Looking for anyone who has Acrodermatitis Chronica Atrophicans with Lyme Disease

[Murphgolf]

I have what doctors believe is ACA, a late manifestation of late Lyme Disease. My skin is atrophying and I don't know if it will ever stop, based on what I have read.

Has anyone had this before and stopped the progression through antibiotics or other means?  It is all over my body and getting worse. I'm in a panic as no one in the U.S. seems to know what to do. I've read so much of the same information.

I just want to know if it can truly be stopped and if dermatological procedures can help reduce the look of the atrophy and sunken spots. Without trying to sound rude, I am not looking for what it is how how it manifests. That I have l learned. Just how or can I truly have a prayer of stopping progression and working to get skin and sunken areas back to some degree. I have seen this coming fro about three years but no doctor would believe me until tests now show it to be true.

Thanks so much.  

[Murphgolf]

Do you feel better and has the ACA continued to improve?  My whole body has been impacted by it. Trying to get rid of Lyme as it is what causes the ACA, rather than the co-infections. And, as you know, the longer the skin issues go on the worse it gets and the harder it is to improve them. That puts an urgency to it.

[mom2nine]

I've spent my adult life working from a natural framework. I learned years ago that the body is an incredible self-healing machine. If we give it the fuel it needs and take away the things that irritate or break it down, it's capable of eliminating disease and toxins. That's an oversimplification, but it's the foundation of what I do when it comes to disease. I rarely take any pharmaceuticals. Instead of penicillin or doxy, I choose herbals that have antibiotic properties, like olive leaf extract or banderol or garlic. I never knew I had lyme until this time last year when my husband got it and I realized his symptoms were like mine...only mine had been going on for nearly ten years.

[JackieCalifornia]

Did the doc explain why it was necessary to take you off ALL meds/herbs?  Are there likely suspects among what you were taking that could be reduced or eliminated temporarily without taking you off everything?

I mean, I'm allergic to peanuts, but it doesn't mean I stop eating all together, y'know?

[ltdiggens]

You need to get tested for co-infections. Also read the article here about your antibiotics question: http://www.sheamedical.com/above-and-beyond-antibiotics

[Murphgolf]

Glad to hear things are improving.

Understand about the "collection of herbs." I get overwhelmed when I look in my cabinet. My doctor took me off everything because my kidney tests came back a bit off. I can feel everything coming back now, which is a downer. But, hopefully things will get better, and I'll get back on what is needed.

And about "want my life back" - that hits home hard. I'm pulling for you, and thanks for the information.

[mom2nine]

I forgot to mention I have also been using Kyolic (garlic) with an added supplement of probiotics. You should see the collection of herbs and oils and tinctures I have here. It's hard to keep up with everything. I am hitting this stuff with everything I can find. I want my life back!