Don't want to ask,,,,,but............

[LATW]

Ok, I am going to be brave here and ask....anyone have lack of sensation in your private area?  

Is that a problem with many who have MS?  

[samsgam]

That was actually one of the questions my neuro asked me, "is there any loss of feeling in your genitals?" I was happy my answer was no, and I am sorry yours is "yes"

Take care,
SamsGam

[Freespirit24]

I can relate to this One of my symptoms which I kept to myself for a long while was loss of sensation  when trying to have an orgasm. I would still orgasm but it did not feel like it usually like it was deadened down a lot. So weak in fact I barely knew it had happened. I hate this symptom because it has been my only sexual relief due to other medical issues my husband has. After a few months it returned almost to normal but now it seems to be loosing sensation again.

Quix
I also have had that running warm water feeling in my leg upper inside thigh like i spilt something but nothing was there not even wet. A very weird feeling.

Hugs

Sarah

[MCBCON]

The only approach I have to sex is that no matter the situation my wife is the most beautiful woman ever brought to this world.  Her idea of what she means to me and how she feels emotionally and physically about her own sexual being is paramount.  I am not a saint about this.  Of course how I feel and my emotions are also very important.  But, that is part of how she feels as well.

Keeping close track of how edgy or aloof someone is being is an indicator on how that someone is feeling emotionally.  A good orgasm does one wonders whether this person is male or female.  I know this is what everyone who is having this terrible numbness is talking about.  But, I think one should realize that there is some benefit to an activity that activity does not bring about the complete desired results.  One still raises their heart rate and changes are made to one's hormonal state.  Heck, this might be some of the only real exercise some of us are capable of having.

I understand frustration does occur.  But, sex is one of the most personal activities we have with another.  Sharing the frustration should be part of our relationship.  This important and we need to keep track that the frustration does not become more important than the sharing.

Age alone changes our physical being as does any disease.  But, just knowing someone is interested in you that way still is important.  I think understanding that this activity is a union and that the sharing is what in the end is important.

I hope I did not sound like some dumb guy.

[Super_sally888]

I am reading the story of sigmund freud.  Great and very interesting book. It is written like a novel and explains his studies, life, etc in great detail.

Anyway, the book describes one of his patients who had MS and initially she presented with increased sex drive..... this was transitory.... and then things got worse for her.  But it said that this was a known presenting symptom of MS.  This was in the late 1800's mind you....

The book seems pretty historically and medically acurate (reflecting the knowledge of that time)..... medicine surely has come a long way since then.

Hmmmm....

[grannyhotwheels]

Yeap, a while back I wrote about this if some of you older members might remember.  I stay numb.  It doesn't come and go it stays.  I don't want to get all pornographic here but the only way I know how to explain it is that I don't have a clue if it's inside me or not.  I'm really sorry if that offended anyone.  Like I said I don't know how else to explain it.

By the way I did tell my doctor about it and I think that the rest of you should to.  Especially ya'll that are undiagnosed.  It's just another clue that may lead to a diagnosis.  I told my doctor the exact same way as I told ya'll.  Yes his face got a little red but mine was a dark velvet color, that's how red I was. hahaheehee  I told my doctor in hopes that he could prescribe me something for it.  He suggested trying those heat sensitive gels, so I did but still nothing.  

The big problem is now that I don't have any desire to do something that I can't even feel.  It has caused a pretty big riff between my husband and myself.  I suggested that maybe we could go to counseling for it, but he said absolutely not.  He's the type of man that thinks he can fix everything by himself.  "Whatever"

I guess I haven't ever thought about how it would be for a man.  I don't agree with those of you who thinks it would be worse for a guy.  Trust me, even for a woman it's the ultimate let down.  I can't even please my own husband.  That's not much of a woman if you ask me.  That's pretty much how I feel about it.  Don't get me wrong here,  I do feel very sorry for men who go through this, but it's a devastating situation no matter who it effects.  I also feel very sorry for my husband and I truly pray that our marriage is strong enough to endure this.

I'll be praying,
Carol  

[LATW]

Santana- Yes, that is exactly it.  I get terrible spasms down my leg after O!  They are uncomfortable.

Quix, I have ofen thought I was sitting too long myself.  Not sure how that is possible with 5 children to care for 24/7, but that is what I thought.  

Glad I brought this up!! :-)

LA

[Quixotic1]

Yes, it was one of my first symptoms.  I thought I was spending too much time in my computer chair....Nope!

I have also had the sensation of warm water running down my thigh.  Makes me grab myself, sure I'm peeing myself.  Nope, but I'm sure it looks strange in public.

Quix

[santana8]

I have also had this. It started right after my first and only onset of symptoms two years ago. I don't have it all the time, but sometimes I do. It dosen't seem to effect orgasim during intercourse, but does effect  sensation of manual stimulation and orgasim associated with this. Also I noticed while bathing that even touching with a washcloth on the left side caused some strange tingleing down my left inner thigh. I too was hesitant to ask this question, but hey we can't help it if we get numb in strange and hard to talk about places. Afterall this is pretty serious business, lol !

[floridamom2]

Yes, I have had it on at least 2 different occasions.  Actually it preceded my first symptoms by about 1 week and I had mentioned how strange it was.  I am undiagnosed still also but have heard it is common in MS.

I am sorry you have this and hope that the sensation comes back!

Kristin  

[LATW]

I didn't have the nerve to say anything to my MS doctor about it either. I did include it in my time line though.  I am really curious to know how many have this issue.

I went to the MS society web site and see that this issue is something people with MS deal with.  

I do have a dx of MS.

LA

[tmjfibro]

COWBOY SORRY TO HEAR .IT MUST BE SO MUCH TOUGHER FOR A MAN
TO DEAL WITH THAN A WOMAN


TMJFIBRO

[tmjfibro]

HI LA .I AM STILL UNDX AND IN LIMBOLAND .BUT I SUFFER WITH TO .
I AM GLAD YOUR WERE BRAVE ENOUGH TO BRING UP THIS ISSUE
I SOMETIMES GET NUMBNESS JUST ON THE LEFT SIDE OF MY (PEACH )
AS I CALL IT AND OTHER TIMES ALL OVER .I WAS TO EMBARRESED TO
TELL THE NEURO ABOUT IT .
IT IS BRILLANT THAT THESE TOPICS CAN BE DISCUSSED AS IT MAKES
IT EASEIR TO DEAL WITH IF YOU KNOW YOU CAN TALK ABOUT IT
AND KNOWS OTHERS HAVE THE SAME THING

TMJFIBRO
















0

[LATW]

Oh,,,,I am sorry to hear that.  I am sure it can be a whole different issue for a man.  

At least for a woman the mechanics of it all does not change.

At least I don't have to tell my husband no...........well, not very often anyway.

LA

[Akcowboy]

  Oh yes I can still get it up but I just can't seem to finish but my wife doesnt seem to mind that part at all, I can try and try but in the end I just end up giving up from exhaustion.

  Cowboy