feelin bad..

[skarey]

The last week or so has been rough.   Feeling horrible.  Along with my painful neck, shoulders, and tingling, I keep having those horrible attacks that leave me feeling spaced out and weak and shakey.  I don't know what they are.  They resemble "low blood sugar" attacks, but they aren't.  I've been having them a couple of times a day.  Freaks me out.  This morning I got up felt pretty good, but by mid morning I felt wiped out and so weak and shaky.  I also feel twitchy and my shoulder hurts and my right hand is tingly.  It's weird cause I almost feel really jittery like I've had 50 cokes and my nervous system feels like it's on overdrive or something.  Does that even make sense?  Jittery, but weak and tired.   I told my LLMD about it yesterday but he just said I need to eat more frequently and that lyme can mess with insulin?  I don't think this is it cause it happens so randomly whether I've just ate or not. There is so reasoning for it.

Does anyone else get this?  Do you know what it is?  I'm so sick of this... last night I just layed in bed and cried caues I feel like it is never ending and I'm scared.  I'm scared I'm going to get worse.  I'm scared it's not lyme, and I am treating the wrong thing.  I'm scared I'll never be "myself" again.  

I just don't get it.  The symptoms of lyme disease could really be anything.  They are so universal and vague.  I have two friends here both having health problems.  One has literally tons of the same symptoms as me...joint pain, weakness, fatigue, spine and back pain, brain fog, but she doesn't have tinging or numbness.  She was just diagnosed with Thyroid disorder and is feeling better.  My other friend has the back, neck, and shoulder pain, chest pain/pressure, brain fog, tingling, and foot drop.  She is being evaultated for MS.   I just don't get it.  Sometimes I'm worried about getting dx with something I don't have.   I hate to be pessimistic, but I've never heard of a LLMD seeing someone and NOT dx them with lyme.  With the HUGE list of symptoms, really anyone could be clinically diagnosed with lyme.  

I'm so sorry... it's just one of those days, that really make me wonder and worry.  

Thanks for listening as always.

[gorbybelle]

Just to add something - I have posted this before - but it has helped me through some nasty stuff - my LLMD - [part of his work is in the accident/emergency dept.] - said to me - some of your symptoms will feel strange and frightening - but remember they will not harm you - I guess he was refering to the 'nerve stuff' - pain/tingling/spasms etc;

I remember thinking at the time - 'yeah but it's not you who is having to deal with this stuff' - however his words stuck in my mind and they help me .

[skarey]

Thanks everyone:)

[Hope75]

I AM RIGHT WITH YA!  Feeling terrible lately.  Questioning my diagnosis, but still coming back to Lyme.  It is the only tests out of probably thousands I've had by now that is truly abnormal.  

Hang in there, it comes and goes, so just wait for the days that it goes!  I am trying to keep my chin up too, but its hard.  Cried in the shower.  Dang shower always makes me cry - you are alone, in the quiet with your thoughts and if I get it too hot, I feel like I have a high fever and weak, etc.  My husband keeps telling me that I have Lyme, period.  What else could it be he says.  

Just know you aren't alone, for what it's worth. :)

[Chatterbox58]

Hope you are feeling better, I experience the same symptoms as low sugar.  I'll be in stores and get real, real sweaty and take some sugar tablets thinking that's it.  I don't think it is though, my sugar blood work is fine a little high but ok. I have been on synthroid for a long time before my lyme, however not my thyroid is ok, I haven't been taking that med.  But I did experience very, very bad neck pain, a year ago, couldn't turn my head.  I thought I had a brain tumor and was I scared.  Went to a rheumi, everything came out fine, went through therapy...so far so good.  I have this feeling this sickness is a hit and miss thing.  I hate it so much!!!

[Chatterbox58]

Hope you are feeling better, I experience the same symptoms as low sugar.  I'll be in stores and get real, real sweaty and take some sugar tablets thinking that's it.  I don't think it is though, my sugar blood work is fine a little high but ok. I have been on synthroid for a long time before my lyme, however not my thyroid is ok, I haven't been taking that med.  But I did experience very, very bad neck pain, a year ago, couldn't turn my head.  I thought I had a brain tumor and was I scared.  Went to a rheumi, everything came out fine, went through therapy...so far so good.  I have this feeling this sickness is a hit and miss thing.  I hate it so much!!!

[margypops]

Yup I have all you said...I fight it every day...my biggest wish is that the Doctors get more training so they dont look at you as if you are nuts, the ones I have seen NO NOTHING I do my own research and tell them....

[skarey]

Thank you all for your kind words and encouragement.  This disease is horrible.    I'm thankful for people like you  who are here to listen and help.

[im_ticked_off]

don't you give up!!!!! my wife tells me this all the time you will over come this disease!!  we all will. there is a scripture in the bible that says"God will not give you more than you can handle" i believe this because i know he is with us all the time.plus sickness is not from god,because if it was, he sent his son to the cross for know reason. Jesus is our healer and i believe this with all me heart, but its up to us to receive it. it says in the bible"that by his stripes we are healed" that means we have it all ready we just have to receive it by faith.  we need to speak it out loud that we are healed, there is life and death in the tongue. i know its hard but god will not leave us its in his word.  sorry for preaching but god did not put us on this earth to be defeated by sickness, sickness is from satan all he wants to do is kill us. you will over come this!!!

[gorbybelle]

HI - I have the same 'worries' and 'fears' as you do - I reckon most 'lymies' have/had them too.

I still believe 'anxiety' has a lot to answer for - this whole lyme thing is soooooo wierd - like you said so many poss. symptoms - and with no definitive test!!

The one thing that keeps me on the 'lyme' trail - is the fact that my symptoms started following a 'high-risk' tick bite. Also just prior to the tick - I had been through a stressful - 3 months - so I guess health wise I was a bit 'run-down'.

I still wonder - often - if what I have is 'hormonal' - and the whole tick episode is a big coincidence - having said that - I do remember how very strange I felt during the first 18 months or so of this???  

These days I don't know if I have just learned to live with my symptoms or if I have improved from those early days - I do know I used to get a lot more 'anxious' - about my symptoms - which though natural - does make things worse.

I know this is of no help but just wanted to let you know you are not alone with your fears.

Gorbs.

[jkv44]

Morning,
I am so sorry you are going through this tough time. I have been there more times than I want to remember. I at times feel like am I ever going to get better? My life ***** I can't do anything. More new symptoms pop up just as others subside.

There are days I get up and feel ok and within an hour or so, feel so horrible that I want to crawl in bed. I've cried many times just being so sad like you say. I get weak, tired, and feel like fainting out of the blue.

You aren't being pessismistic it comes with the territory. I can't tell you how many times I'v questioned my lyme diagnosis as well. I don't agree that all LLMD diagnosis lyme. I've been to the doctors many times just to sit there for the support of being at the office. Many people have other issues that aren't lyme.

I'm going through a tough time with my shoulder and tingling in my hand and foot. It's very unerving to say the least.

I was sick for six months before the diagnosis and that was worse than having lyme becuause I didn't know what I had.

But listen I promise you will get better. It takes such a long time with set backs and new symptoms. :)

Regarding your friend and the thyroid. Mine was acting up and had it looked at about two months ago. The doctor wanted to put me on synthroid. I almost took it and my doctor said don't do it just yet. The lyme messes with the thyroid really badly. I had mine checked about a month ago after being on meds 8 weeks. Now, it's fine. So you see, lyme does mess with everything. I can't tell you how many scary symptoms I get and then they go away.

If you ever want to talk, I'm not sure where you live, send me a PM.

I will say a prayer for you. Janice