FIrst of all I want to thank you all from my whole heart for being with you in the time of need for me. It truly means a lot to me and really healped in guiding me and keeping me on track of what I want to accompluish here.
I am also sorry that I haven't been reading or responding to any og the other posts, but I honestly have not had the brain to do it or the energy. So, I hope all are doing well and those going through any issues, I send warm hugs and healing power to you.
I did go to Santa Barbara ER yesterday. I got home around 3 this am. I took the new medical record book that I had just finished with me. I found out about doing this in the Health Pages, thank you very much! I don't think I would have been taken seriously if I didn't have it. I usually just take a copy of my meds with me. The doctor actually took my book and looked through it. She was able to see the doctor reports for all past MRI's and the ER visit I had last week and thr ophtho visit I had the other day, as I had requested copies of my visits at the time of my visits. So this was so beneficial, I think. BTW, I already have copies of all tests done and doctor notes from yesterdays visit, too, as I requested copies when I was leaving.
I didn't have a TA They did blood work, urine test, Cat Scan, Ultasound on my carotid / neck. And an EKG...all normal findings. So, that was a relief as a few people pushed me to have this checked. I am glad they did. And, now I know it was due to my neuro issues, too.
I have had skin sensitivity for the past year now. My daughter gives me gentle hugs now because of this and is real careful how she touches me. I hadn't really realized that this had intensified until everyon in the ER was poking and prodded me. The blood pressure cuff hurt! Even though I am petrified of needles, getting blood doesn't really hurt beyond the initial *****. Yesterday the IV hurt the whole time it was in my hand. And it was preety painful tohave it put in, too. And the thing they tighten on your arm hurt like h e l l. My nurse felt so bad. Then, my veins wouldn't cooperate and it took 4 times. ;0( She was really nice though and even brough tmy mom and me a little meal package around 11 pm.
I did get IV Solumedrol (1000 mg). I was told to call my neuro first this this morning for further Sulumedrol treatment. Not having a choice, I did call my boot strap neuro about 1/2 hour ago and left detailed message on viocemail. If I don't hear anything by noon, I will try again and last resport, call my primary. The ER doc did try to call neuro last night, but talked to someone else who was on call for him.
All in all, I think I did the right thing. I feel pretty derned drained and I am seeing a lot of squigglies telling me to spell check, but I don't feel like it....not worth the effort. My mind feels like it is misfiring and slow since the eye incident a few days ago.
I think I am having a few side effects. I have a headach and little tremors when I try to handle things with my hands. I had a gross taste in my mouth, but my coffee tatstes fine right now, so I think that is gone. I can't believe I am going to say this but last night I had a bowel accident in my bed (never done this before). I am usually constipated. I didn't sleep well...I woke up at bottom of bed, which is quite a talent since I have a hosp bed and the head was raised. I also only slept for about 2 1/2 hours.
This is the strongest Solumedrol I have ever taken. My last exacerbation, I only had 500 mg, 5 days shots in butt. So, are these normal side efeects? Also, last time it seemed to feel a little better every day. I felt like it was a miracle drug. I am not much feeling better yet, so am I asking for too much too soon?
Since I didn't get MRI last night, is the Solumedrol going to effect any results if I still push on getting new films done now? My plan had been to have primary refer me for MRI in Santana Barbara (on 3T) on Monday when he gets back from vacation. Should I keep to this plan now or call today for the referral? Or is it too late?
I am sorry that I can't seem to write short posts. ;0/ I really do have the intetnions to. ANd, I am happy to report that my daughter had a chocolate cake waiting for me when I got home. Yum yum!
On that note, I am going to crawl back in bad for a little while and give my daddy a call. He lives like 2 hours from me, but I haven't seen him in severals month. I have only known him for 10 years now, but we got close instantly and still are. Was suppose to go stay a week with him beginning of June...but obviously it was posponed. I want my daddy! So, I am gonna see if he will come see me...
Hugs to all,
Addi
Hugs to all,
Addi