Does anyone here deal with receptive aphasia?

[maxthecat43]

I had a really scary episode this evening.  

I have been having a lot of trouble with speech lately, but at least I kmow what it is.  Tonight, at our religious meeting- I suddenly couldn't understand anything (I just learned this is called receptive aphasia).  And of course, I wasn't able to communicate either.

This problem, hearing speech-but with zero comprehension, has only happened twice before this evening.  Is there any treatment?

[supermum_ms]

Hey babe,

What you describe does sound like it could 'possibly' be a seizure type of event, so its a good idea to get that investigated, hopefully you'll know one way or the other after the EEG. Please let us know what happens!!

HUGS..........JJ  

[grandmalaurie59]

I wish you all the best...Wow, that does sound scary! I think you did a good job of explaining what happens to you...please let me/us know what the test results reveal!

[maxthecat43]

The intermittent muscle twitching we usually feel are called fasciculations.  Like most mser's I get those too.

What happened during the strange episodes was entirely different. It was hard and unpleasant.  It affected my jaw, and most of my body.  It wasn't as bad as what they show on tv, when people are having seizures- so that's why I didn't know what it was.  It basically felt like electrical surges-causing muscle contractions all over my body.  I don't know how to describe it any better.  I'm sure someone else on the forum has experienced this...  Hopefully they will see this, and have a better way to describe/explain.  At the time, although I was aware- my consciousness was altered somewhat.  I just hope my doctor can get it under control.  The whole process is very disconcerting...

This is the best I can manage for an explanation.  I hope it helps.

As for whether it can be caused by my ms?  I have read that while seizures are more common in people with ms, than in the general population- it's still pretty uncommon. ( only 3% - 5 or 6% is the estimate in people with ms).  It may mean epilepsy and ms, or they may decide it's from my ms...  (Or they may decide it wasn't a seizure at all.  We'll see next week.)

[grandmalaurie59]

What exactly do you mean by twitching? I know I wasn't twitching, but I want to make sure I understand what you are talking about. (Lately I have been getting a lot of painless muscle twitching mostly in my legs and torso, but not on my face.

I read you are going for a EEG....if it is seizures, does the dr think they could they be caused by your MS?

I hope all goes well and they will figure out what is going on ....and fix it :)

[maxthecat43]

It sounds like you may need to look into this too.  One of the things he asked me was "we're you twitcthing at all?"  And I had been twitching, I didn't think it was important.  So that is another thing to watch for.

[grandmalaurie59]

I have noticed something similar to this in the last couple of weeks...the time it happened the longested was when the nurse from Shared Solutions came over to show me how to inject my Copaxone last week.

She was here about 2 hours...I already wasn't feeling great... Of course she was giving me a lot of information, my daughter-in-law was here asking questions also...I was getting very tired, but tried to act normal. :)

At one point she started talking to me for quite some time...I can picture her face in my mind now....she was explaining something to me....I heard her, but I did not comprehend a single thing she said. Not one word. I remember thinking to myself.......oh no, what is she saying? I just stared at her....then, all of a sudden, I was able to understand her again.....It seemed to last for ever, but it was probably less than 30 seconds...

This has happened twice ....both times only lasting seconds NOT minutes! Both times someone was talking to me...It was like I zoned out mentally....I guess it kind of "scared" me because I remember both incidents VERY clearly. (but not what they said lol)

Laurie