Losing sensation all over my body

[themcjayster]

Hi, I'll try and keep this as short as possible. But basically looking for some other opinions here. Over the past 3 weeks I've experienced some crazy symptoms. It all started with what I thought was a rash on my penis after masturbating. What I've now found out is an allergic reaction and I've been diagnosed with an extremely rare disease called POIS. I also have Hashimoto's disease and over the past 3 weeks have been getting progressive numbness all across my body. (teeth, tongue, gums, neck, arms, legs, fingers, and bottom of feet.) Everything is bilateral and equal on both sides and they all showed up simultaneously. My skin also feels extremely dry, and like my muscle is wasting away. Although I haven't lost any weight which is weird.

Also found out that my Testosterone is is 231 which is extremely low for my age (30), and also that I have a slipped disc in my c5-c6 cervical area.

My doctors have said the slipped disc wouldn't cause the widespread numbness. My question is could my low testosterone be causing the widespread numbness? My muscles and everything seem to be weakening which is scary. Just curious on what other people thought.

I've had MRI's of my whole spine and brain and my neurologist said I don't have MS or any nerve damaging diseases, so I'm at a bit of a loss. My rheumatologist also suggested I may have caught covid, but I doubt it. What do you think?

[Fullbodynumbnesspatient]

I have full body numbness! Its been 2 years with no answers many procedures and tests done. I also had that same experience with lidocaine at the ENT my throat went numb and never changed a couple months later my whole body is numb. I think we are dealing with the same thing. I have no idea what to do or who to see at this point. We have to be our own doctors

[themcjayster]

Did you really experience that same thing?? That is crazy! Yeah no doctors can explain this and I called them and they made me sound like I'm crazy.

[GuitarRox]

This is an interesting question. Your testosterone level is low but not scarily so. But still a bit lower than probably it should be. Are they gong to treat this? There does appear to be a link between low testosterone and neuropathy. I would think the slipped disk does play a role of some sort though. A pinched nerve can cause this type of issue. I think I'd try to work on the testosterone number to see if it improves it. Your neurologist is not giving you ideas?

[themcjayster]

Thanks for the quick response. And they basically have thrown me off to PT at this point. Thinking of going to another neurologist for a second opinion. They performed an EMG also and never mentioned anything about my nerves having any issues. Which I assume they would have told me. My rheumatologist is running a bunch of tests also, so just trying to go down every avenue right now.

[themcjayster]

And forgot to answer your question, but yes they are going to be treating my testosterone with a shot to the belly and oral medications as well. I'm hoping this will resolve some of the muscle issues and numbness.