Strange Body Temps- Freezing Cold

[renschwa]

So as I already posted- yesterday I had a cold like thing going on, runny nose, sneezing, aches, chills and slight fever at 99.6. The way my body felt, it felt like my temp should have been 101 though. Not sure if this was a herx or not.... it was my 12th day on abx.

But today I feel much better but still have the chills in fact I'm freezing cold! Can't seem to get warm.  My temp even registered  95.5? Is that even possible? Thinking I should get a new thermometer! I do feel freezing cold though.

I'm normally a cold person but I notice lately that it's worse than usual. My hibby can't believe how cold I am even under the covers- usually 3 of them I'm using now. Last winter I had to take off blankets but not this year, I'm freezing all the time.

Does anybody else out there have this issue too? Could it be my meds?

[JackieCalifornia]

Greetings --

I don't recall that the original poster on this thread is still checking in, but you could send her a 'private message' through this website -- if you hover your mouse over the poster's name, a small box will pop up with several options.  If you click on 'send message', another box will open and you can write an email to the person there.  Then this website will forward the message to that person, assuming she (?) still has that same email address.  

Whether the meds were helping you or whether it was because Spring had arrived, I would go with the 'meds were helping you.'  Let us know how we can help!  Best wishes --

[jtoth55]

I know this post is 4 years old, but I wanted to see how you were doing with your cold spells, as I've been struggling with the same thing.

I got blind-sided by lyme for the first time last October, and then struggled through a long / cold winter feeling much colder than everyone else. My temperature would be normal but what I felt didn't correspond to that. At times I'd be in my study under multiple blankets and having a space heater right in front of me blasting the room to 88 degrees and yet I'd still feel cold. It was also a must to be wearing sweat pants, a sweat shirt, and a robe under the covers each night. Even with this, almost every night I'd wake up shivering uncontrollably, and would require more blankets and my wife snuggling up next to me to stop the shivering.

I started antibiotics treatment in March and almost immediately the "cold spells" went away, I felt the same temperature as everyone else. However I wondered if it was partially because the temperature was warming up in general as we geared towards summer. From March until June I was almost symptom free, however now in July the cold spells have come back, and last night I had my first shivering bout in a while.

It's discouraging because I'm 5 months into treatment and thought this was behind me, and it's hard to find hope when you're going through this alone. You may have family and friends, but you still feel alone since they can't understand the battles you fight every day not just physically but mentally.

Anyway, interested to hear how others are doing, maybe it'll provide some encouragement for me.

[JackieCalifornia]

Yeah, I wonder about my thermometer sometimes too.  I make somebody else use it just to double check that it really can still make it up over 98 degrees, and it does every time.  Sigh.

[renschwa]

Thanks! Helps to know that other people have experienced similar things!

I am keeping a log of symptoms and am rating how I feel on 1-10 scale everyday. It's required by my LLMD actually. Without it, I'd forget to tell my doc so much.

I took a hot bath and feel better. I know a lot of people have problems with heat, but I don't seem to, at least not yet...

I still might buy a new thermometer just to be sure the other one has been accurate LOL. I thought I was seeign things when I read 95.5. I took it twice.

[JackieCalifornia]

Others can comment too, but I've had a lot of unexplained temp variations through the 'Lyme times.'  Mostly my body temp is low, like 95 or 96 something.  My MD put me on thyroid meds at one point, but they upset my stomach so I stopped.  

I believe I've read that Lyme+ messes with your endocrine system, including thyroid, because the bugs like it chilly inside.

My pattern of hot/cold/warm has changed over time, and I can't correlate it with being more ill or less ... 'It's the bugs' is all I can conclude.  

It could, as you suggest, be part of a Herx, because the bugs are wigging out at the drugs you are throwing at them.  That's a good thing.  It means the bugs noticed something is after them.

Lyme presents with many symptoms, different in different people at different times, and no explanation for any of it.  I am not comfortable in a room less than 80 degrees, so I wear a lot of clothes when it's "chilly" (below 80).  I amuse myself by keeping a symptom log if I am particularly worried about a string of events, like temp.  I don't show it to my LLMD, because he's got other things to talk about, but I do review my log before each appointment so I can give a quick summary of my symptom changes and reactions to meds.  It also keeps me focussed on something other than how I feel:  I focus instead on writing down how I feel.  Not much difference, perhaps, but it helps me.

I looked back at my log the other day and was surprised that a symptom I thought started at most a couple of months ago actually began more than 6 months ago ... just a data point for my next appointment, as a persisting symptom.

The bugs will continue to struggle with you for control over your normal body actions and reactions, and it is worrisome sometimes, I know.   Esp when I start a new med, I am watching myself closely and will sometimes check a new symptom here at this website or elsewhere, to see if anyone else has had it, just as you are doing.  It provides peace of mind, if not true understanding.  I don't think the MDs really understand much of it either, except as stuff in the wide array of weird bug tricks.

You sound like you are doing fine dealing with it all.  Keep it up!