Brain Pain?

[Lulu54]

Ok, I already know that our brain does not feel pain... but I get these pains that I can't quite explain. I haven't talked to my doctor about them yet, but will the next time I am in.

The pain comes and goes without provocation or warning in my skull/skin covering my skull/head.

It is not a headache in the traditional sense because it doesn't last long and I don't need to take an analgesic to stop the pain.  It resolves on its own.  

Its not a tumor or anything like that because they have looked at my brain enough through MRI that something would have been seen - I just had the repeat 7T in August and it there were a reason for this, it cvertainly would have shown up with that big magnet.

It usually is in the same areas so it is not moving about my head.  Usually it is on the upper right side of my head, but sometimes it occurs in my right forehead. On rare occassions I have felt it on my left side.  Never has it been in my neck or back of my head where I think tension headaches arise.


This has been happening for several months now, and its beginnings are not connected with any new medications.   Unfortunately, it is happening more often, and now I can't just ignore it as a nuisance.  This has become some sort of real symptom, but I don't know of what.   It happens at least a dozen times a day, if not more.

Anyone out there who can make sense of this, please give me your input.  

as always,
Lulu

[PastorDan]

If you went to any of the neuros I've seen, they'd surely have to call it atypical migraine.  

~:>(  

Wish I could be more helpful, Lu.

[Eyesnlegs]

I have been suffering with this for sometime now, when mine started it was like a creeping over my scalp, then this became interspersed with pain. The pain can actually be very, very sharp and will sometimes last a quite a few minutes and sometimes seconds.

I didn't used to have it every day but this was the sx I started the gabapentin for as recenlty it has been happening every day, several times a day and was starting to involve my face also. The MS nurse and neuro have taken the attitude that it is parathesia and that the gabaoentin should help with this and any other zaps, sings, tingling, etc.

I am building the gabapentin slowly and I must admit it is starting to help a little. I spoke to my GP yesterday about this pain again and she told me to keep building the gabapentin and to aim to being pain free for more than 50% of mt time but with my condition I would be lucky to be totally pain free - honest opinion eh?

Make sure you let someone know as when I am tired, stressed or having a 'bad' day it has become one of my recurring sx and is very lowering.

Sending healing thoughts.

Love
Pat x

[Lulu54]

Thanks - this was very helpful, as I figured you might have answers for me.

Yes, mine started like Pat's - just ocassional feeling of pressure - like I was wearing a stocking cap.  nothing tight, just the feeling of something there.

Then it ramped up to the pains like Frankie and Pat describe.  I know its not allergies because it has crossed over into a couple different allergy seasons here.

In the past two weeks or so I have also developed the crawling worms under the skin in my right calf.  Quite an interesting sight to watch because you can actually see the movements.  I'm so grateful this doesn't hurt - at least not yet - because it goes on and on sometimes.  

you all are perfect consultants - thanks!
Lulu

[PastorDan]

Worms?  Yuck.

I've had a new one a few times recently: the distal half of a finger will bend (at the second knuckle) back and forth at an amazing rate.  It's not as fast as a hummingbird's wings, but it's way faster than I could ever cause deliberately.  So far, it's only been on the left hand (I'm right-handed), and I don't recall it occurring with the index finger, but I'm pretty sure the other four have each had their turns at it.  The range of motion is narrow, but plainly visible; I pointed it out to Nancy a few nights ago, and she was intrigued.

[HVAC]

O.k. this is what happens to me sometimes my head hurts when I think. I heard a neurologist say as you have more damage with MS you use more of your brain to perform the same tasks and that it can hurt to think. I get the flesh crawling thing to and shock and numbness in my scalp.

It will be cool when Science can give us some answers.

Alex

[wadeheather]

I get all of that and then some.  The "ice pick" headaches as I call them I was told were simply "the nerves letting you know that they are there."  It's horribly painful and can stop you dead in your tracks, put thankfully doesn't last long, at least not for me. I also get the creepy crawlies on my scalp but thankfully haven't for a while.

With all the symptoms I seem to share with many of you - I should say WE limbolanders - why are we still in dark?  I feel like I'm saying "I have that..." constantly. At least it reassures me that I'm not a complete nut job!