relapse???

[jkv44]

Hi all,
just a question that needs answering. Been on a coctail of meds since July. I have made a lot of progress. however in the last week feel like I'm relapsiing.

I'm only one med which is omnicef. Have been on many other combos.

Currently just experieincing the return of old things like tingling, in feet, hands. Now remember have been on tinidmax which can cause this over a period of time.

Any suggestions? JKV

[JackieCalifornia]

Clindamycin is (acc. to wiki) used against Babesiosis, which is sometimes carried by the same ticks that bring Lyme.

You may be Herxing; have you called your MD to report the reaction?  

[frustratedinsk]

i'm a multi-yr lyme brain patient and what to know, Has anyone treated intervenously with clindamycin?  i'm on my 8th week and i'm not sure if i'm having a flare up or herxing?  i'm a wreck and the stress i know is not helping!

frustratedinsk

[jkv44]

Hey thanks.

I wish I knew some local lyme patients. Sadly, I don't.

I know who you see in MD. Can you send me a pm to let me know who you saw regarding the second opinion?

Look forward to hearing from you. JKV

[wonko]

Well, if you are Herxing, than you are treating enough.

I know for me it seems that at first I had such a high bacterial load that I was really sensitive to treatment.  I went through stretches of several months at a time of feeling consistently feeling awful (bed ridden for days at a time, unable to think/work, generally miserable).  It was worse than before treatment.  Now, I finally seem to be getting enough ahead in that I can treat and tolerate it.  Bad days still happen, but seem to be less and less severe.  I recently had some of my best health days in 2 years.

As for a 2nd opinion, I did the same.  After about 7 months I sought the opinion of a second LLMD, because I was concerned that things were moving too slow.  The 2nd LLMD did not offer a radically different course of action, and I disliked the personality, so I ended up staying with the original.  But I felt better having considered the option.  Of course, I had to drop a lot of money as the initial appt. is always the most costly.  

If you do seek a 2nd, try to network with local Lyme patients to get feedback on your best bet.

[jkv44]

Wonko,
you have a great attitude about the lyme.

Perhaps I'm not being treated with enough meds to make more progress? Maybe my stagnating status means the meds need to be changed. I do have an appt on Thursday and will discuss my concerns with the tindimax.

I'm considering a second opinion just to see if I'm getting treated properly.

[wonko]

If you are still in treatment, I wouldn't consider it a relapse.  

But I know what you mean, I went through (and probably will continue to do so) a lot of ups and downs during treatment.  It is really tough to distinguish between flaring symptoms, Herxes, and side effects.  Only with time does it become easier to see if treatment is effective.

If you're worried that the Tindimax is causing neuropathy, do bring that up with your doctor.  For me, tingling buzzing and a host of other parthesthesias come along with my Lyme & Co.