Aa
MRI Report
My MRI report states, periventricular, juxtacortical, subcortical white matter t2 hyperintense lesions. Signal abnormality is also noted in the corpus callosum posteriurly. Differential would include ischemic, demyelinating, infectious/inflammatory causes. What does this mean? From what I'm researching this could point to MS but I've also been tested for Lyme, which came back negative and know that means nothing and have heard that Lyme can be misdiagnosed with MS.
Best Answer
Thanks Jackie!!
Yeah, I'm glad you said that because I'm not too impressed with the LLMD so far, I was hoping for at least something, not just it's up to me....so gonna think about that and yes, the current doc only did the W. blot. This is frustrating, UGH!! and I've only begun to look into it, can't even imagine what you guys have been through!!
I live in Northern NJ, tick haven, lots of woods, used to do a lot of hiking and have had horses and dogs all my life....
Yeah, I'm glad you said that because I'm not too impressed with the LLMD so far, I was hoping for at least something, not just it's up to me....so gonna think about that and yes, the current doc only did the W. blot. This is frustrating, UGH!! and I've only begun to look into it, can't even imagine what you guys have been through!!
I live in Northern NJ, tick haven, lots of woods, used to do a lot of hiking and have had horses and dogs all my life....
OH, I don't know if I've been reinfected and it's possible only recently been infected, I have no way of knowing if that's what it was 15yr ago.
But now that I think of it....last year in FL around this time I was on vacation and woke up with what I thought was a spider bite on my leg, which then got a huge red ring around it, not the bullseye, and I went to urgent care there and they said it was a staph infection and put me on antibiotics. But supposedly there's no Lyme in Fl, right??????
But now that I think of it....last year in FL around this time I was on vacation and woke up with what I thought was a spider bite on my leg, which then got a huge red ring around it, not the bullseye, and I went to urgent care there and they said it was a staph infection and put me on antibiotics. But supposedly there's no Lyme in Fl, right??????
Glad to help --
Although we don't post the names of docs here in the open (to protect friendly LLMDs from the miserable anti-LLMD squads out there), you might also post a new message titled something like "Seeking LLMD in New Jersey" or whatever area you can easily get to, and ask for a reply through private message (PM) on this website.
There is an LLMD in Montgomery Cty MD that is probably too far from you, but his LymeMD blogspot is worth reading, just because he thinks out loud about Lyme, and that's quite refreshing. It helps me formulate and frame my own questions and issues.
The ILADS website also has good stuff on it, tho much is aimed at docs. Depends on your tolerance for medical jargon Burrascano's guidelines posted there are good reading, if you're up for it. ILADS is the main voluntary group for LLMDs, but as you're finding, the field is in flux, and so you gotta watch the watchdogs. Like being really really sick isn't enough!
Hang in there -- you're making the right moves imho -- stay in touch --
Although we don't post the names of docs here in the open (to protect friendly LLMDs from the miserable anti-LLMD squads out there), you might also post a new message titled something like "Seeking LLMD in New Jersey" or whatever area you can easily get to, and ask for a reply through private message (PM) on this website.
There is an LLMD in Montgomery Cty MD that is probably too far from you, but his LymeMD blogspot is worth reading, just because he thinks out loud about Lyme, and that's quite refreshing. It helps me formulate and frame my own questions and issues.
The ILADS website also has good stuff on it, tho much is aimed at docs. Depends on your tolerance for medical jargon Burrascano's guidelines posted there are good reading, if you're up for it. ILADS is the main voluntary group for LLMDs, but as you're finding, the field is in flux, and so you gotta watch the watchdogs. Like being really really sick isn't enough!
Hang in there -- you're making the right moves imho -- stay in touch --
The bite sounds pretty Lyme-ish to me. Docs get SO hung up on bullseye rash, but it doesn't always show, and it's not always round or circular.
Also you have to consider that maybe half of Lyme ticks also carry other diseases that confuse the diagnostic picture and need separate testing and treatment.
Time for a new doc, methinks!
Also you have to consider that maybe half of Lyme ticks also carry other diseases that confuse the diagnostic picture and need separate testing and treatment.
Time for a new doc, methinks!
Have an Answer?
You are reading content posted in the Lyme Disease Community
Fearing autism, many parents aren't vaccinating their kids. Can doctors reverse this dangerous trend?
Can HIV be transmitted through this sexual activity? Dr. Jose Gonzalez-Garcia answers this commonly-asked question.
A breakthrough study discovers how to reduce risk of HIV transmission by 95 percent.
Dr. Jose Gonzalez-Garcia provides insight to the most commonly asked question about the transfer of HIV between partners.
Before your drop a dime at the pharmacy, find out if these popular cold and flu home remedies are a wonder or a waste
Fend off colds and the flu with these disease-fighting foods
I definitely think you should follow Jackie's advice in pursuing the lyme diagnosis. Don't abandon that possibility until you are totally sure it really is negative. I agree with the others that any rash with a ring sounds lyme-like.
I also think you need a good ILADS doctor to guide you through a test for bartonella. Bartonella has the same symptoms as lyme, but usually causes worse brain symptoms. Plenty of ticks carry bart but not lyme. Some strains of bart cannot be lab tested so you may need a good doc to sift through symptoms and give you an antibiotic trial.
Another condition that fits all your symptoms and brain lesions is vitamin B12 deficiency. It is amazing how useless most doctor are at diagnosing it. Most people are ill for years before getting a diagnosis. The blood test may say lowish when really you are atrociously deficient.
There are various genetic polymorphisms that mean people cannot convert inactive B12 (as absorbed from food) into, and between, the various activated forms. That means you could have B12 shots and still not get better.
If you are taking oral B12, it will most probably not get into your blood stream.
I can suggest a doctor who frequents another forum and who is really helpful at explaing all this (which I am not!), he is called Richvank and if you send him a PM on this forum
http://forums.****.me/index.php
I am sure he will make some suggestions about tests you may want to ask for. I am called Athene on that forum, you can tell him I sent you!