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Avatar universal

heat and lyme

Hi all
Yesterday my daughter was eating hot chips and said when she holds hot food it makes her hands tingle.
I was diagnosed with lyme and bart and can bring on the tingling in my hands and feet by having a hot shower, getting in to a hot car, or even by putting my hand over a hot plate on the stove or over the toaster.
I know this happens to those with ms, and yes its still at the back of my mind......
Does this happen to anyone else??
Can anyone else bring on the tingling in their hands at all by putting hand over a hot plate etc.
Its winter here atm and other day was warm and my feet are like a temperature gauge, as soon as its a bit warmer, that sets off my feet.
9 Responses
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1763947 tn?1334055319
What makes it strange is my nurse who comes in says I am freezing and my temp will be 97.2 but I feel like I am on fire. It comes and goes.
Helpful - 0
Avatar universal
More recently, I have developed temperature regulation problems. They are annoying, but minor.  I sometimes get too hot and sweaty for no reason.  It isn't a hot flash, because I warm up slowly. Usually it is my back that gets too sweaty. I know it is the Lyme and not hormones, because when I go to another room to cool down or feel a breeze, I get covered with goose bumps that last far longer than they should.   Sometimes I get goose bumps and feel a chill even when it's 85F.  Usually it is short lived. I almost have to laugh.. I would rather have this symptom than my nasty rib pain.

But it all makes me more appreciative of a well functioning nervous system, something I previously took for granted.
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1763947 tn?1334055319
It is embarrassing that I sweat so much from the babs like a fountain, dripping down my head onto my shirt. UGH!
Helpful - 0
428506 tn?1296557399
I had heat intolerance and am glad to say that it largely resolved with treatment!  It was very disturbing when it started as it is often associated with degenerative diseases like MS.  At this point sometimes heat seems to "wipe me out" more than it should (like I can feel sick and exhausted after a shower that I let run too hot and too long), but rarely do my paresthesias set off like nuts in response to a burst of hot air or water.

I just think it is great to note that such disturbing symptoms, if they are from Lyme and co-infections, can be reversed.
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1763947 tn?1334055319
It is very common. I live in Fl and 18 mos ago in TX with 110 degree summers and I could not breathe. I get the tingling too. I actually have neuropathy on my feet and toes and I am afraid it is coming to my hands.
Helpful - 0
Avatar universal
:D

When there is a little wind, it feels like I am holding a giant blow dryer to my face. My daughter complained that it felt like being in the oven at home.  My sympathies to all the heat sensitive Lyme, MS, and other sufferers who live in hot climates!
Helpful - 0
Avatar universal
Hon, if you *weren't* reacting with fatigue and shortness of breath in 111F, zero-humidity desert, I'd worry about you!  I lived in Arizona once, and it was like being barbecued to just step outside, never mind getting into a hot car!  Whoeeee!  Take care!
Helpful - 0
Avatar universal
My two longest and most persistent symptoms of Lyme + Bart have been fatigue and shortness of breath/air hunger.  I have also had heat sensitivity. After 6 months of abx, I am much better this summer than last, but as I am in Las Vegas visiting family, and it has been 111F (44C) here the last couple days, I realize my heat sensitivity isn't entirely gone. Over 100F (38C) I find that I almost immediately feel tired and my air hunger gets worse.  I can't take a full breath until I get into air conditoning and cool off.

I have had intermittent tingling at times, but it hasn't been heat related.

So, in my case, heat makes certain symptoms worse, and it does so almost immediately.  My Lyme + Bart mimiced MS to a certain degree, including the heat sensitivity.  

P.S. I got mine in Queensland.
Helpful - 0
Avatar universal
Welcome --

I just did a google search for

               lyme tingling hands

and got lots of hits.  So I'd say yes, it could indicate Lyme.  Others here might have personal experience of that particular symptom.
Helpful - 0
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