Confusion

[blwade1990]

Hello Everyone,
I’m currently a junior/senior in college. Earlier this year I was hospitalized for three week and for three days I was on life support. One of the eight physicians working with me asked for a spinal tap and the results along with two small lesions found in my MIR led her to believe I had MS. For whatever reason the diagnosis was withdrawn and I started my slow recovery. I fell ill again in July and was back in a wheelchair and my new primary physician suspected MS and had me return to the neurologist who attends to me during my hospital stay. The neurologist told me she believed that this was psychological and that nothing is wrong (the same doctor who announced to me that I had MS) but that she would send me to an MS clinic in Dallas. I was diagnosed with Fibromyalgia when I was 9 and this year it was finally discovered that I have some underlying rheumatoid disorder. I turned 21 this year and I’ve lost my only brother to cancer so I’m not sure if this is natural fear to scary circumstances or me being dramatic. I’ve been in pain for a long time and I’m afraid I won’t find out what is wrong with me till I’m 40. Have any of you had a similar experience? If so, what course of action have you taken?

[Caryopteris]

I would get tested for  Celiac disease because it can lead to many other autoimmune diseases, but if you have it, just a change in diet will improve your health.

[HVAC]

Hello I am sorry you are having so many issues. First of sorry about your brother. Second people are very complicated, we are not like machines you can point to something and say there that is what is broken. I am 48 years old and have had different illnesses all my life all very real and all very hard for doctors to pin point. It sounds like the Neurologist is a dead end.Neurologists specialize in certain things so if she is saying it is time to see a MS Specialist may be that is the next move. That does not mean you have MS. MS is a diagnosis of excluding all possibilities which is pretty weird. For many people it takes awhile to sort it out.

It would be hard for us to give too much advice since we are not doctors. Whatever is going on is real. At your age it must be terribly scary. There is something real and you are not alone.

Alex