More specific results on my Igenex lab..

[Hope75]

I thought I should be more detailed as I understood these more, so here goes:

IFA, B Burgdorferi G/M/A - Titer 1:40 - Indeterminate

Igenex IgM Result:  Positive
CDC/NYS Result:  Positive
39 kDa +
41 kDa +
58 kDa +

Igenex IgG Result:  Negative
CDC/NYS Result:  Negative
39 kDa Indeterminate
41 kDa ++

Lyme Multiplex PCR
Genomic - B Burg - Negative
Plasmid - B Burg - Negative

I didn't realize that the "+"s could be single or up to four (I think?), showing strength of the band?  I have called friends and family and none of them really know what to say and don't understand.  I think I will have to prepare a brochure or something to explain Lyme, LOL.  It is so very complicated and they don't understand the politics involved in getting treatment, etc.  I don't really get it all either, but I am now on a quest for knowledge and usually I can't be stopped when I have a goal in mind.  I hope to be a serious force to reckon with in regards to Lyme awareness, fighting with insurance, etc.  Look out naysayers!

[Hope75]

Yes, I did some more googling on the movie and it looks like this summer the whole thing will be out.  I need to buy Cure Unknown and read it too.  

I think my group will be fairly positive.  I've met two out of, I think, 5 or 6 that are in the group and they are very positive people.  I'm sure it's different everywhere.  So far, I think we have a good group on here, so that is a blessing.  

Don't you worry, I am on this like white on rice:P  If I find. anything it will be my pleasure to pass it on.  

Take care of yourself and I'll be around for a while it seems!  :)

[wonko]

I've only seen the preview version for sale at my LLMD's office or on the movie website (not sure if the link is allowed, but it's just the title followed by *******).

It doesn't have a menu or anything, not even subtitles (I usually like to watch TV with the volume way low and captions on).  But I didn't want to wait so I bought it.

I've watched it several times.

I need to re-read Cure Unknown, this time with a high lighter and page flags in hand.

If you come across other materials you find and like, please let us know.  For me, I've found a lot of books to be too extreme for my taste.  I'm always looking for another good source.

I tried to join a local support group, but was told they were no longer meeting because "everyone's too sick."  Not the uplifting experience for which I was looking!  Guess that's part of why I'm online.

[Hope75]

:)

A friend of mine let me borrow "Under Our Skin" and I watched it.  It's very well done.  It does help.  I need to watch it over and over, though.  My quest for knowledge has only just begun.  I thought I saw where you could purchase it on www.Amazon.com?  Is the pre-release different?  Could be wrong, but she got it from somewhere.  I'm on facebook too and there is a Lyme Disease community that I joined last night and it has info about Under Our Skin.  Youtube has a short summary on the film.  

[wonko]

I keep hearing that "Under Our Skin" will be out in theaters "soon," but I don't know if there is an exact date.  Those close to me who've seen it (I purchased a pre-release copy) said it helped them to better understand my situation.  

In the meantime, I finally got my mom to start reading "Cure Unknown." :)

[JackieCalifornia]

You go, girl!  That's the attitude!