How to get used to the odd sensations?

[jumpinjiminy]

How long does it take to get used to this and move on? It's so very disruptive to have all of these pains, spasms and odd sensations coming and going all over the place. Some days, I can ignore them better than others. But most of the time, it's disruptive and interferes with my concentration and motivation.

It's so hard to just forget about it and go on with things. Partly because I'm worried that damage is accruing while the medical establishment does nothing to try and stop it, and partly because it just plain doesn't feel normal.

I'm having a hard time getting past it. This has been majorly disruptive for two months now. They've just flown by while I've been obsessed with all of this craziness, searching online like I'm OCD for a cause, and visiting this doc and that doc with nothing coming up to lead to a diagnosis and treatment.

I have to slow down somehow, regroup, and refocus. But the moment I do, something else happens! Will I ever get used to this?

:-(

[figuerpa]

It is very hard to get use to but eventually your body gets use to it, well for me, except for the burning and spasms, I don't think anyone could get use to that. For me it was easier focusing on what triggers the pain and knowing when I need to stop before it gets bad.

Making sure to take the pain meds as prescribed is very important to me to. If I miss a day of my lyrica it takes another 3 days of taking it to get the relief where it is bearable. I don't know that it ever really goes away but you can learn to live with it.

For instance when we go shopping, he drops me off at the front door since I will be walking around the store, I use the shopping cart as an aid for not putting alot of pressure on my left leg. It is the little stuff that I do that helps out. I know exercise is good for MS but if I know I am going to walk around the store then why walk the length of the parking lot too.

I am not now or never will be use to the burning or spasms but the lyrica keeps the burning to a tolerable level. The spasms, I have a prescription of muscle relaxers when they get to be too much.

I hope you find a way to relieve some of the pain you are dealing with. It really does stink that we have to go through this.

Take Care,
Paula

[nickismydog]

I was diagnosed in July 2010 and I'm not used to it either... MS is one crazy world! Some people say that you will get used to it and learn what you can do and limit yourself.. I have not found out this about myself yet!

Hoping and praying that it will get easier!