Rate
Lyme IgG IgM WB
Lyme Antibody Total
Rheumatoid Factor
CBC and Diff
Antinuclear Antibody

Meaning I don't have any auto-immune diseases and, according to her, that I don't have Lyme.  

I wake up in the night with excruciating pain in some of my joints--it's getting MUCH worse in my left knee, my hips and right shoulder.  

It seems like every time I call one of the "referred" doctors, they either no longer work there or the number is no longer in service.  I am hoping to make an appointment with someone by the end of today.  

Any advice?  I had tears streaming down my face this morning in frustration...if it's not Lyme, then what might it be?

Molly

[mojogal]

Yes, the movie I saw showed them healthy which is even a stronger message for doctors and those like myself with major neuro symptoms.

[Ricobord]

I highly recommnd buying the official copy of the DVD (online, directly from the producers) and watching all the extra features.  They show follow ups on some people in the movies, as well as some patients they did not include in the movie.

[gibsongal]

i had a lot of stress when my symptoms started...hummmm

[JackieCalifornia]

Is there a section at the end of the version you saw that shows the people in reasonably good shape?  I hope so ... that wasn't in the version I saw (it was pre-release), and maybe it was re-edited.  If so, I am REALLY glad.  And if so, I can stop ranting about the movie.  :)