Aa
diagnosed 3rd stage Lyme (6y), afraid about heart and death. :(
Yesterday i was diagnosed Lyme disease i probably have undiagnosed since 2006 when i had tick byte in august and in november i had multiple neurological symptoms, weakness and pitting swelling on legs. They did disappeared after weeks but some symptoms persisted months and some do exists even now.
. Since then i had PVC's, EKG showed arrhythmias (and possible myocardial ischemia and possible myocardial injury, going to cardiologist) and i have many more symptoms like pain in fingers, toes, dizzy spells, eye ticks and flashes-floaters in vision)
My question is that can Lyme disease cause permanent heart disease and be ultimately fatal?
And if heart is damaged does it will recover after antibiotic treatment?
. Since then i had PVC's, EKG showed arrhythmias (and possible myocardial ischemia and possible myocardial injury, going to cardiologist) and i have many more symptoms like pain in fingers, toes, dizzy spells, eye ticks and flashes-floaters in vision)
My question is that can Lyme disease cause permanent heart disease and be ultimately fatal?
And if heart is damaged does it will recover after antibiotic treatment?
You're having a rough time, I can tell. Take care, be careful! Things will get better.
Hi, Thyroid problems do not run in my family, but they it is so messed up now.
I am reminded of my depression and anxiety, that came on about 6 years ago along with fatigue. My Lyme Literate nurse friend suggested testing for Lyme then but I had no insurance or money to cover it. I now also have problems with my memory, but I am sure, 6 yrs ago is when it first happened or appeared
.I got better but now it came out of the dormant stage due to stress, maybe of the mono I had in December or maybe from my divorce or because I also find out at the same time that I have genetic Hemachromatosis. Since the hematologist/oncologist tested for it genetically it probably isn't related to Lyme but I find the timing strange.
I still take my depression/anxiety medication since my friend told me too and until I move and see my LLMD. All I can say is this is really tough and worse when you are all alone in a place that I know nobody due to my soon to be ex husband. I was so weak and dizzy that on the way to the grocery store, my car went into a concrete wall that was on the road for construction. Got myself straightened out but cried all the way home. I can't wait to move!
I am reminded of my depression and anxiety, that came on about 6 years ago along with fatigue. My Lyme Literate nurse friend suggested testing for Lyme then but I had no insurance or money to cover it. I now also have problems with my memory, but I am sure, 6 yrs ago is when it first happened or appeared
.I got better but now it came out of the dormant stage due to stress, maybe of the mono I had in December or maybe from my divorce or because I also find out at the same time that I have genetic Hemachromatosis. Since the hematologist/oncologist tested for it genetically it probably isn't related to Lyme but I find the timing strange.
I still take my depression/anxiety medication since my friend told me too and until I move and see my LLMD. All I can say is this is really tough and worse when you are all alone in a place that I know nobody due to my soon to be ex husband. I was so weak and dizzy that on the way to the grocery store, my car went into a concrete wall that was on the road for construction. Got myself straightened out but cried all the way home. I can't wait to move!
The best (and only) thing to do, in my opinion, is to pursue treatment to kill the bacteria. Worrying is part of Lyme, too, but it is a part that we each learn to handle in our own ways. Sometimes the worry is overwhelming, but if I allow myself a half hour to worry, and then get up and go do something else, it helps.
Once treatment is underway, the worry will also recede. I remember being very depressed and anxious, but that is part of the illness, the physical illness.
It may help to speak with a therapist/psychologist for techniques in dealing with the worry. It's not all in your head -- it's a side effect of Lyme, and also a natural emotional and psychological reaction to having Lyme. You are not alone in this reaction: many if not most or all of us have this aspect.
Your doctor may be able to tell you what the likelihood is of permanent heart damage, and ask him/her about whether your life is at risk. It is a very reasonable question, and it deserves a serious answer.
Once you have the medical assessment, then you must decide whether to let the worry haunt you or to consciously set the worry to one side and carry on with life. It really is a conscious choice. Again, some discussion with a psychologist may be very helpful to you.
And remember, you are not alone in having this worry. It is part of the illness.
Once treatment is underway, the worry will also recede. I remember being very depressed and anxious, but that is part of the illness, the physical illness.
It may help to speak with a therapist/psychologist for techniques in dealing with the worry. It's not all in your head -- it's a side effect of Lyme, and also a natural emotional and psychological reaction to having Lyme. You are not alone in this reaction: many if not most or all of us have this aspect.
Your doctor may be able to tell you what the likelihood is of permanent heart damage, and ask him/her about whether your life is at risk. It is a very reasonable question, and it deserves a serious answer.
Once you have the medical assessment, then you must decide whether to let the worry haunt you or to consciously set the worry to one side and carry on with life. It really is a conscious choice. Again, some discussion with a psychologist may be very helpful to you.
And remember, you are not alone in having this worry. It is part of the illness.
I always strengthen my immune system, and i do have healthy lifestyle so i'm not desperate about lyme, i'm pretty sure it will be cured. What worries me most is possible heart condition, it may be permanent and in case of dilated cardiomyopathy (worst possible case), this lyme infection will ultimately prove to be fatal cause it (DCM) will give me only very short time to live...
Cause acute symptoms in 2006 started with signs of heart condition (weakness, pitting bilateral leg edema) i have a reason to worry.
Cause acute symptoms in 2006 started with signs of heart condition (weakness, pitting bilateral leg edema) i have a reason to worry.
There are also MANY MANY other treatments for LYME besides antibiotics.
My Lyme Literate MD (LLMD) told me yesterday that he thinks that ultimately
that abx will not be the cure. He believes that SAUNAS are extremely important
you have to raise your core body temp over 104 degress (many many times!!)
to KILL the spirochetes. Abx just kill SOME of them, and others HIDE. or turn
into cysts and then come out when you stop the drugs.
Please visit lymefriends.ning.com for more info. Google a lot.
Do not take lyme as a life sentence.
You also must be VERY careful of what you put in your body try to create an alkaline environment becasue lyme likes it ACID! EAt lots of vegetables. limit meat and sugars
and carbs. There are many good books and websites out there.
Watch the movie "Under our Skin" there is hope. There is also a big coverup.
They are not diagnosing lyme adequately (I was also infwcted in 2005 an not treated til 2009) it takes much longer to recover with delayed treatment. but it can be done!
Also many people do not know that lyme is a spirochete like syphillis and could be transmitted in simmilar ways. Your partners may also want to be tested.
You may want to get your CD57+ tested as well as C4a and C3a to check the status of your immune system.
Dont want to overhwlem you, but there is much to learn and knowledge is power.
-Best of health, Sea
My Lyme Literate MD (LLMD) told me yesterday that he thinks that ultimately
that abx will not be the cure. He believes that SAUNAS are extremely important
you have to raise your core body temp over 104 degress (many many times!!)
to KILL the spirochetes. Abx just kill SOME of them, and others HIDE. or turn
into cysts and then come out when you stop the drugs.
Please visit lymefriends.ning.com for more info. Google a lot.
Do not take lyme as a life sentence.
You also must be VERY careful of what you put in your body try to create an alkaline environment becasue lyme likes it ACID! EAt lots of vegetables. limit meat and sugars
and carbs. There are many good books and websites out there.
Watch the movie "Under our Skin" there is hope. There is also a big coverup.
They are not diagnosing lyme adequately (I was also infwcted in 2005 an not treated til 2009) it takes much longer to recover with delayed treatment. but it can be done!
Also many people do not know that lyme is a spirochete like syphillis and could be transmitted in simmilar ways. Your partners may also want to be tested.
You may want to get your CD57+ tested as well as C4a and C3a to check the status of your immune system.
Dont want to overhwlem you, but there is much to learn and knowledge is power.
-Best of health, Sea
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