I went into the ilads site and I watched a few videos.
Those of you here who went through treatments.... please let me know what kind of treatments did you take? How long was your treatment?
What is your condition today? Are you healed now?
I don't want to know about your experiences of being misdiagnosed.
I want to know the treatments you've had that really lead you to become better. Please kindly share with me your day to day experiences with those treatments (if you still remember) or is still going through a treatment.
It's not enough what doctors say, not enough is said with those videos in ilads. I don't know anyone who has Lyme... I thought of asking my doctor to introduce me to his Lyme patients. I don't know people who had this disease, had treatments & overcame it (became better). As I watch out for my symptoms, U want to meet these kinds of people as myself.
Please let me know the treatments that worked for you, your daughters and son's, your spouses and parents. I appreciate. Thanks!
I was out cycling today for 4 hours & watched the sunset by the Rhein.
We had flood here recently in Germany and for about three weeks, the city closed the flood gate. As I was having my wheat beer (malt/hop beer), I looked at the high water of the river & across it, the forest (our cycling road) is still wet (damp & muddy). I imagined ticks living in that forest & for the first time, I couldn't enjoy my beer & cycling on those trail roads.
I love the outdoor but the worries of Lyme disease just creeps into my beautiful world of wondrous nature. I felt kind of sad, but I will go out there again tomorrow since the weather is promisingly on the high 30'c.
And on Monday, I will get my first treatment of bio resonance therapy.
I don't know what to feel tomorrow or when the symptoms of Lyme sets in like the dark after the sunset... in the meantime, thank you all for all your supportive messages! Goodnight!
Hi, folks,
We don't allow posting of email addresses in any case, but many links to valuable resources are permitted. ilads.org is one of them, in fact.
If you're ever in doubt about posting a link, please feel free to contact us, either via PM or by using the "Contact Us" link at the bottom of every MedHelp page.
And now, back to your regularly-scheduled discussion... :)
Claire
LOL---- very clever. Do we have to cross our eyes and fingers and throw salt over our shoulder too?
That was intended as a joke. Maybe not very funny but it's a joke. :)
I think that Jackie offered very good advice, as she mostly does.
ah-HA! See? the computer system blocked the email address I typed above.
In the string
contact [at] ILADS.org
replace [at] with @
replace [dot] with .
and remove all the extra spaces
and then you'll have a functioning email address.
Sorry about the links .... sometimes the computer system here at MedHelp blocks links that are usable by clicking, so I space them out like this:
contact [at] ILADS.org
In the real world, this would be
***@****
If that shows up as a string of asterisks, it's the computer system at MedHelp. I also think I wrote that URL incorrectly up above somewhere and left out the [dot] part.
We've been told recently that it's okay to post links that are not directing traffic away from MedHelp, but sometimes it's hard to tell what that might be. Also, personal email addresses get blocked out here if put into a message.
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About your son and his tick bites at camp, that happens a lot -- esp. kids with strong immune systems don't notice that they are feeling a little under the weather and just plow ahead. My kid was like that. Neither of us saw tick or rash, but both had Lyme and a co-infection. I was dreadfully sick, but my kid was just a bit tired, as she said AFTER she was tested, diagnosed and treated. Strong kids.