Acthar Gel???

[cuttersmom]

Hi all-I haven't been around this forum in a long time (I guess the longer I avoided things about MS, the less I would have MS??)

Anyway, I have been on Copaxone for about a year and a half.  For the last couple of months, I've been having issues with BM's (only go once or twice a week) and also problems with my legs. If I've been on my feet all day at work, my legs and feet will cramp all night. Also, I can't do a lot of walking without my legs (especially the right one) turning to jelly. My husband and I try to walk around our community each night which is only 0.7 miles and by the end he is practically carrying me.

The neuro said she thinks that maybe I am in a relapse.  Rather that putting me on IV Solumedrol, which would require me to walk around with an IV lock in my arm for a week, she wants to try Acthar Gel for 7 days, which she has seen good results with.

Has anyone tried this? I am not looking forward to IM injections of a gel, but if it works what the heck!

[cuttersmom]

Thanks Wobbly
I have checked other MS boards and found a number of people who have used it, and there have been no negative responses. In fact, symptoms have cleared in as little as 2 days.  Therefore, I am surprised that no one on this board has responded about using it.

Just waiting on the delivery and we'll see how it goes.

Thanks again.

[Wobbly]

sorry I've never hear of it and can't help ??

hope someone else can give you some advise or have you checked online?

take care and hope you feel better soon
wobbly