Lymes question

[desperate199]

I was wondering if Lyme Diease can be dormant without even knowing you were bit by a tick, I dont ever recall being bit by a tick, I dont even go in wooded areas or live around where theres deers, I have dealing with nerve caused from taking a medication but was suggested to get a Lyme test done, I got the IgG/IgM Borelli test done it came back NON-Reactive , that test was done here in Canada, but someone told me that Lyme can be dormant , was wondering if that is only if someone had a deer tick that had some symptoms that went into remission and was dormant , cause I never ever had these symptoms until I came off a Medication which is common from others these symptoms I am dealing with. I had an ANA test done , every blood work imaginable , MRI, Cat scans, Ultrasounds, X-Rays , all came back perfect. My GP told me that if I had Lyme based on the many symptoms I am dealing with it would of shown up on my blood work for Lyme Diease. I was wondering if Lyme can be Dormant , what are the possible causes of it being triggered? I Never ever had anyt fatique at all ever, I have more energy then anything, I never had Headaches, I Never had flu-like symptoms, I never had any fevers, Nor Chills, I read the fatique is the most common symptom, I never had any skin rash , lessions, Bullseye , so I am trying to figure this out. I am in the process of recieving a Lymes Kit from Igentics from CA, I just hate to waste  the money if I am trying to look for something that snot there. My GP said its unlikly that I have Lymes and that the higher the possibility what I am dealing with is from that medication as a Neurologist and Neuro surgeon also in writing said it caused from the medication. Just want to know someone elses opinion. Thank you

[desperate199]

What do I do in the meantime waiting to get my appointment , any suggestions , I tried the doxy for two weeks , the stingig was getting worst , it's in my mouth , ears, nose ,eyes ,it's everywhere literally , it's always triggered by any stimulation is that a Lyme symptom , what else do I do

[desperate199]

thanks , I am struggling to know what treatment to go with, I ordered samanto and found there's a link to quinolones , that can cause tendon damage , it's derieved rom the same plant , I am so scared , every day the pain is getting worst , I am gng out of my mind with this pain , my LLMD appointment is not until the end of November that's thevearliest , by then it will be too late the damage will be done permanently, I have a lot of severe nerve pain

[Ricobord]

And I forgot to mention, if you Google "Lyme syrinx" you will see other cases of links between Lyme and a syrinx. (I saw a patient"s post about Lyme-like symptoms and a syrinx on another message board before.)

Also, I have seen many anecdotal stories about Lyme patients who developed degenerative discs (or worsening discs) after getting Lyme. There does seem to be a connection.  Lyme is well known to like low oxygen environments, especially connective tissue, and spinal discs are indeed connective tissue.

[Ricobord]

Glad most of your blood work is good. That is a very good sign. But it doesn't mean much in regards to whether or not you have Lyme. It is very unlikely that an IGeneX positive would be a false positive. (You can't put much into what Dr. H says over the phone as he can't examine or diagnose you. He can only speak in generalities. You are not a generality. You are a specific individual with your own history and symptoms.) )

That is a very good sign that you tested negative on coinfections. Lyme is easier to treat without any coinfections. And if your MD friend who knows Lyme well says you don't seem to have symptoms of coinfections, that is also a big plus.

From my understanding, Babesia and Bartonella are the two most likely coinfections to produce a false negative.  They can be "hidden" until some time into Lyme treatment when they flare up and show symptoms. Many people have initially tested negative for either of these and then later, tested positive.  Even the CDC acknowledges that Babesia is hard to find in lab tests. And a national expert on Bartonella at North Carolina State is working on a new culture test because Bart is known for false negatives.

I was lucky. The only evidence I showed of Bart was a lot of neuro Lyme symptoms, lots of GI problems, and anxiety. All can be attributed to Lyme, so I am glad I showed up on the b. henselae test.

At this point, you can set the issue of coinfections aside. If you proceed with Lyme treatment and a few months in find some new symptoms consistent with a coinfection, them definitely get retested.  Otherwise, just say "Whew, dodged that bullet."

You do have the complexity of recovering GABA receptors. I would guess that Lyme is somehow complicating your presentation because of that. You may never find a doctor who can tell you how Lyme behaves in a person with this issue, as there might not be any others out there just like you. That is one of the tricky things about Lyme, everyone has their own unique history and presentation.

Knowing how Lyme just gets worse over time (in spite of short term variations in symptoms), I would encourage you to go with the positive Lyme results and start treatment. I don't think you can compare yourself to other Benzo patients anymore as you are different. You show Lyme antibodies.

I did notice that your general immune system numbers (esp the IgG counts) are on the low end of normal. That was true for me, too. An allergist/ immunologist ran these basic immune tests on me as I was headed downhill with weird symptoms last year, and he pronounced my immune system "stone cold normal."  We'll, in hindsight, I realized that "stone cold suppressed" was a much more accurate description.  Both Lyme and the short courses of prednisone I had previously been given were suppressing my immune system.

Hang in there. I remember when I was also in that stage of wondering if I really had Lyme and whether or not to jump into the deep end of treatment and the costs associated with that. It can seem daunting. But as someone who has been there, I can only say how glad Zi am to have made the decision to go to my LLMD and get treated. I can finally see the light at the end of the tunnel and know I am really going to feel good again, soon!

[JackieCalifornia]

Unfortunately I haven't done any reading on spine problems from Lyme -- it does like to live in cartilage and other areas of blood flow, but perhaps someone else here can speak to that point.

If I understand your question correctly, I don't think the different tests IGeneX ran on your blood would affect each other -- when blood is drawn for different tests, the tests are run on different samples of the blood, not all mixed together, as I understand the process.  Therefore the results would not depend on what the other tests were.  Does that make sense?

[desperate199]

Jackie can Lyme cause degenerative changes in our spine in such a short time, cause disk bulging , etc.... or can it just be normal wear and tear of our back? txs hun , also


Thank you Jackie, I will keep you posted , I was also wondering what your thoughts on the Negative test results I had from Igentixs for co-infections , do you think its a false negative even though they used the exact same blood work they tested me for Lyme? or it can possibly be a definate negative ?  I would appreciate your thoughts on this . I will keep you posted hun txs again xxxx
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