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5248641 tn?1367587247

Nueropathy and Lyme or MS

I have been tested by a critical care assessment and was told I was showing neurpathy in left arm and leg. Is this typical for Lyme or MS? I am so confused with all my symptoms. Both legs hurt, twitch, muscles roll. I get leg weakness and it doesnt affect my feet except buzzing in the left foot that changes form day to day. HELP??? My symptoms are different eveyday only constant is leg tenderness in the thighs and twitches in my calves.  Dr.s are so confusing and dont know whats going on. I have had a ton of testing. Neuro says clear and rheumy says clear excpet for and elevated RA test. LLMD says lyme. I just dont know anymore. Getting so tired of the symptoms, and worried...

Thanks Cyn
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5248641 tn?1367587247
P.S. I have no faith in dr.s I do most of my own research and glad I have decided to join the message boards. You all are a great help and give me hope...
Helpful - 0
1763947 tn?1334055319
It's better to have Lyme than MS because there is a cure even though it can be long and hard.

My pharmacist told me about a friend of hers who spent 20 years in a wheelchair with "MS" she learned about Lyme, saw an LLMD and is finally walking again. Such a waste.

And feel better, anxiety and depression can come as a side effect of Lyme or a co-infection.
Helpful - 0
Avatar universal
You weren't stupid in pulling the ticks off of you ... the ticks were stupid to bother you!  There are ticks everywhere, on pets, in city parks, you name it -- not just on farms.  We are all exposed and just don't know it.

Don't be afraid of a Lyme diagnosis -- it's the first test to getting well, if it's what you have.  I had Lyme and babesia, and it's a miserable combo.  My doc treated the babesia first, and I felt a lot better already!  Then Lyme treatment, and I was officially healthy again.  I was tired and my body was worn out from the fight, but slowly and surely I regained my energy and strength.  

Don't be afraid of treatment, either.  Part of Lyme is that it messes with your moods and thought process, and makes it hard to think things through.  Try the magnesium supplements and see how you feel -- it helped me a lot -- but it doesn't treat the infections, just lessens some of the side effects of the infections.

Be not afraid!  We're pulling for you.  Keep us posted, okay?

Helpful - 0
1211030 tn?1381137342
Neuropathy is common with Lyme, I am totally natural and take Multi B complex, Alpha Lipoic Acid and biotin for the neuropathy.  Helps me immensely
Helpful - 0
Avatar universal
How are you doing these day?  I remember the good news when you said you'd reached remission!  I am hoping you're still feeling good.
Helpful - 0
1094370 tn?1317134825
I have to tell you that your symptoms VERY MUCH sound exactly like mine when I first developed symptoms after my gallbladder surgery.  I also had numbness in my face, feet and leg in addition to all you describe.\

I have lyme (dx by Igenex) and test positive time after time.  

Sounds like lyme to me for sure!

I was screened for MS at UCSF and despite having 20+ lesions on my brain, they say this isn't MS.  They say it's not lyme either though because my spinal tap did not show lyme but that is pretty typical I guess.  I have made improvements with ABX but it's a long journey.
Helpful - 0
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