I feel your frustration. I have another illness besides MS and I live with the frustration of the medical system.
I had my first Neurological Hospitalization in 1965 and I was not diagnosed with MS until 2009. I saw hundreds of Doctors growing up. My MS Specialist says I have had MS since I was two years old. It is frustrating. All I can tell you is keep advocating for yourself and do not give up until you get an answer.
What I have learned is to trust myself and to keep pushing until I get an answer. If Doctors do not know they are not good at saying something is going on I do not know what it is.
I leave my emotion out of it which is hard. I have a nurse who screws stuff all the time. I have to deal with her once a week or more. Every week she makes a mistake. I have to keep up with my care or she will forget stuff I need. I have to be nice to her because I am in a drug trial and really need the drug. I am going to be dealing with her for years to come so I smile and am polite. I do not complain when she make mistakes or I have to do her job for her. It would do me no good. I have complained and it does not change a thing.
Hang in there and don't give up. Mostly what we want is to have a Doctor say what is going on is real. In my experience that does not happen enough. Doctors are not good at admitting they do not know what is going on. I have some good ones that say I do not know and even apologize when they miss a diagnosis. Life would be so much better if Doctors were more honest.
Alex
I have no idea alex what to do ?
I am sorry it is taking so long. What can you do next? I do not know how the Canadian system works.
Alex
I am getting numbness and tingling issue on my feet and hands . I went to hospital and the dr there said it shouldn't be MS but I am not in peace ! she refused to write MRI to find out of it is MS or not because is costly for hospital and waiting time is very long here in Canada .. these things is just killing me ..
I was not making any kind of diagnosis. I was just empathizing. I have no clue what is going on with you. I can not diagnose anyone I am not in the medical profession. I just can be moral support.
Alex
The comment about it being "terrible" only meant that it sounds like you are suffering a lot. Not a diagnosis of any sort.
We don't know what is happening to you. I'm sorry... I wish we could be more helpful. I think you need to see your doctor. The problems you're having sound very uncomfortable, but they don't sound very much like MS. I hope that at least gives you some comfort.
why you say it can be terrible?
one question :
by viral infection you mean HIV?
Sounds horrible what ever it is. I hope they find an answer.
Alex
Hi and welcome,
MS does NOT present or cause such a wide spread list of sx's over a short time frame of a few weeks, MS also doesn't cause sx's in all peripherals or cause sensory sx's all over your body, because it's basically impossible for what causes the sx's in MS to do that. MS has many sx's found in other conditions, and many of what you've mentioned would be red flags leading away from MS, and makes it more likely to be one of its mimics eg mono, viral infection, vit B deficiency etc.
Looking back through your posting history, I humbly bring to your attention the possibility that you could be dealing with an overly high level of anxiety and if this is possible, I highly recommend you discuss your sx's and your concerns with your Dr.
Cheers..........JJ
I forgot to mention I get on & off ulcers in mouths