After 1 year and 11 days I finally got diagnosed!!!

[Gaucho25]

Hello to everyone. Yes, after the onset of a 'space out' feeling that came from nowhere, and eye pain, dizziness, brain fog etc... and after a year of exams, MRIs of head, neck, spine, bloodwork, evoked potentials (ear, visual, etc)...visual field test, optic nerve tomography.etc... I got diagnosed TODAY. As MS got completely ruled out today (no lumbar puncture needed), and thinking I was a case of subclinical MS, as well as Lyme... NO, none of that... none of the crazy hypotheses like lupus, etc.... mine was a case of migraine. Yes... can you belive that???? So if you guys are going through the same horrible limbo path as me... you might want to consider that. Migraines are NOT always headaches...(i didnt know that). you can have occasional headaches but also can suffer from persistent aura, visual disturbances, halos around lights, all sorts of visual things (visual snow included), pins and needles, dizziness, confusion, sense of depersonalization, burning feelings, tired arms and or legs, face pressure, numbness, occasional slurred speech, probloems with concentration, anxiety and panic attacks, and the list goes on.
I am happy to have a diagnosis, finally I can rest in peace... It doesn't mean I do not absolutely hate the symptoms, but at least I know what it is and there are things I can take or do to make things better.
Hope you guys find your diagnosis soon, because I know how horrible it is to be in limbo land not knowing what is wrong.... and guys, when doctors tell u u need to see a psych, please do not stop on your search for a diagnosis...I did go to a psych who told me I had psychological issues...isnt it obvious that if you go to one of them and tell them your roblems they are going to say ''oh, thats the cause..."?.....
Cheers
Gaucho

[CHAIK]

:) Like!   Thanks Gaucho29.  You gave me more enlightenment.  Wish us all the Best !

[ltam123]

So who finally diagnosed it?  What kind of specialist? What did he/she use to come to the diagnosis?

[nailedit45]

Sounds like electro hypersensitivity to me! look it up Doctors don't help much with this they even may say u need a shrink. In Canada and Sweden its well known. You will find lots of books on Amazon about it. They have a support group called EMF Warriors There is a Lawyer fighting in the courts, Washington  Dc and other states am not sure of her  name you will probably run upon it like I did. I am friends with her and lots others on Facebook EMF Warriors you are not along. I have been dealing with it since 2009 GOOD Luck!!!!!!

[1Sweettea]

How are you sure? What is the definitive thing that gives you confirmation? I've had other doctors throw words at me that were incorrect. How is it that you know this is an absolute diagnosis and not just  a title like a placebo to throw out something that they don't know what it is?

[Lunaapril]

Hi sorry to hear could anyone help please no one telling me xxx thank you couple months back my face droped on one side it went num so did my eye mouth and I could not really see   They did a MRI everthing was normal but there still passing me on to see someone higher as my leg started to feel different if feels like it  tighting and let's go but at this point my whole body locks  it drains me  then iv been having more problems pins and needles in feet and toes and fingers and hands when I made my little girl a drink it was like a ghost took it out of my hand things keep slipping everthing feels weak I get a wired tight feeling at the back of my chest  then I keep going dizzy I feel like the room is spinning and my head it to heavey and when it's happening I can't speak I feel like it coming out wrong and slow I tripped over but how when they was nothing to trip over I was eating the other day and it was hard to swolllw my food then it would let me eat again the day after these come and go some part of the days I will be on and then it will  come back on me also head pain and the pain what iv had for 2 months of and on I feel like it's hitting my arms they also got weak any help please ????

[KenS61]

What is your diagnosis? I have had many that were wrong (From Epilepsy, Irritable Bowel, and many Migraine Diagnoses just because the Neurologists were lazy) and would honestly like to help if possible.

[Lunaapril]

Hello sorry only just seen this I don't no yet as I'm waiting for my results could take weeks I feel so week I look week   My body keeps locking my fingers are going stiff do you feel what it sounds like on my MRI scan the other day I seen like a bright white shadow on my spine

[Sparkysarah]

I am so glad for you first that you do not have MS and second that at last you are out of limbo.

One of my best friends recently had a very strange turn that has left her completely debilitated for 8 weeks. It was was a severe migraine ..although symptoms presented as similar to a T.I.A. (mini stroke). Thankfully she is now recovering alhtough still feels as if she is walking on a boat and cannot walk too far.

Anyhow the good news for you is that have a name to your symptoms which makes it easier to deal with. I hope that you get better soon and wish you the best of luck

Sarah  

[JemmAus]

Anyone with these awful "migraines" (or whatever they may be. I too have similar/same as above. Though the jury is still ut on whether it is MS or Migraine or both.

I too am skeptical and also scared of many of the medications the drs prescribe. I was amazed that a leading neuro prescribed a tricyclic antodepressant as a preventer when one of the contraindications was if one has seizures (which i have had) - the drug could increase siezure activity.

Anyway I was reading last week about food triggers. MSG in particular amongst other things. MSG has over 20 other names used to hide it within foods we eat.

Here is one article:

http://www.truthinlabeling.org/presentregulations.html

Other foods that can trigger migraine are onions (switch to leeks and shallots), concentrated tomatoes, like in  sauce, paste etc, hard cheeses, all soy products, and stuff with "hydrolysed vegetable protein".

I'm trying to eliminate these things from my diet completely to see if there is any change....I'll keep you posted.

Bar that, i'm off to yet anotehr neuro next week. maybe i will get some definitive answers for a change , instead of this MAYBE MS, or MAYBE atypical migraine....