At a new Level of my journy

[ShadowsSister]

Hi Dear Hearts... I hope all of you can hear birds singing & see the sun shining. It's just turning light out here in CA. and in June, we have what "They" call "June Gloom", no sunshine til afternoon...So much for my weather report...
My spirits are good, the pain level is high, and I am at the best I am going to be, But there is GOOD NEWS. This level can go on for a long time. REMEMBER ! MS Doesn't Kill us.. Although, being totally honest, I have days when I wish it would... I was forced kicking and screaming as my tummy emptied it's self through my nose, to give up my beloved JAVA.(most likely for good) This really *****. My meals are Oatmeal & Prunes, peanut butter & bananas, today I have to add spinach. I am serious, I now drink white tea & honey, Magnesium Citrate, (this the stuff you are forced to drink before some test) still no bowel movement, this is because my insides are napping. ;-) and they are causing nightmares of pain, kidneys are also sleepy, my spine isn't willing nor able to hold it's self up, so it is cracking and breaking.
But I have a game plan, life goes on, I tried staying quiet on my Recliner, it didn't make things better so I am getting off the da@m thing and RECLAIMIG MY LIFE. I refuse to feel sorry for myself, I have so much to be thankful for.. YES I AM VERY SERIOUS!
We should never feel that some one is suffering something worse, so I shouldn't complain, that is Total BS.Some of you have expressed those feelings to me, It's just not true, all pain HURTS, my level 9 might be your level 4. We each feel pain differently. So I am asking you not compare yourself to me or anyone else, and also to remember I've been on this journy for over 23 years, and most likely even longer than that. Most times MS goes a different route, So most likely you won't be like me I just don't want to scare any of you or to have you think this is you twenty+ years....
I have so many Blessings and each of you are definitely part of them, your love, prayers, experiences, highs & lows help me so any ways, just knowing I am no longer a lone is such an amazing feeling. By a lone I mean if you don't live with MS than you can't understand it & our families are supporting but they don't always relate & they think we can somehow control it and be like we use to be.... I find each of you to be so Special & Beautiful even on your worse day...
So hang in there, Never give up on "YOU", I'll be around a lot more now.... LOVE FILL HUGS COMING TO YOU ON THE WINDS sent by Me {{{{~!~}}}}...DJ

[LLWB]

Of course we wish you luck....but not really luck, but healing from the Holy Spirit with your health and healing. I'm glad your pain level seems a little better. I too love sitting out in the evenings, enjoying the close of the day, when I get a chance to do it. Are you  and your family having a big 4th of July get-together? Don't overdo it. Let some of those kids help!

hugs & prayers
Maggie

[ShadowsSister]

WISH ME LUCK, I am off to see Dr,Dahi and geting results of my "FULL BODY BONE SCAN", I sure hope my Glamor Shots turned out, don't you just hate it when they have to use the AIR BRUSH...LOL;-0
Seriously, I'll fill all of you in this afternoon  {{{~!~}}}

[ShadowsSister]

Thanks for your encouragement... All of you lift my spirits so high, I feel like I'm soring.. Love fill hugs on their way...{{{~!~}}}

[Mand125]

Hello DJ

I'm glad the pain is more manageable for you.

You really are an inspiration, I was feeling a bit sorry for myself this morning, Monday, struggling to get to work etc, then I read your post.....

We are having a heatwave here, here, I am lucky that the heat does not really affect me. - Summer is definitely here!

Take care
Mand

[ShadowsSister]

Sweetie, I am glad if my post help you, isn't that what it is all about, us helping eachother to realize we DON'T have to be alone...
Charley, I am so sorry you are having a rough time of things. Please let me now how I can best support you, that goes for all of you too.
{{{~!~}}}

[ShadowsSister]

it was sure quiet around here this week end, & on the Home front too.. I worked on some old family pictures and set out side in the cool evenings...Pain has been some what manageable. I have been keeping the ribs wrapped & this seems to help.
So what has every one been up too? How is every one else feeling? Do you look forward to the hot days, or lay low and try to stay cooled off insde.? I don't do very good when it gets 85% and above.
Today I have to see Dr. Dahi and let him see the bone scan, my daughter wants a Cat scan of my ribs, I guess it should be done?? Whats one more x-ray, except needing to be on my back...OUCH Grrrrrr !
I'll check in with everyone when I get home.
I hope all of you have a slow & easy week, that you feel & see the Breezes Blowing and you take a moment to remember that you just received "LOVE FILL HUG" From "DJ"  

[Charley123]

You are such an inspiration and my heart goes out to you. Your posts are helping me get through a very difficult emotional time.  Hugs and prayers, Charley

[ShadowsSister]

Well I didn't win last night, I think every one sitting at my table did. It was fun watching Mom, she won a whole $3.00 hey she got to play for free... she's happy when she breaks even...SO DARN CUTE
AS I started to report earlier, the bone scan wasn't too awful, it's just so difficult because of the spasms. It looks like the ribs on left side might be damaged more than a sprain, I'll know Monday if they are. Not that it matters that much.
I hope all of you sleep well and have sweet dreams....I'll check more tomorrow {{{~!~}}}  

[doni54]

Sweet, sweet DJ, you are truly an angel and a blessing to each and every one of us.

Here's sending you love and hugs and many thanks for being the special lady that you are.

doni

[saveone]

What I want to know is did you win at Bingo and how did it go with that red hat?

Life is better than the alternative :o) at least on most days

terry

[rendean]

I glad you survived the bone scan. I know how miserable they are WITHOUT fractured verterbrae.

You truly ARE an inspiration to all of us. Hope you can get some relief soon.

Take care.

Gentle Hugs,
Ren

[ShockedToday]

ShadowsSister,

You are such an inspiration!  I love reading your posts.  I hope the scan wasn't too hard on you.

Take care,

ST

[ShadowsSister]

Well I survived the full body Bone Scan, sure wasn't easy lying down, stracthed out

[Sarahsmom46]

Bingo?  Oh, can I come too?  I do hope for you every day.  I hope that your pain is not as bad today as it was yesterday.  I hope that you spirits are higher today. I hope that you are able to enjoy a moment of peace today.  And, I hope that you do get that group pic with your red hat today :)  We all love you so much and are hoping that your ability to cope remains strong and in tact.  

Take good care my friend and enjoy the bingo game.  

Love you lots and lots.

Julie

[ShadowsSister]

I AM OFF TO BINGO WITH MOM, WEARING MY RED HAT TO SEE IF I CAN GET A GROUP PUT TOGETHER.
MORE ABOUT MOM LATER,  LOVE TO ALL..{{{~!~}}}

[sllowe]

So that's why it was so windy out all of a sudden! It wasn't a bothersome wind, it was strong, but somehow nice.

It was you! Blowing your love!  I should of known.

I'll send some alertness your way, to those insides of yours.

(((hugs)))
shell

[Guitar_grrrl]

Hey, there, my shining rock star!  Wishing you light and love, today.  No fog at my place this morning, and I'm only 10 miles from the Pacific here in the Santa Cruz Mts.

Wish me luck in my performance tonight in SF.  It's kind of an important one - hope my left hand doesn't act out (LOL!)

Namaste,
Guitar_grrrl

[Ufrustrated2]

wise thoughts. keep on keeping on and sharing the wisdom

[goofysmom1]

You are such an inspiration!  Thank you for sharing your positive outlook. I am so thankful that I found this forum - although I am not diagnosed, it helps to know that I am not alone.

I hope your insides wake up from their nap...but in a nice, gentle way...

Hugs,
Chrisy
undx'd

[PastorDan]

Many hugs sent westbound this morning, and prayers heavenward.