Aa
I wanted more Rocephin IV! :)
I am in fourth week of Rcephin IV. I wanted more of it ! Just as much as I wanted my hand on baby seamonster loch ness in Tap Fish 2' s Pirate event! (mobile game app)-that is where I was after I posted a comment to "i have to eat crow".
There are improvements in some of symptoms, few huge, some moderate, some other just a little bit. I can feel something is changing-neurological, joints, skin & sinus.
The nurse from home infusion service says she'll talk with my doctor but I spoke with my doctor's coordinator yesterday.
Nope sorry--they have to pull the line after I finish IV this coming Friday. Then brain MRI one week afterward, and follow up with neurologist mid July.
I am nervous about not being able to get another round later this summer. I am afraid I have to literally get down on my knee and begging my neurologist.
I have not had a follow up with LLMD yet. LLMD's rx of doxcycline 400mg daily-I am afraid it won't do too much, I meant I was on doxycycline 200mg, there isn't too much marked improvement as I am seeing with Rocephin IV.
My dermatalogist is very skeptical about 400mg would have any effects for my skin especially how she is very impressed with what Rocephin did for my skin.
Both my sinus and skin, while not improved 100%, they hasn't been this good in a long time! I am talking since late 90's. I am still looking up the information on cephalosporins class to see whtat make it different, and what oral versions I could beg from regular doctors, and what non-lyme "pretext" to use it for.
*sigh* I wanted more! I am sad I'll finish Rocephin this coming friday as I do not feel I am on it long enough, and I can tell I am not out of the woods yet. I am afraid once I am off Rocephin, the improvements will be undone.
There are improvements in some of symptoms, few huge, some moderate, some other just a little bit. I can feel something is changing-neurological, joints, skin & sinus.
The nurse from home infusion service says she'll talk with my doctor but I spoke with my doctor's coordinator yesterday.
Nope sorry--they have to pull the line after I finish IV this coming Friday. Then brain MRI one week afterward, and follow up with neurologist mid July.
I am nervous about not being able to get another round later this summer. I am afraid I have to literally get down on my knee and begging my neurologist.
I have not had a follow up with LLMD yet. LLMD's rx of doxcycline 400mg daily-I am afraid it won't do too much, I meant I was on doxycycline 200mg, there isn't too much marked improvement as I am seeing with Rocephin IV.
My dermatalogist is very skeptical about 400mg would have any effects for my skin especially how she is very impressed with what Rocephin did for my skin.
Both my sinus and skin, while not improved 100%, they hasn't been this good in a long time! I am talking since late 90's. I am still looking up the information on cephalosporins class to see whtat make it different, and what oral versions I could beg from regular doctors, and what non-lyme "pretext" to use it for.
*sigh* I wanted more! I am sad I'll finish Rocephin this coming friday as I do not feel I am on it long enough, and I can tell I am not out of the woods yet. I am afraid once I am off Rocephin, the improvements will be undone.
Thanks. I know sign language can be fascinating at a times. It disappoints me sometimes a person do not want to take a time to communicate on paper.
Ask your friend to teach you some! :) Song in sign language is even more beautiful than regular conversational in sign language, but harder to learn.
Pure ASL (ASL stands for american sign language, for those who may not know what it stands for) storytelling is even harder. I couldn't do it myself but I can understand when "listen" to it with my eyes.. It is akin for non-deaf person to be able to singing like a professional musical vocalist.
Okay back to lyme subject..see my new post.
Ask your friend to teach you some! :) Song in sign language is even more beautiful than regular conversational in sign language, but harder to learn.
Pure ASL (ASL stands for american sign language, for those who may not know what it stands for) storytelling is even harder. I couldn't do it myself but I can understand when "listen" to it with my eyes.. It is akin for non-deaf person to be able to singing like a professional musical vocalist.
Okay back to lyme subject..see my new post.
Dolfnlvr - Well said!
Lily - I agree with you that your current doc is questionable. it is odd that he wants to wait until later to test for coinfections. It could be that he wants to see what symptoms you still have after initial treatment for Lyme.
L forms and cysts are NOT harmless. That is how the bacteria hide from antibiotics and the immune system, only to reemerge later and make you sick again. And doxy has been shown to encourage the spirochetes to form cysts. If he is willing to continue your treatment with orals and your insurance will cover it, ask him about Biaxin and Plaquenil. This combo is considered one of the best for treating intracellular infections. (Lyme usually goes intracellular when you have had it for a long time.)
Keep fighting for yourself! ;)
Lily - I agree with you that your current doc is questionable. it is odd that he wants to wait until later to test for coinfections. It could be that he wants to see what symptoms you still have after initial treatment for Lyme.
L forms and cysts are NOT harmless. That is how the bacteria hide from antibiotics and the immune system, only to reemerge later and make you sick again. And doxy has been shown to encourage the spirochetes to form cysts. If he is willing to continue your treatment with orals and your insurance will cover it, ask him about Biaxin and Plaquenil. This combo is considered one of the best for treating intracellular infections. (Lyme usually goes intracellular when you have had it for a long time.)
Keep fighting for yourself! ;)
Hey--consider the idea of calling a "far away" LLMD for a telephone appointment. Although, that said, I believe you said you are hearing impaired, so that complicates things a bit.
Do you have a trusted translator that you would be willing to share the "appointment" information with? If so, you could fax the information to another LLMD, set up a telephone appointment and you could speak to the doctor, asking questions etc. through your translator.
The thing is this--doxy is often the "first course" for doctors. My LLMD gave me doxy first--while waiting for test results--just to see what happened. I got sick to my stomach, so she switched me to amoxicillin with probenecid which took my blood levels of antibiotic up to IV levels.
Hey--what if doxy made you "sick to your stomach" and you couldn't tolerate it? I mean, the LLMD would have to go another route, no? I'm just saying--a LOT of people can't tolerate high doses of doxy, and no doctor can really tell who might react how--so.......
That's probably not very kosher to offer as a suggestion, but there it is anyway.
Also, you are not worthless. And non-deaf people don't think you are worthless. Most non-deaf people probably see you signing and are fascinated by you and your method of speech--so they watch, which looks like staring--but it is really more about how neat it looks to them, not how "weird."
My best friend is a deaf/hard of hearing specialist and translator. I LOVE to chat with her because she can't help but sign half of the time when she talks :-). It is SOOOOO cool to watch her hands move so fast, and so fluently, I find myself not "listening" to her half the time because I'm so fascinated by her hands. And trust me, I'm not predjudiced--my dad is 85% deaf, and I've had debilitating infections rendering me clinically deaf for upwards of two weeks at a time as a teenager.
You are different--not worthless, and if someone has told you that you are--they are the worthless ones. Not on the lyme subject, but needed to be said. You kick butt girl--now--go get yourself well!!! We are in your corner!!!
Do you have a trusted translator that you would be willing to share the "appointment" information with? If so, you could fax the information to another LLMD, set up a telephone appointment and you could speak to the doctor, asking questions etc. through your translator.
The thing is this--doxy is often the "first course" for doctors. My LLMD gave me doxy first--while waiting for test results--just to see what happened. I got sick to my stomach, so she switched me to amoxicillin with probenecid which took my blood levels of antibiotic up to IV levels.
Hey--what if doxy made you "sick to your stomach" and you couldn't tolerate it? I mean, the LLMD would have to go another route, no? I'm just saying--a LOT of people can't tolerate high doses of doxy, and no doctor can really tell who might react how--so.......
That's probably not very kosher to offer as a suggestion, but there it is anyway.
Also, you are not worthless. And non-deaf people don't think you are worthless. Most non-deaf people probably see you signing and are fascinated by you and your method of speech--so they watch, which looks like staring--but it is really more about how neat it looks to them, not how "weird."
My best friend is a deaf/hard of hearing specialist and translator. I LOVE to chat with her because she can't help but sign half of the time when she talks :-). It is SOOOOO cool to watch her hands move so fast, and so fluently, I find myself not "listening" to her half the time because I'm so fascinated by her hands. And trust me, I'm not predjudiced--my dad is 85% deaf, and I've had debilitating infections rendering me clinically deaf for upwards of two weeks at a time as a teenager.
You are different--not worthless, and if someone has told you that you are--they are the worthless ones. Not on the lyme subject, but needed to be said. You kick butt girl--now--go get yourself well!!! We are in your corner!!!
I am so sorry about your struggle. But I am so glad that you're feeling better!
I can't imagine how frustrating this must be for you. Have you tried any of the Lyme advocacy groups in your area? There are multiple foundations in the NY area, and perhaps they have some kind of assistance program or volunteers that could help. Is transportation the biggest problem? Do you drive? Could you rent a car on appointment days? Are there any foundations for the deaf that might offer financial assistance for medical care that you could use to defray transportation costs? Sorry if I am peppering you with questions....I am just trying to think of ideas that might help.
I can't imagine how frustrating this must be for you. Have you tried any of the Lyme advocacy groups in your area? There are multiple foundations in the NY area, and perhaps they have some kind of assistance program or volunteers that could help. Is transportation the biggest problem? Do you drive? Could you rent a car on appointment days? Are there any foundations for the deaf that might offer financial assistance for medical care that you could use to defray transportation costs? Sorry if I am peppering you with questions....I am just trying to think of ideas that might help.
I know I have the choice, my dilemma is other LLMDs are far away. I don't have support or means for travelling far, especially when it is more than 2 hours away.
It is very stressful, and emotionally draining try to get someone to help me in the way I need. I don't know what to do.
It is very stressful, and emotionally draining try to get someone to help me in the way I need. I don't know what to do.
Not all LLMDs are created equal. Meaning: they don't all practice the same, and the whole area of Lyme and its co-infections is in a massive swirling mess of people still trying to figure it all out.
I have read other people's posts here where they saw what seemed to be an LLMD and it turned out to be a doc who just prescribed doxy and didn't test for co-infections. Well, that's the old fashioned approach to diagnosing and treating Lyme+, no matter what the doc calls him/herself.
You have a choice to continue with the current plan and current doc, or do something different. It's up to you.
I have read other people's posts here where they saw what seemed to be an LLMD and it turned out to be a doc who just prescribed doxy and didn't test for co-infections. Well, that's the old fashioned approach to diagnosing and treating Lyme+, no matter what the doc calls him/herself.
You have a choice to continue with the current plan and current doc, or do something different. It's up to you.
LLMD is the one who ordered Igenex test, and he also saw Stony Brook western blot test results that were ordered by my neurologist.
He do felt I have lyme diseases. What I am upset about is his choice of doxycycline 400mg after knowing I was on doxycycline 200mg for 7 month then again 2 month by my dermatalogist. His remarks about L-form and cyst form, and the fact he doesn't want testing for co-infections until later date also upsets me.
The Quest/Stony Brook western blot test also mention nonspecific bands being detected, but didn't list them in the report. I wanted the list of those nonspeciic bands detected so I can see in additional to lyme, what else I am infected with. I have a hard time get Quest/Stony Brook to print new report, listing all nonspecific bands detected. The lab says I have to ask my neurologist to ask them to print the report with all nonspecific bands detected listed.
He do felt I have lyme diseases. What I am upset about is his choice of doxycycline 400mg after knowing I was on doxycycline 200mg for 7 month then again 2 month by my dermatalogist. His remarks about L-form and cyst form, and the fact he doesn't want testing for co-infections until later date also upsets me.
The Quest/Stony Brook western blot test also mention nonspecific bands being detected, but didn't list them in the report. I wanted the list of those nonspeciic bands detected so I can see in additional to lyme, what else I am infected with. I have a hard time get Quest/Stony Brook to print new report, listing all nonspecific bands detected. The lab says I have to ask my neurologist to ask them to print the report with all nonspecific bands detected listed.
In your situation, with the data you have now both from the tests on the docs' reaction to the test results, I would find a Lyme specialist.
Of concern is that you tested positive for Band 18: from what I read in various places, a Lyme doc would interpret that as a slamdunk Lyme diagnosis because that band is specific to Lyme, meaning nothing else would light that band up on the test.
Why do your docs not read it that way? Because the standards for diagnosing Lyme were set very very high for epidemiology purposes, that is, to track the spread of Lyme across the country, NOT to diagnose patients. For epidemiology [like 'epidemic'] purposes, it makes sense to be sure they are looking ONLY at absolutely certain infections to be sure the data are reliable and pure -- like needing to be sure someone with just the sniffles isn't included when counting those who have the more serious 'swine flu.'
Problem is that docs like yours seem to be skipped over that limitation and are applying epidemiological tracking standards to diagnosis. Not so nice.
==================================
Here is a link to a website explaining in detail how to get your docs to hand over your test results. There may be exceptions, but it's worth trying:
http://patients.about.com/od/yourmedicalrecords/a/getmedrecords.htm
==================================
My theory is: I paid for the tests, I gave the blood: the results are mine. If my insurance paid for the tests, I paid the insurance company: the results are mine.
I would guess from the resistance you are getting that you will not get any action from the docs on treating you, so the sooner you get to a Lyme-aware doc, the better.
And another point ... even if your results are not that strong (tho that one band should theoretically be enough proof), it may be because after you've been infected a while, your immune system packs it in and stops making antibodies on the otherwise reasonable approach that the invading bacteria must be dead by now ... but our immune systems are not clued in to the tricks that Lyme has, such as hiding in slimy biofilms where the immune system can't see them, and having a looong reproductive cycle that allows the bacteria to resist being killed, because it is when the cell wall is disrupted through reproduction that bacteria are most susceptible to the drugs. (I think of it like whether I'm more likely to be robbed when I'm sitting in my living room or while I'm walking to my car across a dark parking lot: the less time I spend in dark parking lots, the safer I am. Same for Lyme bacteria.)
Don't give up. You paid for the tests, they're yours. At least in my mind. :) Then to find a Lyme doc. Hang in there.
Of concern is that you tested positive for Band 18: from what I read in various places, a Lyme doc would interpret that as a slamdunk Lyme diagnosis because that band is specific to Lyme, meaning nothing else would light that band up on the test.
Why do your docs not read it that way? Because the standards for diagnosing Lyme were set very very high for epidemiology purposes, that is, to track the spread of Lyme across the country, NOT to diagnose patients. For epidemiology [like 'epidemic'] purposes, it makes sense to be sure they are looking ONLY at absolutely certain infections to be sure the data are reliable and pure -- like needing to be sure someone with just the sniffles isn't included when counting those who have the more serious 'swine flu.'
Problem is that docs like yours seem to be skipped over that limitation and are applying epidemiological tracking standards to diagnosis. Not so nice.
==================================
Here is a link to a website explaining in detail how to get your docs to hand over your test results. There may be exceptions, but it's worth trying:
http://patients.about.com/od/yourmedicalrecords/a/getmedrecords.htm
==================================
My theory is: I paid for the tests, I gave the blood: the results are mine. If my insurance paid for the tests, I paid the insurance company: the results are mine.
I would guess from the resistance you are getting that you will not get any action from the docs on treating you, so the sooner you get to a Lyme-aware doc, the better.
And another point ... even if your results are not that strong (tho that one band should theoretically be enough proof), it may be because after you've been infected a while, your immune system packs it in and stops making antibodies on the otherwise reasonable approach that the invading bacteria must be dead by now ... but our immune systems are not clued in to the tricks that Lyme has, such as hiding in slimy biofilms where the immune system can't see them, and having a looong reproductive cycle that allows the bacteria to resist being killed, because it is when the cell wall is disrupted through reproduction that bacteria are most susceptible to the drugs. (I think of it like whether I'm more likely to be robbed when I'm sitting in my living room or while I'm walking to my car across a dark parking lot: the less time I spend in dark parking lots, the safer I am. Same for Lyme bacteria.)
Don't give up. You paid for the tests, they're yours. At least in my mind. :) Then to find a Lyme doc. Hang in there.
Right now I am pondering asking either my dermatalogist or/and my GYN/OB to call the lab and request for list of nonspecific bands detected. I dont know if they can do it, as it is not part of their expertise areas?
I am not saying I don't have Lyme, it is clear I am infected with spiorchete of some kind, and plus whatever else I am sick with. Lyme is a possibility-I have band 18-some says it is very specific to lyme. Nonspecific bands also show I am also sick with something else.
My dermatalogist concurred with me for a while that I am having systemic infections going on, and what Rocephin IV did for me proves it.
As for seeking another LLMD, I've thought about it--especially after what he says about L-form or cyst form--"harmless, it takes a perfect storm to reactivate them". I wondered what constitute a perfect storm? a pregnancy? I wanted to have my own children.
the problem is others are so far, I cannot drive that far, and they are out of insurance network. The main problem is getting my dad or brother to help with driving. My Dad feels I should accept whatever doctors is saying.
My psychologist, the very same one who thinks I should push myself through fatigue, wanted me to stay with LLMD I am see, and give him chance, listens to doctors, not fighting.
She thought 400mg doxycycline is good plan-"better than nothing" attitude, and wanted me to adopt that attitude instead of fighting for faster results.
Yet, she gave herself azithromycin, not standard regimen of doxycycline for very recent tick bite. I guess she is fortunately to be psychologist, with Phd, a former RN, and a plus with pharmcist for a husband, and neurologist for a friend, owning business, and being mother to two highly achieved boys--all of that may make it easier for doctors to take her seriously, and works with her--including give her abx she thinks she need.
Me--i am deaf, unemployed, never truly lives on my own or had a regular full time job, in my mid 30s, never had serious romance relationship, and have poor relationship with relatives.
So, I am broken good to begin with, unworthy to help at high speed, and who cares if it takes a long time for me to feel better--"hey, she dont have anyone to cares for, she lives at home with her dad, who wanted to date and marry disabled person, have children with, let alone someone with chronic ailments." That's my feeling how doctors may view me. I feel that way because of how my relatives treats me, how non-deaf people treats me.They were very prejudiced, as I am incapable of being truly, totally independent.
I am not saying I don't have Lyme, it is clear I am infected with spiorchete of some kind, and plus whatever else I am sick with. Lyme is a possibility-I have band 18-some says it is very specific to lyme. Nonspecific bands also show I am also sick with something else.
My dermatalogist concurred with me for a while that I am having systemic infections going on, and what Rocephin IV did for me proves it.
As for seeking another LLMD, I've thought about it--especially after what he says about L-form or cyst form--"harmless, it takes a perfect storm to reactivate them". I wondered what constitute a perfect storm? a pregnancy? I wanted to have my own children.
the problem is others are so far, I cannot drive that far, and they are out of insurance network. The main problem is getting my dad or brother to help with driving. My Dad feels I should accept whatever doctors is saying.
My psychologist, the very same one who thinks I should push myself through fatigue, wanted me to stay with LLMD I am see, and give him chance, listens to doctors, not fighting.
She thought 400mg doxycycline is good plan-"better than nothing" attitude, and wanted me to adopt that attitude instead of fighting for faster results.
Yet, she gave herself azithromycin, not standard regimen of doxycycline for very recent tick bite. I guess she is fortunately to be psychologist, with Phd, a former RN, and a plus with pharmcist for a husband, and neurologist for a friend, owning business, and being mother to two highly achieved boys--all of that may make it easier for doctors to take her seriously, and works with her--including give her abx she thinks she need.
Me--i am deaf, unemployed, never truly lives on my own or had a regular full time job, in my mid 30s, never had serious romance relationship, and have poor relationship with relatives.
So, I am broken good to begin with, unworthy to help at high speed, and who cares if it takes a long time for me to feel better--"hey, she dont have anyone to cares for, she lives at home with her dad, who wanted to date and marry disabled person, have children with, let alone someone with chronic ailments." That's my feeling how doctors may view me. I feel that way because of how my relatives treats me, how non-deaf people treats me.They were very prejudiced, as I am incapable of being truly, totally independent.
I agree with you everything is relevant. Any thought about seeking another doc?
I am just so over fighting with doctors who tell me " Lyme is a label they give you when they don't know what is wrong with you, you don't want that label" it is funny because I got the same basic talk from a doctor years ago when labeled with Fibromyalgia before anyone really knew about that illness. It was a label for people that they didn't know what was going on with.
I drove doctors crazy because my blood work was always abnormal, so they couldn't tell me it was in my head yet I went through über painful tests to prove I didn't have Lyme. It didnt work. I guess I don't think you should have to argue or not be sure of something because of a doctors beliefs that are probably wrong.
I am just so over fighting with doctors who tell me " Lyme is a label they give you when they don't know what is wrong with you, you don't want that label" it is funny because I got the same basic talk from a doctor years ago when labeled with Fibromyalgia before anyone really knew about that illness. It was a label for people that they didn't know what was going on with.
I drove doctors crazy because my blood work was always abnormal, so they couldn't tell me it was in my head yet I went through über painful tests to prove I didn't have Lyme. It didnt work. I guess I don't think you should have to argue or not be sure of something because of a doctors beliefs that are probably wrong.
Any herxing I have with doxycycline--it is not so obvious as herxing on Rocephin. Rocephin, i had classical herxing reaction. Very pronounced and intense first several days, for few hours at the same time everday before subdued. Over the time, they become less intense, while cumulative some of symptoms improves.
There is nothing like this with doxycycline--it is more drawing out, not punctate, and then I'd hit deadend with no huge marked improvement in symptoms.
My LLMD did not test for co-infections, he incidates he would follow the results of test my infectious diseases specialist ordered, then at later date he may order test for other co-infections than bart and babesia. Bart and babesia--both are negative.
I saw LLMD did check for EBV and such. I only got summary report, they were negative. I do not have hard copy of result in my hand yet.
Igenex test for lyme ordered by LLMD also came back. It is Igenex "negative", with positive and indetermine for band 41, and nothng else. Has it gone into hiding, or duped my immune system, after drawn out herxing/flare up in April while on doxycycline.
Symptoms was flat, not worse nor better by start of June, and I had blood draw during first week of June, a few days before I started Rocephin. Will my results be different now since I went through course of Rocephin IV? I wondered.
My Quest/Stony Brook western blot back in April show postive for band 41, and 18, both IgM and IgG, and plus non-specific bands were also detected. I really wanted to see what these non-specific bands were--it may give clue to what else I am infected with.
The lab refused to give me the list of nonspecific bands detected, saying I have to go through my doctor who ordered it. My neurologist refused to ask lab for it saying they are irrelavant. ID specialist concurred. I disagreed.
If it weren't relevant, then why did Quest/Stony Brook spelled out in all capital NONSPECIFIC BANDS WERE ALSO DETECTED--if not to advise doctor there may be more than one thing going on. *Sigh*.
There is nothing like this with doxycycline--it is more drawing out, not punctate, and then I'd hit deadend with no huge marked improvement in symptoms.
My LLMD did not test for co-infections, he incidates he would follow the results of test my infectious diseases specialist ordered, then at later date he may order test for other co-infections than bart and babesia. Bart and babesia--both are negative.
I saw LLMD did check for EBV and such. I only got summary report, they were negative. I do not have hard copy of result in my hand yet.
Igenex test for lyme ordered by LLMD also came back. It is Igenex "negative", with positive and indetermine for band 41, and nothng else. Has it gone into hiding, or duped my immune system, after drawn out herxing/flare up in April while on doxycycline.
Symptoms was flat, not worse nor better by start of June, and I had blood draw during first week of June, a few days before I started Rocephin. Will my results be different now since I went through course of Rocephin IV? I wondered.
My Quest/Stony Brook western blot back in April show postive for band 41, and 18, both IgM and IgG, and plus non-specific bands were also detected. I really wanted to see what these non-specific bands were--it may give clue to what else I am infected with.
The lab refused to give me the list of nonspecific bands detected, saying I have to go through my doctor who ordered it. My neurologist refused to ask lab for it saying they are irrelavant. ID specialist concurred. I disagreed.
If it weren't relevant, then why did Quest/Stony Brook spelled out in all capital NONSPECIFIC BANDS WERE ALSO DETECTED--if not to advise doctor there may be more than one thing going on. *Sigh*.
Yes, i know doxycycline is choice for early stage of lyme. I don't know why it doesn't matter to my LLMD that I am late stage. I actually wanted to try azithromycin for change, or cephalosporins-type oral.
Doxy was never hard on my stomach. I could take it without food. Rocephin is different story, it got harder on my stomach and digestive during second week, but with tips from various visiting nurses-I have figured out how to solves it 90%.
Maybe I should lies to LLMD, telling him, it has become rough on my stomach.
Yes, how much I feel better is why I wanted more of it! I don't know what oral abx will have the same benefits , perhaps even more effective at this point.
Doxy was never hard on my stomach. I could take it without food. Rocephin is different story, it got harder on my stomach and digestive during second week, but with tips from various visiting nurses-I have figured out how to solves it 90%.
Maybe I should lies to LLMD, telling him, it has become rough on my stomach.
Yes, how much I feel better is why I wanted more of it! I don't know what oral abx will have the same benefits , perhaps even more effective at this point.
I was never on IV either because I have bad enough herxing with oral meds. The other reason was that I have more control of how I feel with oral meds.
My question is do you know what your co-infection is? My doc switched my doxy to levaquin but just recently added doxy back along with the levaquin to kill the Bart's and Lyme .
My question is do you know what your co-infection is? My doc switched my doxy to levaquin but just recently added doxy back along with the levaquin to kill the Bart's and Lyme .
This is very good news, because it means your infection(s) are responsive to treatment.
I think someone posted back to you a week or so ago about doxy being the original, usually short course treatment for Lyme ... my LLMD never mentioned it at all.... My impression is that it's not top of the list for long time infections. So I think I follow what you're thinking ...
I was never on IV at all, and my doc is/was a hardcore ILADS MD. Maybe you could do without it if the docs will switch you to oral meds but something more ... current than doxy? I read that doxy is hard on the stomach anyway, while other abx aren't so much, so that's another reason to keep chipping away at the docs.
You hang in there, and memorize how much better you feel, so that you remember that you CAN and WILL continue to heal!
I think someone posted back to you a week or so ago about doxy being the original, usually short course treatment for Lyme ... my LLMD never mentioned it at all.... My impression is that it's not top of the list for long time infections. So I think I follow what you're thinking ...
I was never on IV at all, and my doc is/was a hardcore ILADS MD. Maybe you could do without it if the docs will switch you to oral meds but something more ... current than doxy? I read that doxy is hard on the stomach anyway, while other abx aren't so much, so that's another reason to keep chipping away at the docs.
You hang in there, and memorize how much better you feel, so that you remember that you CAN and WILL continue to heal!
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