eye dizziness + tingling in heat

[Melissa072]

Can I ask anyone with a diagnosis of lyme if they ever experienced eye dizziness???
I have had it for 5 years, if I hold my head still and move eyes it makes me dizzy, if I close my eyes and move my head it still makes me dizzy....
The only thing I have ever found on this was ms related.
I have also had numb feet for the last 5 years, and where I had foot tingling 5 years ago also, the tingling returns in heat, if I put my hand above a hot plate on the stove, it brings on the tingling in my hands.
I did get an igenex positive for lyme and a positive for bartonella, but cannot get ms out of my head, as my symptons to me still relate more to ms than lyme..
Does anyone have these particular symptons?
Thanks

[Ricobord]

Dr. Mayne has reported Babesia, Bartonella, HGE/Anaplasmosis, and Morgellon's along with Lyme in Australia.  He has not yet seen HME/Ehrlichia.  You'll find that most doctors haven't even heard of these other diseases, and therefore don't know how to identify them or even order tests.  

You could have one of these coinfections (esp. babesia) that interfered with your past treatment of Lyme, which would explain your lack of improvement.  From what you describe, you'll at least want to get tested for Bart and Babs.

[mojogal]

I have Lyme and babs and always dizzy. They told me I had MS, and a huge variety of other illnesses. Once treatment for babs begun, the dizziness subsided a great deal

[JackieCalifornia]

Well said, Rico.  You are uniquely positioned to give this view given your own experience!  Invaluable.  

[Ricobord]

Lyme is known to cause strange symptoms and even strange variations of common symptoms.  Lyme combined with Bartonella is more likely to mimic neurological disorders, as both are neurological diseases.  Which autoimmune disorder it mimics depends on which part of the brain and nerves it infected.

I had the heat intolerance and tingling also.  Although in my case, the heat especially aggravated my shortness of breath.  That is why doctors thought I had allergies, and then asthma.  I always felt worse almost immediately when I stepped outside on a hot day.

I found that my presentation of disease was not typical of most other Lyme patients in the US, and it was a relief to read that Australian Lyme is a neurological disease with a different presentation than North America or Europe or Asia.  We have more cranial nerve involvement than others.  I felt strangely comforted  to know that I didn't have a bizarre, one-off set of symptoms.  Comparing yourself to descriptions of the disease coming from American researchers will not be helpful to you.

I can look back now and realize I was very fixated on certain things, and more intense than usual  Both my mother and husband used the word 'obsessive,' although I didn't feel I was THAT bad.  But Lyme can trigger anxiety, depression, irritability, and obsessive thoughts that are often worse with Bart. I have had them all. Some go so far as to develop full blown panic attacks and/or OCD.

Don't worry too much about MS.  There is that one in a million chance that you got Lyme about the same time you were developing MS, but it is far more likely that your Lyme + Bart is mimicing MS.  Wait until you get your Lyme treated properly and see how you feel.  Whatever you do, don't take any immuno suppressing drugs for MS or steroids!

[JackieCalifornia]

I didn't have your symptom set, but I also didn't have bartonella, tho I had babesia ... and everyone is different because of the different strains and manifestations of Lyme -- some more neurological, some more cardiac, etc.  So everyone is different.

It's theoretically possible to have both Lyme and MS, I would think, but unless you've treated the Lyme and bartonella and still have the symptoms and still have positive indicators for MS on tests, I would try not to fixate on it.

Sorry not to be more helpful.