Aa
Just an update....
Well I saw my neuro today and he is a sweet and gorgeous as ever! He was very receptive today which sometimes as we all know I am sure is hard to come by in a neuro!
I told him about the horrible pain I am having in my head but the lightening bolts in my left cheek are new. I told him about the trouble I have been having with my bladder in the last 3 weeks. I told him about my speech and he feels that a lot of my problems are due to the pain I am in.
Maybe I am the only one around here with a sack over my head but I really didn't think things could get this painful and I think I am coming to the realization that I have had it pretty easy in the past. Sorry to the people that I may have ticked off because I wasn't able to understand what you were going through...I sincerely didn't realize that he** was this close to home!
HE WOULD LIKE ME to go have an MRI...now that is just strange! The ones who know me may remember that when I was with the bone headed neuro he kept insisting that I had one at the beginning of 2006 but what I had was a CT Scan. He wouldn't have ever doubted himself so it took a year and a half before we were able to convince him that I hadn't had an MRI since 1993!!! He was such an incredible idiot and I am sure he still is!
Anyway, I will be called with an MRI time and in the meantime he has prescribed 300mg of Gabapentin 3 times a day along WITH the 300mg of Tegretol 3 times a day. I can see what kind of zombie I am gonna be for the next few weeks. I have been on Gabapentin before and it really was like a sugar pill to me...didn't make a bit of difference but he wants to try it. He said that we will give it a go for 3 months and if it doesn't work then he wants to discuss the implications of having surgery to cut the nerves that are causing this pain. I think if he asked me now I would say do it right now...this is so frustrating.
So, I said I would report what the doc had to say and I am really glad that I went. We shall see what the future has in store for little ol' me next I guess!
Hugs,
Rena
I told him about the horrible pain I am having in my head but the lightening bolts in my left cheek are new. I told him about the trouble I have been having with my bladder in the last 3 weeks. I told him about my speech and he feels that a lot of my problems are due to the pain I am in.
Maybe I am the only one around here with a sack over my head but I really didn't think things could get this painful and I think I am coming to the realization that I have had it pretty easy in the past. Sorry to the people that I may have ticked off because I wasn't able to understand what you were going through...I sincerely didn't realize that he** was this close to home!
HE WOULD LIKE ME to go have an MRI...now that is just strange! The ones who know me may remember that when I was with the bone headed neuro he kept insisting that I had one at the beginning of 2006 but what I had was a CT Scan. He wouldn't have ever doubted himself so it took a year and a half before we were able to convince him that I hadn't had an MRI since 1993!!! He was such an incredible idiot and I am sure he still is!
Anyway, I will be called with an MRI time and in the meantime he has prescribed 300mg of Gabapentin 3 times a day along WITH the 300mg of Tegretol 3 times a day. I can see what kind of zombie I am gonna be for the next few weeks. I have been on Gabapentin before and it really was like a sugar pill to me...didn't make a bit of difference but he wants to try it. He said that we will give it a go for 3 months and if it doesn't work then he wants to discuss the implications of having surgery to cut the nerves that are causing this pain. I think if he asked me now I would say do it right now...this is so frustrating.
So, I said I would report what the doc had to say and I am really glad that I went. We shall see what the future has in store for little ol' me next I guess!
Hugs,
Rena
Best Answer
Sorry to hear it. I remember when I started on Gabapentin I increased by 300mg per day every week until the pain was under control, in my case I went to 1500 per day, then backed off by 300/week till the pain started to come back, 900 for me, then back up till it stopped again, and ended up at 1200mg/day.
I think your right not to increase too fast, but if you can take the time to just sit around in a fog it might be OK to increase a bit quicker, maybe by 300mg every 3 days or so.....? check with your Doc, but I think it would be better than the pain.
Hang in there
Mike
I think your right not to increase too fast, but if you can take the time to just sit around in a fog it might be OK to increase a bit quicker, maybe by 300mg every 3 days or so.....? check with your Doc, but I think it would be better than the pain.
Hang in there
Mike
Can't wait to go fishing Mike! It's a gorgeous day here today and all the lakes and such around here are starting to melt...BUT...this is Alberta so I don't take any chances! hehe
I took a Gabapentin last night at bedtime and I felt horrible when I first got up again...like walking through a wall of jello. Now at 3:00p.m. the pain is back and it's not pleasant. I don't think I should push my luck by taking more Gabapentin until my body gets used to it but I am not looking forward to the rest of the day. I hope this drug isn't gonna affect me like Lyrica did...double vision and inability to speak...my eyes are not too good right now but it could be the pain.
Best of luck to you in the fishing department though Mike! I will be there with you in spirit!
Lots of Hugs,
Rena
Well guys and gals, I took my first 300mg of Gabapentin last night and today I am feeling NO pain!!!!!!!!!!!!!! (so far so good)
However, when I did get up I felt as though I was walking through a wall of jello! So I went back to bed for another hour and while I felt the same at first it didn't take long for it to wear off. I can imagine I will be dealing with fatigue more now than ever, at least till I get used to the Gabapentin.
Sidesteps...he didn't really seem to think that it is a flare...he is adamant that I have SPMS (secondary progressive ms) but at least he is going to do an MRI. The last time I had steroids, the steroids were worse than the problem for me. We are trying to avoid having to use them as much as possible as they make me soooo sick.
Lulu...you are always so sweet girlie! I agree with the placebo effect for sure! It was hilarious because when the doc came out to get me hubby whispered in my ear "he sure has big feet" which I am sure we all know what that is supposed to mean. tee hee I hadn't noticed actually so we had a good laugh at that one! It was a really great appointment with a few tears that were soon dried up by the caring of my doc and my hubbys constant sense of humor! I really hope that the meds word too cause I don't really want anyone messing around in my head!
Guitar girl...we are going to have to get our licenses soon as well! It's gonna be that time soon and as I told McDreamy yesterday, "I have to get in shape here cause it's soon fishing time and I can't go with all this pain" (that's about when the tears started)! He agreed and we hope the Gabapentin will help!
Hey Mike! I am also on Tegretol so with 900mg of each I will be up to 1800 mg of antiseizure meds and I hope that much will give me some relief for a while! To be honest with you, I am feeling GREAT today but maybe it is a bit of the placebo effect from seeing Dr. McDreamy?? tee hee I am so sorry to hear that you have to deal with this TN as well...it is a nasty thing isn't it? Has your doctor mentioned the possibility of surgery to you? I hope I don't have to go that way but if I have to I will do just about anything short of decapitating myself...that thought has crossed my mind a few times in the last 3 weeks! Anyway, thank you for your input and you take care!
Thank you so much for all of your input! Now that I am GOING TO FEEL BETTER (nothing like a positive attitude) maybe I can spend some more time here helping out. In the meantime, have a great weekend everyone and I will be in touch!
Lots of Hugs,
Rena
However, when I did get up I felt as though I was walking through a wall of jello! So I went back to bed for another hour and while I felt the same at first it didn't take long for it to wear off. I can imagine I will be dealing with fatigue more now than ever, at least till I get used to the Gabapentin.
Sidesteps...he didn't really seem to think that it is a flare...he is adamant that I have SPMS (secondary progressive ms) but at least he is going to do an MRI. The last time I had steroids, the steroids were worse than the problem for me. We are trying to avoid having to use them as much as possible as they make me soooo sick.
Lulu...you are always so sweet girlie! I agree with the placebo effect for sure! It was hilarious because when the doc came out to get me hubby whispered in my ear "he sure has big feet" which I am sure we all know what that is supposed to mean. tee hee I hadn't noticed actually so we had a good laugh at that one! It was a really great appointment with a few tears that were soon dried up by the caring of my doc and my hubbys constant sense of humor! I really hope that the meds word too cause I don't really want anyone messing around in my head!
Guitar girl...we are going to have to get our licenses soon as well! It's gonna be that time soon and as I told McDreamy yesterday, "I have to get in shape here cause it's soon fishing time and I can't go with all this pain" (that's about when the tears started)! He agreed and we hope the Gabapentin will help!
Hey Mike! I am also on Tegretol so with 900mg of each I will be up to 1800 mg of antiseizure meds and I hope that much will give me some relief for a while! To be honest with you, I am feeling GREAT today but maybe it is a bit of the placebo effect from seeing Dr. McDreamy?? tee hee I am so sorry to hear that you have to deal with this TN as well...it is a nasty thing isn't it? Has your doctor mentioned the possibility of surgery to you? I hope I don't have to go that way but if I have to I will do just about anything short of decapitating myself...that thought has crossed my mind a few times in the last 3 weeks! Anyway, thank you for your input and you take care!
Thank you so much for all of your input! Now that I am GOING TO FEEL BETTER (nothing like a positive attitude) maybe I can spend some more time here helping out. In the meantime, have a great weekend everyone and I will be in touch!
Lots of Hugs,
Rena
must be the bro to my neuro.........takes your mind off your problems!
sounds like TN to me too, keep us posted!
sounds like TN to me too, keep us posted!
Hi Rena, I take 1200mg Gabapentin per day (4 X 300mg) for TN as well as other things, and it really works for me. I know it's helping because i've tried to drop down to 900mg per day a couple of time and could feel the pain worsening fast.
Sometimes I take an extra 300mg at bed time. I'm free to use as much as I want up to 3600mg per day, if needed.
I sure hope the meds help you with the excrutiating pain.
Mike
Sometimes I take an extra 300mg at bed time. I'm free to use as much as I want up to 3600mg per day, if needed.
I sure hope the meds help you with the excrutiating pain.
Mike
Aahh, Dr. Dreamy! Yep, sounds like TN to me, too! Good luck with your new meds. I think Ren and was it Julie (??) had palatine injections to deal with the pain with some success. I hope they chime in here, too.
Picked up my fishing license last month. Trout season starts down here next month... :-)
Picked up my fishing license last month. Trout season starts down here next month... :-)
Rena, always good to see you pop up here and I wish you would come around more often.
It is great to hear hunky neuro has not lost his good looks - it may be a placebo effect but looking at him must help to take your mind off the pain, just a bit and temporarily.
TN sounds like the culprit, and I hope the drugs help because I think there are mixed results with the surgery.
hang in there, girl and keep us updated.
hugs,
L
It is great to hear hunky neuro has not lost his good looks - it may be a placebo effect but looking at him must help to take your mind off the pain, just a bit and temporarily.
TN sounds like the culprit, and I hope the drugs help because I think there are mixed results with the surgery.
hang in there, girl and keep us updated.
hugs,
L
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I'm pleased you're feeling better today, hopefully it'll last for you.
We'll be bucktailing for big Rainbows soon, can't wait! Most of the ice is off in the bay, the water is calling me......:)
Mike