Happy 4th of July to all of those in the US. and a Happy July 4th to those not in the US lol!!
I was wondering if anyone has every had side effects from stopping a DMD??
The specialist at UCSF is switching me to Tysabri and has told me to go ahead and stop my Betaseron. It has now been 2 shots that I missed (well didn't take) and for the past 2 days I have been feeling like someone beat the crud outta me.
My husband is insisting it is cuz I am not taking my shots. I don't see how that can be. We went to UCSF Monday night (4 hr drive), had my Dr appt Tues which took 4 hrs. Got 7 vials of blood drawn before I ate lunch, then spent that afternoon and the next day wandering around SF and driving home. DUH!!!!! I know!
I have been trying to get this house back in order since our trip, and I think I am over worked basically. I have been getting a very upset stomach at night and flu like sx's with a cough (only at night I know wierd) which I write off to doing too much during the day.
I had 5 days of solumedrol from June 14-18 and my sx's improved. Of course when I went to UCSF I was in tip top form for me, and the Dr didn't get to see how bad off I get. He thinks as of June 29th that I should continue to improve from this last flare, but since stopping the Beta, I almost feel like I am in another flare.
Has anyone experienced this when stopping or switching a DMD??
Thanks
D