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Avatar universal

Surprise herx?

Late this afternoon, I was a bit surprised when I felt a heavy head, had trouble keeping my eyes open, my shortness of breath got worse, and I got irritable.  I had to go lie down for an hour and a half. When I got up, I was off balance and felt dizzy and my ribs hurt. I was a little surprised as this was more complex and intense than my Tindamax herx.

After I got up, I remembered that my Samento order arrived today. I had been off it for about two weeks because I didn't get my act together to order another bottle soon enough. When I first started on it about 6 weeks ago, I eased into it a couple drops a day.  But today, I just took the full dose when it arrived.

I am convinced my little flare up this afternoon was a herx.  I took another dose an hour ago and now I have more ringing in my ears and rib pain than I have had in at least a month. That's the first time I have noticed a herx related to a supplement.  I have to admit I am surprised as I did not believe a supplement could have such a direct effect on the little buggers.

Has anybody else taken Samento?
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1763947 tn?1334055319
I take supplements called Xymogene by Dr. Perlmutter.  I researched the doctor and the company before buying them and I was impressed.  I had herxing from those herbs and supplements. My doctor sells these in her office.
My Dr is an LLMD who is also into alternative medicine and I really respect her because it is hard enough to treat Lyme and be accepted but also thinking outside the box and using or suggesting that some of the alternative medicine treatments may also work is a big deal like Jackie said, the "witch doctor" approach should be available to us if we need it.
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Avatar universal
Interesting comment you make:  "My mother is a retired nurse who went to college in the days that they taught that vitamins and supplements are a scam sold by hucksters."

It's the old tension between 'science' and 'witchcraft'.  As [largely male] science began to encroach on medicine, the 'granny ladies' who understood herbal treatment were ever more marginalized as you note -- and came to be called 'witches' making 'brews' of herbs with the dark arts.

That same paradigm appears to be at work in Lyme treatment today.  Sigh.

My mother studied 'home economics' in college, which was the effort to impose 'scientific' approaches to what people (esp women) did every day to feed and care for their families.  There were benefits to applying discoveries made in science, such as how to can food while avoiding food poisoning, but the baby got tossed with the bathwater, and the good things that people knew from centuries of trial and error were discredited wholesale when 'science' took over.

It must be terribly disconcerting for docs who go over to the 'dark side' of treating Lyme according to conscience to find themselves so marginalized in the medical fraternity (a word I use purposely:  the 'male model' of medicine is very much what we have today).  Nobody likes being the skunk at the garden party, and so I understand why many docs won't even consider the ILADS approach for fear of ostracism.  

Kudos to those docs who stay true to their own internal compass.  Where would we be without them -- ?!
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Avatar universal
Thanks for the suggestion. I will check out his books. I did clear the samento with my PA. My mistake was resuming the full dose after a two week hiatus rather than easing into it. I think I'll back off and work my way back up slowly.

My mother is a retired nurse who went to college in the days that they taught that vitamins and supplements are a scam sold by hucksters.  I take a broader view, but have also come to appreciate that many of the natural medicines are very powerful!
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Avatar universal
Samento is one of the primary herbal treatments for Lyme.  I'm not surprised you reacted to it.  

Herbal meds are chemicals just like drugstore meds -- they just come from mother nature.  (And of course penicillin, the original 'manmade' antibiotics, is simply a mold/fungus that came from nature.)  It's all chemicals, no matter where they come fromt.

I'd suggest you read up on herbal Lyme treatments (Stephen Buhner is excellent on this, books on Amazon) before plowing ahead.
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