Had my appt. with my Neuro today -

[Sidesteps]

I am not sure what to think.

My EMG, EEG and VNG are normal. My CT scan shows "many questionable area's of decreased density in white matter area's." My cervical MRI, he said was fine but I had the copy sent to me and I have two bulging discs with an anular tear. It only bothers me if I am stressed or slept funny. I guess I'm a bit surprised he didn't tell me about this and it makes me question his thoroughness.

That said, he said that MS is not off the table but I do not fit into a little box. I have some atypical symptoms...which he says are the muscle twitching and jerks. They occur everywhere. He also said that I have visual problems (my eye doesn't follow the way it should) and optic neuritis. I know I'm still struggling with balance issues (ataxia) and now my right leg is starting to feel "slow" like it's lagging behind. There are other symptoms obviously...

I did get what I wanted, he ordered a MRI w/ contrast to check the optic nerve and I have an appt. with an opthamologist on Monday to double check my eye.  I have an appt. with a doctor at our local MS Research facility in February just to have someone take another look.

What were your first presenting symptoms? Maybe my fasculations and muscle jerks aren't related? Those are what "appear" to have presented first but I also lost my 1st husband 5 years ago and may have had many similar symptoms I ignored thinking it was stress. It was a difficult time in my life.

I'm perplexed. Thoughts?

[Sidesteps]

I do have certain spots the "twitches" seem to attack. They are frequently the left side of my body - my quad, calf, my bicep and sometimes my eye. These last for quite awhile --- sometimes the same spot off and on all day, lasting anywhere from a couple minutes to longer.

I also get just these random single "twitches" --- These will hit anywhere and just go away. (I am wondering if I mistaking this for something else.)

Then I get the jerks like you described where I sort of feel an "energy" before it causes my arm or leg to move.  These don't happen that much.

All of these increase as I get closer to my period or when I'm running a slight temp.

I'm gonna get a journal tonight. :) I think I need it. I'm frustrated because he doesn't even take the time to figure out what the twitches feel like! ahhhh! :)

[Sidesteps]

ETA: I think I understand a bit more of this twitching, jerking thing going on with me.  I am pretty sure I have myokymia (which seems to be repetitive fine muscle movements) but shouldn't the EMG have picked up on that...or do I have to be experiencing them for it to show?  

I also have random single "twitches" or fasciculations and I occassionally get a movement where I can feel an irritation building and a jerk occurs. They are all bothersome but it's the repeated movements that are troublesome to me. I don't think I'd notice just random twitches.

I also am occassionally getting the larger jerks that happen when you fall asleep.

Sorry - I'm frustrated. :)

[jensequitur]

You have muscle twitching and jerks everywhere - typically MS symptoms are located in a specific spot, like in your face, or in your right hand.  I had muscle twitching and jerks (still do) but mine always seem to be connected to my spinal lesions.

However you have neurological symptoms aside from the ones he's discounting, so it sounds like you're on the right track - get the MRI with contrast of the brain to see what's going on in there.