Hi all, I recently had a clinical diagnosis of NMO, but also just as recently had it taken away (thank my lucky stars). The neuro (my 2nd) was just so sure. Said it looked like, tasted like and smelled like NMO, but every single test has come back negative. But my symptoms include right eye vision loss (complete but only temporary-that was really scary) tingles, back PAIN, numbness, tremors, the hugs around my torso and head, the spike through the back of my head, palms and feet, and the dizzy spells.
So he has me on nortriptyline for the pain. Awesome stuff, literally has made my life tolerable. Also, I have developed some very unexplained high blood pressure during the limbo land walk so I am taking Toprol for that.
But to make a long story a whole lot longer, he is giving me the 'possible MS' clinical diagnosis and is having me come back 'soon' to be worked up again after some time has passes. So I figure in the meantime, why don't I get some books to teach me how to eat better. Every book I have read for MS diet related info talks about Heavy Metal Toxicity. So I bring this up to both my primary care and neuro and neither one will order me a test. So I find a little kit and do it myself and found 'very high levels of concentration'.
Has anybody else gone down this road? Am I looking in a direction that is unfounded, or simply ridiculous? Because let me tell you, after of year of Limbo Land dances, and co-pays up the wazoo, I am ready to believe just about anything and am almost willing to check out the nearest witch doctor just for some light of hope and relief.
I would love to hear from anyone who has entertained the idea of Heavy Metal Toxicity and what you have done about it or what you have found out about it.
Thanks,