Are you Symptoms Consistent?

[hc1]

Hi all.  I'm still in Limboland and doing lots of research.  I was wondering if your symptoms are predictable or not.  My symptoms are always the same and usually follow a progression.  Ex: tingle in the face, then dizziness, then sometimes leg shakiness and weakness, left arm weakness...  then they go away in a hour or so.  There is not pattern to when they happen.  

In the 10 years of my tingly-ness have only had one bad 3 1/2 week episode of mostly all the same symptoms just worse and with extreme fatigue.
Thanks!

[PastorDan]

My very first episode, July 2008, included the sensation that my upper rearward (I'll have to look that up) sinuses were clogged up.  PCP, among other things, called for a CT scan of the brain, the report from which categorically excluded sinusitis.

But to hc1's question, I have a group of symptoms that come and go, but not in any consistent discernible pattern.  Well, not discernible to me, at least.

[aspen2]

I hear you.  I keep getting sent here and there ...  My ENT did confirm that what everyone has been calling sinus infections was in fact not.  I started having my "sinus" trouble again mid October ... and two days ago finally realized that although it's not trigeminal neuralgia (no lightning bolts), I have constant numbness on the left, and in the same pattern (30 seconds to aminute) I'm having pain events.  Take breath away, eyes feel crossed, but more of a deep buzzing than the previous immense shocky pain.  A little easier to pretend it's not happening, which I'm thankful for.  I'm guessing perhaps it's trigeminal neuropathy, but of course by the time I'm finally in to see a specialist it will likely be gone ...

[hc1]

I believe I have some trigeminal neuralgia also.  At least my chiro says I do and with as bad as my TMJ is I wouldn't doubt it.  I also have a really bad neck so I wonder how many symptoms are from those two alone...

It's hard to be in limboland isn't it?  I don't even know what kind of Dr. to see next.

[aspen2]

I have a similar same progression -- no dizziness -- but face pain, then sudden cold then right side weakness --  however it tends to last a lot longer (six weeks).  I'm also in limbo.  Plus a bunch of other things that come and so far go (again, usually for 3-6 weeks at a time).

When the above progression first started, it lasted and hour, then six, then finally weeks.  I don't understand the face involvement.  (My presenting symptom, however, was trigeminal neurgalgia and it seems I continue to have some sort of trigeminal neuropathy as part of what ever this is).

[kwarendorf]

I was diagnosed a little more than 2 years ago and have had MS for over 20 years. I have a group of 24/7 X365 symptoms. They are present in varying degrees everyday.

* 2-3 minutes of nystagmus related double vision when I first wake up.
* Tinnitus
* Urinary Hesitancy
* ED
* Orthostatic Hypotension

They don't seem to get any better, but they don't seem to be getting any worse. They just are.

Kyle