Do I have MS? :-/

[Stacieann19891]

Hello, I suppose I'm here just for a bit of advice. I can't seem to get any clarify from my gp. It all started after I had a stillbirth in 2014. (Well, I now realise I had symptoms way before that but just didn't take note of them) I was supposed to have a blood screening after the autopsy showed  nothing wrong with baby, but for whatever reason my doctors failed toInform me about this screening, but it came about a year later when I went to the gp with consists about my period, which hadn't returned. (This also happened after my second son, and after surgery I was diagnosed with polycystic ovaries and endometriosis) anyway, I had the screening and it came back lupus anticoagulant positive(I think j that's how you spell it!) I had the same test done 12 weeks later which again came back positive and also showed elevated appt time. The Dr explained that they believed I may have an auto immune disease or a blood clotting disorder and ordered another blood test. This again came back abnormal and I was then asked about any symptoms id been having. I explained to the gp that I am constantly tired. No energy whatsoever. I have terrible muscle aches and the last couple of months I've had the weirdest sensation in my upper back, like a tingling/numbness. It happens everyday just under my shoulder blades and stays for hours. Coming and going. Sometimes it spreads under my breast bone. She didn't look too impressed and asked why I hadn't mentioned this before, but I explained that I put it down to the endometriosis and having three boys. She said they may look for lupus and MS. She has since reffered me to rehumatology and I got my appoinent letter through this morning. I'm concerned now! I wondered if anyone else with MS has the tingling in the upper back? I have also felt it in my feet but mostly at night, accompanied by terrible feet and ancle aches. Sorry for the length ! :-) by the way, I'm 25 years old, and one more thing that may be worth mentioning, I've been in and outbid hospital with kidney infections the past two years... Not sure if that's connected !

Thanks everyone ! Take care

[Stacieann19891]

Oh and to clear things up. The first time I had a kidney infection it was a complete mess up by my gp, I had been going back and forth for over a month saying I was having symptoms of a urine infection, she tested my irone every time and said it was fine. I woke up in the night feeling like someone was stabbing my sides and I took myself straight to hospital, where they couldn't believe the doctor had missed it because my irone sample there showed blood and proteins! Second and third time I had symptoms of urine infections but again the pain in my kidneys came out of nowhere. It's all very strange. I think the urine/kidney infections could be down to the endo. Last suggestion was that it may be blocking a tube somewhere so I'll have to have another surgery *sigh*

[Stacieann19891]

Thanks a lot! -)
And I suppose I'm just keeping hydrated for avoid the kidney infections. Haven't had one for a few months now. Today I've had a patch of tingling over my right knee, and again in my upper back. This morning it was my left foot. Feel like I'm falling apart! And I'll check the lupus forum, thanks a lot :-)

[supermum_ms]

Hi and welcome,

From everything you have written, I actually think you would be more suggestive/consistent with Lupus than MS, Lupus is one of the MS mimics and from what I understand, most, if not all of this could be connected with Lupus but only the tingling-numbness and fatigue could be connected to MS, so imho the totality of everything you've experienced would be more suggestive/consistent with Lupus.

You've got a referral to a rehumatologist and this is the type of specialist who you need to see to rule out or diagnose you with Lupus, to be investigated for MS you would need to see a neurologist, I honestly don't think you should be at all concerned about MS at this stage....

If you haven't already i would highly recommend you also post your question in the Lupus community for additional help and guidance.

Cheers.........JJ

[ScalpMassager]

Being hospitalized for kidney infections is very serious business, over which you may have considerable influence in preventing.  What steps are you taking to avoid recurrences?