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CD57 and C4a test results?
Ok so I just received my final test results as I posted earlier my CD57 score was an 8 which should range from 60-360 and my C4a score reads at 1112.9 which should range around 0-650. Has anyone else had these very high and low readings and what was your next plan of attack, I am scheduled to see a Lyme specialist in Fond du Lac, WI. I am wondering how soon they will start treatment.
Thanks everyone. I will keep you all posted. I see the LLMD on the 31st of this month. You all have been a great support. Thanks again for helping me to understand all of this.
Don't be afraid, for me it was the same symptoms only worse, maybe I couln't eat or tummy problems, like a bad flu. If its too bad my doc says cut back on the meds, that is why I prefer orals. I was misdiagnosed with hemochromotosis and had to get a picc line, which I would need for IV meds, it became infected several times and that made me worse.
I use to, at the start of treatment, get sick, or herxed, every 4 weeks like clock work ...now it's spread way out.
I never heard of seizures either, maybe if you have had them before but never heard of anyone seizing.
I use to, at the start of treatment, get sick, or herxed, every 4 weeks like clock work ...now it's spread way out.
I never heard of seizures either, maybe if you have had them before but never heard of anyone seizing.
Don't be afraid of the treatment -- if the symptoms are too much (like a badly aching case of the flu), then a call to the doc will allow adjustments to be made -- but try not to worry. Most of us do just fine with no meds adjustments that way. Just know that if your symptoms are *much* worse, the doc is just a phone call away, but it may well be that you don't feel worse much at all.
I would say that seizures are VERY uncommon from my reading and do not recall *anyone* here reporting seizures from treatment. Hang in there!
I would say that seizures are VERY uncommon from my reading and do not recall *anyone* here reporting seizures from treatment. Hang in there!
I think that what I am scared of the most is the Herx effect. How was you all you guys as far as the Herx effect? Was it tolerable for any of you. I would like to know. I just pray the one thing I don't have are seizures.
My doc always starts patients on orals for at least three months. For patients who are severely ill and need the IV meds, this gives them a chance to knock it back a little before hitting it with the big guns. The idea is to reduce the chance of severe herxing. IV meds carry their own risk of infection, so they are considered carefully.
I have only done oral meds and my doc gave me a choice. I feel more in control with oral meds, if I need to back down for some reason I can. If I didn't respond to orals I would switch.
It's up to your doc. There is no standard approach yet, since Lyme+ is still a developing field of medicine, and each doc is different too.
It's my impression that IV is usually used for those who don't respond to oral meds and are severely ill ... I had only oral meds, and it worked fine.
There seems to be a thought out there that orals meds are not a serious approach and that only IV meds mean the doc is really aggressive. However, IV is a hassle and has risks of infection from the IV tube, so it is my impression that IV is usually used only when oral meds are not effective.
It's the doc's call.
It's my impression that IV is usually used for those who don't respond to oral meds and are severely ill ... I had only oral meds, and it worked fine.
There seems to be a thought out there that orals meds are not a serious approach and that only IV meds mean the doc is really aggressive. However, IV is a hassle and has risks of infection from the IV tube, so it is my impression that IV is usually used only when oral meds are not effective.
It's the doc's call.
Do you think they will have me on oral meds or IV treatment since this seems to be such alarming numbers?
Low CD57 and high C4a test results are indicative of Lyme. So ... congratulations ... I guess?? Yeah, congratulations!
Next step: see the doc. Treatment will likely start immediately; there's no reason to wait unless there is some competing consideration. The doc will know if that's the case.
The doc may want to test you for co-infections, which are often treated first, because Lyme is a longer treatment than the usual co-infections. The doc will know if he's a Lyme specialist.
Doxycycline was the original treatment for Lyme, but there are other meds that are more commonly used now: often there are two different meds taken at the same time, one to break open the cysts the bacteria hide in, and the other to kill the bacteria. I never had doxy.
Let us know how it goes! Take care -- you're on your way!
Next step: see the doc. Treatment will likely start immediately; there's no reason to wait unless there is some competing consideration. The doc will know if that's the case.
The doc may want to test you for co-infections, which are often treated first, because Lyme is a longer treatment than the usual co-infections. The doc will know if he's a Lyme specialist.
Doxycycline was the original treatment for Lyme, but there are other meds that are more commonly used now: often there are two different meds taken at the same time, one to break open the cysts the bacteria hide in, and the other to kill the bacteria. I never had doxy.
Let us know how it goes! Take care -- you're on your way!
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