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Just diaged-what to do??
I was just diaged a few days ago as "acutely infected" and suspect I've had Lyme for yrs-happily only presenting as acute jt pain. Unfortunately I have medicaid and the dr I have seems more interested in dashing out of the room w/out so much as a goodbye so I haven't been able to ask questions or been given a brochure or anything. Any tips from anyone? So far I'm on antibiotics and have been given Vimovo samples which do nothing. Should I adjust my diet, take vitamins..anything?? Any tips, help, moral support much appreciated!! (i'm 47 female w/asthma, migraines, non-smoker.)
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ok-thanks for tip-hopefully the rheumatologist will actually talk to me instead of sneaking out of the room w/out so much as a "goodbye-feel better"! I was @ ER the other night in agony w/my knees and that dr spent more time w/me than the 1st did-but still only kind of got a "there really isn't a 'normal' w/Lyme-everyone seems to react differently" so didn't get much hope there.
Thanks again for the help!
Thanks again for the help!
PS -- and remember, no doc calls him/herself an 'LLMD', and asking a doc if s/he is progressive or enlightened about Lyme will not get you any indication of their thinking.
ALL docs think they themselves are progressive and enlightened and doing the right thing, or they would be practicing differently. The nonLLMDs really really really believe they are right. The LLMDs are often afraid to admit that they are not following the orthodoxy of the nonLLMDs, because it can cause them serious problems with local and state medical boards.
The only way to figure out which way a doc leans is to talk with them and see what they do and say, and then decide whether to go elsewhere. It's ridiculous, but that's the way it is.
ALL docs think they themselves are progressive and enlightened and doing the right thing, or they would be practicing differently. The nonLLMDs really really really believe they are right. The LLMDs are often afraid to admit that they are not following the orthodoxy of the nonLLMDs, because it can cause them serious problems with local and state medical boards.
The only way to figure out which way a doc leans is to talk with them and see what they do and say, and then decide whether to go elsewhere. It's ridiculous, but that's the way it is.
I have an appt w/rheumatologist in a few weeks-hopefully will have a better bedside manner! Am doing research on-line on my own.
Sorry to hear about your diagnosis.
If you can't get face time with your doc, then all I can suggest is: find a new doc, preferably a specialist in Lyme.
If you can't get face time with your doc, then all I can suggest is: find a new doc, preferably a specialist in Lyme.
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And fyi, infectious disease docs and rheumatologists are two of the classic specialties who don't 'believe' in Lyme except as a limited and easily cured ailment, and any remaining symptoms are just autoimmune reaction from an overstimulated immune system, not a sign of continuing infection. The first docs who studied Lyme several decades ago were ID docs and rheumies, and those very docs, although aging, are still powerful in their fields. Your visit to the rheumie may find an enlightened doc, but keep your antennae up.