lymes desease joint pain

[dazza3]

ive been diagonosed with lymes and have had the line in my arm and been on tablets for five months and no improvement on the max amount of gabapentin now and nothing,the pain in my hips are getting worse and my knees are suffering aswell. i am struggling and can not do my normal job

[JackieCalifornia]

I am sorry to hear of your suffering -- I see you are in the UK.  I understand from others who have posted here in the past that the medical profession in the UK has a rather closed mind on the whole topic of Lyme, but there are groups of patients and patient advocates who have information on how to find an MD who can give you a second look.  

I just searched by google for "lyme disease UK" (without the quotes) and got several pages of promising leads, including the following (to keep from getting blocked, I've added in spaces and put [dot] in place of a period, so you'll have to rewrite these to put into your search bar, or just do the search yourself for 'lyme disease UK'.  

Best wishes to you -- let us know how you do.

www [dot] lymediseaseaction [dot] org [dot] uk / lyme [dot] htm

www [dot] wadhurst [dot] demon [dot] co [dot] uk / lyme

www [dot] patient [dot] co [dot] uk

www [dot] bada-uk [dot] org / homesection /about /diseases / tick-bornebacteria [dot] php

[Ness78]

Are you seeing a doctor that specializes in lyme? Is he/she open to trying something different?

[dazza3]

hi
i a cant remember what it was but i had to make it up twice a day and flush it threw the doccs at hospital have been great with me and cant thank them enough, im strugling with it
im taking ibuprofen 400mg and co-codamol 500 mg for the pain
im getting numbness in the left limbs and shaking uncontrolably my hips are killing me and the lekft knee is getting worse
just want the pain to go away

[dazza3]

Hi there
sorry to hear that, gabapentin doesnt work ive been taking it for two months now and was on diclofenic think thats how you spell it.
Do you suffer with spasms in your limbs
I have a constant numbnus in my left leg and arm and finding it difficult to walk with the pain in my hips as well,
take care

[ree427]

Gabapentin doesn't work for me either. I wish I had some suggestions for you, but I am in the same boat.

[JackieCalifornia]

So your docs have diagnosed you with Lyme, and are treating you with gabapentin and also some other meds intravenously (IV) through the tube in your veins?  

What medications are they giving you through the IV?  And are you taking any other meds?

[dazza3]

Hello
They have not said anything else , they say that ive had the gold treatment with the line in my arm and taking the different tablets

[dazza3]

the doc just says how long is a peice of string, im a chef and not been able to work in the kitchen since the start of april my left leg and arm are numb and i strugle with daily life . Im just told that to keep on taking gabapentin im on 3600 mg a day and its doing nothing

[ewford]

You being treated for any coinfection or Mycoplasma?

[JackieCalifornia]

Sorry to hear about your situation -- what does your doc say?