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Muscle pain and stiffness
Hi, I have had lymes disease for a few years now. I've constantly had back pain and problems with my back for a long time now, but I didn't know why. A few months ago, i started feeling feverish, but never had a fever when i would check and my whole body just felt drained of everything to the point where I could barely work. I just ignored it for most of the time then I finally couldn't take it anymore and I went to my doctor and she did blood tests to come to find out that my lymes was acting up real bad so she prescribed me doxycycline, but i didnt take it for a while because it would make me feel sick everytime i did. Eventually, I started taking it because I just felt horrible and could barely get out of bed. Now that i have finally finished all of it, I thought i was starting to feel better, but now my back still keeps hurting everyday and yesterday all of a sudden I got pain in my thighs and they feel so stiff that I could barely walk or bend at the knees and my body still feels really weak all the time. At first I thought it was because I work overnights and it was just making me really tired all the time, but now I'm not so sure. Any ideas on what this could be?? Is this lymes symtoms, if so why would it come back after i was done with the medication? I did wait a while to take it though, so maybe thats it? I don't know. If anyone knows anything, please let me know. thank you.
Good for you, you're taking action. Doxy can be rough on some people, so I hear. Hang in there! Let us know how you do, okay?
Thank you for your help, I really appreciate it. I'm going to look up the LLMD Connecticut.
Well, the most recent treatment of doxy was for 28 days, but it made me sick so the doctor prescribed me amoxicillin..which i didnt really think would help and it wasn't really doing anything for me so I just decided to go ahead and start and finish the doxy instead.
The earlier treatment I don't even remember taking, but it had to be at least a few years ago and I probably took doxy as well.
My doctor did not discuss anything else with me besides telling me that its acting up again and too take doxy for about a month...I don't have copies of the blood tests though so I'm not really sure.
From what you told me, I feel like I really want a second opinion though so thank you and as soon as i figure anything else out I will let you know and what not.
Well, the most recent treatment of doxy was for 28 days, but it made me sick so the doctor prescribed me amoxicillin..which i didnt really think would help and it wasn't really doing anything for me so I just decided to go ahead and start and finish the doxy instead.
The earlier treatment I don't even remember taking, but it had to be at least a few years ago and I probably took doxy as well.
My doctor did not discuss anything else with me besides telling me that its acting up again and too take doxy for about a month...I don't have copies of the blood tests though so I'm not really sure.
From what you told me, I feel like I really want a second opinion though so thank you and as soon as i figure anything else out I will let you know and what not.
Welcome to MedHelp Lyme.
I'm sorry to hear you are suffering. Lyme is a tricky customer ....
You don't say how long the recent doxycycline treatment lasted -- 2 or 3 weeks, perhaps? How long was the earlier treatment you had, and was it also on doxycycline?
It's possible you got re-infected by another tick bite -- and it's possible you have something in addition to Lyme disease. The same ticks often carry other diseases that have different symptoms, need different diagnostic tests, and often different treatment from Lyme. Did your doc discuss this with you?
Do you have copies of the blood tests your doc ran? Sometimes that can be useful, particularly if you decide to get a second opinion from another doc.
If your doc hasn't considered co-infections with other diseases and and has not fully treated you, I would strongly suggest finding another MD for a second opinion, but this doc should be one who takes a more aggressive approach to Lyme diagnosis and treatment than most docs do.
It's hard to tell whether your doc is one of the more aggressive ones, based on what you've related above, but in your situation I would seriously consider getting a second opinion with another MD, specifically one who is a member of ILADS (International Lyme and Associated Disease Society) if you can locate one. You can search "LLMD Connecticut" or "LLMD Hartford" or wherever you are and see what pops up.
LLMD is slang shorthand for Lyme-literate MD, that is, one who takes the more progressive, ILADS-oriented approach to diagnosis and treatment. It doesn't work to ask a doc if they are an LLMD, because it's not a term they use. It all sounds like a spy movie, where no one knows who anyone else really is, but it's what we're up against.
Let us know if we can be of more help -- hope you get a second opinion -- that's what I would do.
Best wishes -- let us know how you do and what you do, okay? Your experience could help someone else reading about it here.
I'm sorry to hear you are suffering. Lyme is a tricky customer ....
You don't say how long the recent doxycycline treatment lasted -- 2 or 3 weeks, perhaps? How long was the earlier treatment you had, and was it also on doxycycline?
It's possible you got re-infected by another tick bite -- and it's possible you have something in addition to Lyme disease. The same ticks often carry other diseases that have different symptoms, need different diagnostic tests, and often different treatment from Lyme. Did your doc discuss this with you?
Do you have copies of the blood tests your doc ran? Sometimes that can be useful, particularly if you decide to get a second opinion from another doc.
If your doc hasn't considered co-infections with other diseases and and has not fully treated you, I would strongly suggest finding another MD for a second opinion, but this doc should be one who takes a more aggressive approach to Lyme diagnosis and treatment than most docs do.
It's hard to tell whether your doc is one of the more aggressive ones, based on what you've related above, but in your situation I would seriously consider getting a second opinion with another MD, specifically one who is a member of ILADS (International Lyme and Associated Disease Society) if you can locate one. You can search "LLMD Connecticut" or "LLMD Hartford" or wherever you are and see what pops up.
LLMD is slang shorthand for Lyme-literate MD, that is, one who takes the more progressive, ILADS-oriented approach to diagnosis and treatment. It doesn't work to ask a doc if they are an LLMD, because it's not a term they use. It all sounds like a spy movie, where no one knows who anyone else really is, but it's what we're up against.
Let us know if we can be of more help -- hope you get a second opinion -- that's what I would do.
Best wishes -- let us know how you do and what you do, okay? Your experience could help someone else reading about it here.
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