Autologus Stem Cell - clinical trial - Cleveland

[Lulu54]

I was looking at the clinicaltrials.gov site and see that they are getting ready to recruit volunteers for the stem cell research there - if you are interested you might get on the phone and call them.  Unfortunately, I miss the age cutoff or I would be calling myself.  

http://clinicaltrials.gov/ct2/results?term=multiple+sclerosis+cleveland

my best,
Lulu

[Mand125]

I hope that the upper age limit for the trials does not mean that there will be an upper age limit if and when treatment becomes available.

My local NHS (National Health Service) were originally only going to offer DMDs to under 50s. Luckily they changed their minds!

Mand

[Lulu54]

Julie,
http://www.unitedspinal.org/msscene/2008/09/22/diagnostic-criteria-for-ms/

has an excellent review of the McDonald criteria and its evolution over the years.  on a quick glance it appears that the Swanton and Pohlman work on the dx criteria focuses on the inclusion of CIS  patients.  

Take a read and see what you think.......

L

[Sarahsmom46]

I looked up the website you gave for the clinical trial and found something interesting.  Not that I want to do another clinical trial anytime soon for sure, but if you read the criteria for the MS diagnosis they mention that you must meet the criteria according to McDonald and revised by Pulam and Sarton or something like that.  

Have you ever heard if someone else is working on revising the McDonald Criteria or did I just misread that?

Julie

[Lulu54]

This study is only being done at CC. You can see all active trials at clinicaltrials.gov.  

I try to check there every once in a while because I would not mind participating in some way.  There is another self-donated stem cell trial in Phase II that has sites in Columbus, Houston and Seattle.  

When I was originially dx'd last year, I immediately offered to enter a trial and my neuro was excited - but then we talked to their clinical trial coordinator and I am over the age limit for almost all of them that are being done at OSU.  

It appears that for many of these trials all we mature MSers can do is sit on the sidelines and wait for the results.

Wish it were different,
Lulu

[Charley123]

That's pretty exciting.  I've read some pretty good reports on stem cells and MS.  Do you know if it's being done anywhere else in the US?  Thanks for the news! Charley