Limbolanders - Count Off!

[Quixotic1]

Because this forum is so inclusive we have as many or more people still in Limbo than diagnosed.  But, we haven't taken stock of them for several months.  I need a good listing of you so that when we answer we don't have to remake the wheel.  Also, I would apreciate all who haven't done it yet, to write up a summary of your story so far and put it on your Journal in your Profile.  That way any of us can come up to speed when we talk to you.

ALL of you who post or might post please help with this:

History of distinct attacks? Yes/ No
MRI lesions;  Yes/No
LP : Positive/Negative
How many Neuros so far: #

Let's keep this bumped up and try to reap the whole forum!

Thanks,

quix

[crswin]

History of distinct attacks? Yes (currently in my 4th in 6 years)
MRI lesions: C spine and Brain are clear (2 in 6 years); I go for my 1st thorasic and lumbar this week
LP : Negative from 6 years ago; doc wants another done in the near future :(
VEP Normal- (past bout with optis neuritis)
Nerve condution- loss of sensation in both legs; loss of sensation and weekness in rt arm and face.
How many Neuros so far: 2, but they are in the same group (I 'fired' both)

[michelleric]

HIstory of distinct attacks? Yes, had a 3 week episode of dizziness, blurred vision, numb/tingling in July.  End of Sept. diagnosed with Optic Neuritis, and dealing with numb/tingling, foot drop, dizzy, lightheaded, Leg cramps(severe)

MRI lesion, 1 on brain, waiting on results of Thoracic and Cervical MRI. Showed LOTS of spine issues, but awaiting neuro to read them.

LP: Didn't have not recommended

VEP: Didn't have, not recommended

2 neuros so far, sticking with the 2nd. She is great. I "should" have a diagnosis within 2 weeks.
Thanks,
Michelle

[lbradley35]

1) History of distinct attacks?
    Yes, I usually have two really bad attack per year and I have to take the
    Solu Medrol Iv for 2x for 4 days.

2) MRI lesions;  Yes, My neuro said I have so many she wouldn't tell me how
   many I have.

3) LP : Positive in 1995

4.) How many Neuros so far: # 4 -
The first Dr. was a jerk, the second Dr. was wonderful. I then moved out of state for my job. The third Dr. canceled 5 appt's in a row while I was in a severe attack. He also miss diagnosed a problem with C2, C3, & C4...so I had surgery because my brain was not getting enough blood and spinal fluid and the disk was cutting my nerve. I think he was on drugs. My current Dr. is a MS specialist and I love her. She takes excellent care of me and she and her nurse call to check on me.

5.) Diagnosed in 1995 - 1996 started Avonex- I have failed all the CRAB medications, so I am now on Tysabri and it has show slight improvement.

6.) What MS has given me : Narcolepsy, Graves Disease, Vision loss, loss of feeling in hands and both legs, drop foot (so I wear a brace), I'm deaf in my left ear due to the lesions damaging my 8th cranial nerve lots of pain, burning,numbness,bowel and bladder problems and now I'm waiting to find out if I have cancer.  So If I were a gambler I would be rich because I keep winning all these disease's.

Multiple Sclerosis has made me appreciate all the people and gifts in my life, so I am grateful to GOD for all HIS blessings. I know he has a plan for my life.....and I'm trying to learn to not question why, but what can I do to trust HIM more, what can I do to help others and how can I be a better person.  

Lori

[Sailorsong]

1) History of attacks: Yes for about 20 years, didn't start checking into this until 2-3 years ago.

2) MRI lesions: Not sure,

3) LP:  None done yet

4): How many Neuros:  4 so far

[Wobbly]

#11 Limblolander

1) History of attacks: Yes

2) MRI lesions: Yes

3) LP: Neg

4) How many Neuros: 5

[spitfire989]

History: Been having episodes for years, more pronounce within last year.       MRI lesions----yes,----multiple lesions(moderately extensive changes of white matter disease in the periventricular region. Additionalperiventricular changes are identified.---Some of the white matter are in the range of 6-7mm.-----A linear area of white matter focus involves the posterior horn of the Left ventricle measuring 4x20mm....Spimal MRI------c2-3----broadband disk spurs,----c4-5 broadband disk osteophyte complex; with additional disk hernination/protrusion in posterior central location, measuring 5mm..---c5-6---4mm soft disk protrusion w/ slight cord decompression w/o stenosis.--C6-7---moderately large right paracentral bone spur measuring 5mm in its AP and 8-10mm in its transverse dimension.--Moderate cord compression but w/o stenosis---------LP- scheduled for December 3rd.------How many neuro's 4.-----Scheduled for Evoked Tests every Tuesday in December.    ------Meds to date:-----Inderol(40mg)--Vicodin(5/500mg)----Fiorcet (PRN)----Neurontin 600mg-------Prednisone(20mg)-----Flexeril-----Ultram------multi Vit,---Vit D,----Iron----BAspirin.