Skidmore Lyme Conference

[wonko]

Watch Livestream at the url below:

http://www.livestream.com/skidmorevideo

They are taking a break now but are resuming at 1:45 Eastern today.

[JackieCalifornia]

PS  I've just watched Pamela Weintraub's portion on the video and will be watching the rest as time permits.

It is both uplifting and depressing:  uplifting to know that we are not alone in this and that progress is being made; depressing that we are still dealing with the politics of Lyme.

If nothing else, this program will serve to remind us all that no matter how alone we may feel in our misery, we are most certainly *not* alone, and there are many good people out there working hard to fix the situation.

Be not afraid!  

[JackieCalifornia]

Excellent -- thanks much, wonko -- hope you're doing well.

[wonko]

I found another site on which a user put together the below details of the conference and the links for different segments.  Since many of the segments are long, it is helpful that this person notes the time at which certain content appears in the videos.

Thought I'd update this post with this helpful organization and info.
************************************************************************************

The FULL CONFERENCE VIDEOS, with references.

FORUM ON TICK-BORNE DISEASES
Skidmore College, Saratoga Springs, New York
5/21/12

Video 1
http://www.livestream.com/skidmorevideo/video?clipId=pla_5079838b-3d73-4a6b-8095-37d5c43c3bc7&utm_source=lslibrary&utm_medium=ui-thumb

@ 11:14 Christina Fisk, Welcome and Introduction (including where to find supporting materials posted online).

@ 25:00 Rep. Chris Gibson, U.S. Congress 27th District, New York, Honorary Conference Host

@ 31:00 Pamela Weintraub, Author "Cure Unknown"

@ 1:11:39 Holly Ahearn, Microbiologist, Lyme Mother, "A Tale of Two Lymes"

@ 1:43 Lorraine Johnson, Esq.,
CEO LymeDisease.org, Board Member ILADS
"The Cost of Chronic Lyme"


Video 2 (labeled Part 1)

http://www.livestream.com/skidmorevideo/video?clipId=pla_6e766799-727a-467e-872f-c1936459b2bf&utm_source=lslibrary&utm_medium=ui-thumb

@ 16:23 Introductions, Panel and CV Dr. Richard H, Founder, ILADS

@ 20:28 "Leah" Lyme and Babesia patient of Dr. H

@ 23:50 Dr. H, has seen 12,000+ Lyme patients in past 25 years - MSIDS. "MUST SEE!"
"Multi-systemic Infectious Disease Syndrome"

Video 3 (labeled Part 2)

http://www.livestream.com/skidmorevideo/video?clipId=pla_af9927af-d302-45e8-8e7f-eb93cf2f5a01&utm_source=lslibrary&utm_medium=ui-thumb

@ 8:19 Introductions and sponsor acknowledgments

@ 10:45 Dr. Daniel C, MD, MPH (Mt. Kisco, NY) Former President ILADS, Beth Israel Medical Center, Mt. Sinai Hospital
"Obstacles and Solutions for Tick-borne Diseases"

@ 45:24 Dr. David L, MS, PhD
"Developing Intervention for Transfusion Transmission of Babesiosis"

@ 1:13:40 Dr. Kilani, founder Clongen Labs, Germantown, MD.
"Challenges of Tick-borne Illness Detection"

@ 1:46:45 Dr. Kenneth L, Pawling, NY
Forum Honoree
"A leading warrior in Lyme" MUST SEE!

Says chronic Lyme patients are subjected to severe discrimination, which may require special protection under the law.

His patient, Vicki Logan, was first person to prove failure of IDSA recommended IV treatment, by CDC culture. (Chronic neuroborreliosis was cause of death at autopsy.)

Suppressing the evidence of chronic lyme - an ethics issue.

Implicating Gary Wormser, Empire BC/BS and Deloitte & Touche and IDSA Lyme recommendation committee member, Dr. Raymond Datweiller, (who testified for BC/BS when Vicki Logan sued in 1996 for IV treatment coverage).

Cites book "Deadly Spin" by former PR Director for Cigna, Wendell Potter, who exposed unethical public relations techniques used by insurers.

Suggests need for Lyme-dedicated treatment facilities and how they might be funded, and carving out Medicare/Medicaid exceptions to cover Lyme patients in nursing homes.

Video 4: Conclusion

http://www.livestream.com/skidmorevideo/video?clipId=pla_4c504039-b11c-4ecc-850e-b93ab8b529c9&utm_source=lslibrary&utm_medium=ui-thumb

[mojogal]

Thanks wonko

[wonko]

I believe the recorded program from this morning can be viewed here:

http://livestre.am/3TEB4