Help advice so many problems already

[Krispt]

Hi guys
Just a quick background
I'm 30 yrs old, ive had so many symptoms and issues that it's scaring me in a big way
December - Lhermittes - went away feb to barely noticeable
January - hand tingl, feet tingle
Feb - feet started burning, brought a weird achey arm and odd pains in leg muscles all over both legs
March - much of the same
April - the odd feeling moved to left arm too

In the past two days both legs have had muscle pains and aches from my hamstrings to thighs that sometimes burn and up to buttocks and private areas. I've been struggling to walk any distance as my legs get real stiff and heavy and ache on the insides

I've ask had the fasculations in eyelids arms legs everywhere randomly.

Now I know that all seems like loads and that's what scares me?' I had an mri in jan clear brain and c spine and two neuro exams jan and feb all normal.

I'm terrified at how quickly the symptoms have come on including the spasticity whijc I was told should be later in disease, does this sound like a relapse? Or very aggressive ppms or something entirely different! It's terifying me and I would love some advice

Sorry for the rambling and questions let me know

[bbassel]

I don't know who keeps 'telling' you these things. I know for a fact that the medical technicians aren't allowed to disclose their private thoughts to a patient. For just this reason exactly! Until a doctor or radiologist looks over the test themselves.

There is a reason they have this rule to keep patients from stressing about potential wrong information.

Just try and take some deep breaths. Working yourself up will only make your situation worse.

Alll the best

Barbb

[Krispt]

And regarding the lhermittes
It was the neuro who said although he can't feel it, it is there based on the explanation. It wasn't so bad then after a week it got really painful lasted about 2 months then just disappeared.
The arm issues have slowly gotten worse too, and I wake up most nights with my fingers in a carpal tunnel distribution tingking and numb
It was also the edss score thing that concerned me, to have issues with walking already would put me at Edss 3 plus and to have that level already is not good I'm told
Thanks again guys I really appreciate it all and knowing othee people's opinions really does help

[Krispt]

Hi doublevision
Thabkyou, I'd be interested to know where the lhermittes less aggressive link comes from? I thought being that it's a spinal lesion it would not be so good? I also know sensory symtpoms are usually better prognoais. It is however the issue with the legs tightening and pains that is concerning me the most currently regarding prognosis etc
I hear of people say it took years to find out etc but already I'm having issues with walking some days and the leg pain is in both legs, mostly hamstrings and more the left but in both legs from calfs up, almost like cramp

[supermum_ms]

Chari is actually one of the mimics though often dismissed for some reason, we've had a few people in the community who were eventually dx with it and medhelp has a Chari community now, but even though i've mentioned it i'm still concerned that with your high anxiety, it really isn't a good idea to inadvertently encourage anything that feeds your anxiety even more.....

Is the Lhermitte's something you self diagnosed like the spasticity and your EDSS scores?

I honestly didn't overlook that you'd mentioned Lhermitte's but with what you've additionally mentioned in regards to self diagnosing, catastrophising, progression etc and that Lhermitte's is based from a 'patients complaints' of paresthesia or an electric shock-like sensation that radiates down with flexing the neck.........and the potential for someone with OCD mental health history to experience functional sensory symptoms, as sensory symptoms are commonly associated there is enough background information to consider the Lhermitte's as similarly related......  

This is a respectful explanation of what basically happens with anxiety and worrying about MS, worth reading imho
http://www.anxietyzone.com/index.php?topic=9832.0

Cheers.........JJ

[doublevision1]

IF your Lhermitte's really is due to MS, but all the neurological testing so far has been clear, this would actually indicate being very early in disease course, not progressive as you fear. It was my first symptom and my neuro exams and MRIs were clear for a year before any objective evidence of MS was identified. Although there's no way to predict which disease course any one individual will have, Lhermitte's as a presenting symptom is associated in general with a less aggressive disease course. I'll try to find my reference for that. I do agree with JJ and Ess that you really shouldn't be jumping the gun on this and would benefit from finding ways to manage the stress of your health concerns. However I do not think that your experience of Lhermitte's could be evoked by OCD or stress; perhaps magnified, but not caused by. I believe there must be a physical explanation for this which will eventually be revealed.  I understand why MS would be a concern for you but until you do learn via objective medical testing why this is occurring, do what you can to manage the anxiety, as it is really detrimental to your overall health and well being.

[Krispt]

I genuinely know what your All saying I do and I know the obsessive compulsive bit isn't helpn I also know it shouldn't present like this especially at my age with normal neuro and mri so far, not sure on the latest one yet
But I can't help think there's nit alot else that matches
Mainly because of the lhermittes, I'll be honest though I didn't realise there was as many mimics as that!
The only other ything being mentioned at all and thtis was by the lady who did the mri, was chiari? She thinks she saw it on the scan but it wasn't reported, But thn even that wouldn't explain all this?
Lhermittes is the main one that pushed me towards ms