Live with it for the sake of getting help???

[Rena705]

Ok....I have been having a lot of pain and been feeling pretty bad for about 1 1/2 weeks now with the Paratrigeminal Neuralgia and nausea and pain in my legs and the ear problems are back with a vengeance and so on and so forth.  

I tossed around the idea of going to see my gp about these problems but with the past track record I have with her I don't really expect to get any assistance with say I.V. Steroids which is what I believe I need.

Today I was thinking it through with a little clearer head (temporary I am sure) and I have decided that I am going to wait until I see the neuro/psych people next Thursday.  Perhaps if my eye is sagging down to my chin (a bit of an exageration there) and my ability to speak deteriorates (which it does when the numbness and pain gets worse with the Paratrigeminal Neuralgia and fatigue) and my brain power slows down because of all of these symptoms, maybe, just maybe I will have someone look at me and say, "Gee, I think this woman needs some help!"

So, if I am suffering in pain until then, I will take an Oxy if it gets really bad and hopefully I will be able to withstand all these other symptoms until the 18th.  I hope so cause if I get the steroid treatment a week before I go for my neuro/psych testing, I am sure they will find very little wrong as will also be on the weaning prednisone.  What would be the point of the testing then?  Any input here?

Lots of Hugs,

Rena

[mokibear]

It's a sad world when one has to hold off on treatment that could help just to "prove" to the idiot Neuro that something is wrong!! Man that gets my dander up!!

I'm sorry that you have to try to hold off and I pray with all my heart that it pays off for you. I really hope these next 8 days sail by quickly for you.

My dog too like to try to cuddle with me when I'm not well and likes to think he is a lap dog, but at 140lbs that's not about to happen.lol

Good luck Rena, hang in there.
Hugs
Moki

[Fluffysmom]

Hi there, you tough gal, you!  I trust your intuition on this one and will have you in my thoughts each day, wishing you the quickest 8 days ever.

My Fluffy always knows when something serious is up with me, and gets this worried look on his fuzzy little face.  He likes to cuddle up next to me when I'm down.  He's not a lap cat, but when I'm having a hard day, he will work his way up to my lap, and it's hard to fit 16 pounds of cat onto my lap.  I'm glad you have your puppy for comfort.

Yeah, Oxy can help you float through the worst of it, maybe.  Not enough to cover up if your really need to go to the ER, so I'll just be sending good thoughts and hugs and love your way.

Take care,

Kathy

[wonko]

To clarify, I do actually agree with your plan, but feel morally obligated to not say so because I worry for your safety and comfort.

Drat!  I just blew my cover.  I've always been too candid to be any good at deception.

At least you know that the steroid will help once you are willing/able to get on them.  Keep us updated on this so we don't worry too much!

[Rena705]

Hey girl...I respect that you may not agree but I think this is the best move for me.  I have have the IV roids twice before and the 1st time was like a new me...the pain disappeared within the first 20 minutes of the IV infusion and by the 3rd infusion I was back to my old self...for 4 months anyway when I had to do it again.  I can't say I like the weight gain and the weaning prednisone but it was better than the pain.  I can say that my pain is at about 90% of what is was when I had my first "date" with IV steroids but I was also working a new job at the time and couldn't go lie down when I felt I needed to like now and I have access to Oxycodone so if it gets really bad I can take one of them and while it doesn't really relieve the pain, I do feel a whole lot different about it.

As for the puppy dog...I am seriously thinking of making a dummy and putting a white coat on it and training her to attack...especially if the dummy has a name tag on that says "Neurologist".  As for sending her to teach the docs any lessons...I am sorry but I need her here right now for comfort and cuddles...she is my buddy and I don't think I can spare her...BUT...I am willing to bet that your local SPCA has a little buddy that would be able to tell you if something is wrong with you in no time...they have an uncanny ability to do that even after they haven't had us for very long! hee hee

MCBCON...Yep it does...BIG TIME...but I don't have a lot of choice and it's "only" 8 days and if I can't take it I will go get the roids and hopefully I can rebook the neuro/psych consult...that's me...all the luck in the world and it's all bad! hehe

Lots of Hugs,

Rena

[MCBCON]

This s.u.c.k.s.

[wonko]

You are in a sticky situation.  

I don't feel like I can directly tell you that I agree with your plan.  That said, I think you know your body pretty well.  And you state that you will use your best judgement to monitor the situation.  

I know my neuro had me hold off on pred. until after MRI testing was done.  I suppose your situation is not all that different.  

If you are at all like me, then I agree that they will not get a real result if you are tapering.  I never did IV, but WOW was I glad I had read about how even the oral 'roids can whack a person out!

If I pay the airfare, can your dog give my doctors some lessons?  I have cats that s/he can chase, if that's any sort of bait.

Take EXTRA care and take it easy as you ride this out and do what is best for you.

[Rena705]

Andi...I just don't think that they would get a real result from the test if I were on weaning steroids honey and I have waited long enough for this test...9 months...so I can't wait any longer...if they say I am normal (highly unlikely) I will take it at face value but otherwise maybe I will have something to slap in my neuro's face.

Doni...I won't let it get carried away...if I start to have more trouble with my vision or something like that I will go to ER...otherwise I have Oxy to see me through and at least I will have a smile on my face right?  hehe

Tahiri...I understand what you are saying...even my dog can tell me that there is something wrong...why can't a University Educated Physician???  time will tell!

Lots of Hugs,

Rena

[Tahiri_Veila]

Yeah I know how you feel.  I have been in the same boat.  It is awful.  Not until a 2 year old could tell that you are sick or something is wrong do they do anything.  I am sorry.  I hope you will get some help when you do go.
  Tahiri

[doni54]

Yes, that does make a lot of sense.  You want your symptoms to be full fledged when you go.  You have to suffer so much with them, they need to see what you are going through.

If you get to feeling too bad though, I don't know if you should wait or not, that has to be your call, cause only you know what is going on with your body.

I'm sending you strength and a prayer that you will feel better and have them really see what's going on with you when you go to that appt.

Hugs
doni

[Wobbly]

it makes sense to me...but I don't like the idea of you being in so much pain...no one should be in that much pain...I know...I have myself at times.

but I do understand that you don't want you symptoms to subside when you have your appt because you had steriods now...I would probably do what you are doing now..

don't know if it's right or not..??

hang in there girl

Hugs
andi
LL