Karen,
I did 500mg twice a day when I could handle it. It's tough and can cause neurapathy if you don't watch it.
I round for me was five days on and two days. Sometimes couldn't do even the five days.
Tini knocks your socks off. JKV
Hello, Our LLMD wants my 17yo daughter to take 500 mg tindamax 2x/day for at least 30 days. I am worried about the herx. Would you mind sharing what dosage you were on and how long? You said you herxed pretty bad the first 2 '"rounds" so I wonder what a round means. Thanks! - Karen
Hi,
thanks for the insight. I herxed really bad the first two rounds of tindi. The last few were ok and only felt a slight herx. Which I understand is a good thing.
I'm just frustrated with all that goes along with getting well.
I'm now going to try cholestryamine for the neurotoxins plus a vitamin C detox.
Have you ever tried any detox? JKV
I had neuropathy before Tindamax, and often when I herx my neuro symptoms worsen, so for me that's a chicken/egg situation. On my last neuro exam (August), I have loss of sensation in a stocking/glove pattern (feet/hands, worse at tips and gets better going up). This doesn't shock me since I had constant tingling and burning for around 8-12 months before my diagnosis.
I pulse Tindamax, on a less frequent schedule than my LLMD originally suggested, since it really knocks me out. At my last appt, I was told to stop it all together for now but might try another short pulse soon because I really want to get through treatment. (I'm at about 14 months on abx...)
I would suggest (of course check with your doc) that if the neuropathy gets bad, lower your dose. When I do take Tindamax, I take 1/4 of the originally rx'ed dose. And I still Herx.