New Drug for PPMS?

[Trude_53]

I am lucky in that I have no pain other than leg spasticity associated with my PPMS. However, I have heard that there is a new drug for PPMS?

[sllowe]

Hi Trude!

Adding on a welcome and a hello too!

Hope you are able to stay with us!

Be well,
Shelly

[monotreme]

Hi Trude and welcome to the forum!!  My husband Craig just got diagnosed with PPMS earlier this month.  I am so happy to hear that you don't have pain.  Craig has constant spine pain, foot spasms and pain, and hypertonicity and some spasticity in his legs.  He cannot walk much.

He went to NYU  (New York University) in New York City.  They have a very good MS center.  The doctor said that they did some studies on Copaxone and men with PPMS and found that it helps some men some of the time, with the emphasis on the word "some".  When we go back and meet with the neuro in November, I will ask them about PPMS and women.

Also, there is a center in Buffalo NY called Jacobs Neurological Institute which takes care of many patients with PPMS (and has Canadians too).  We will be meeting with them in regards to their clinical studies in case the Copaxone does not help Craig.

Any information I can find out, I will be sure to pass it on to you.

I hope you can stay and become one of our forum family members!!

Elaine

[Rena705]

Hi Trude!  Glad to see you made it home ok!  Did you enjoy the rest of your holiday?  We sure enjoyed meeting you and I hope that we can be of some help here for you!  I am going to send a message to Monotreme...that is whose hubby was just diagnosed with PPMS and ask her to send you a message about the Copaxone he is taking.  She may be able to help you out somewhat and at the very least you can swap notes on what is going on ok?

You can look at my pictures from our trip if you click on my name and my page will have a photo box and just click on see all...you might see something familiar! he he

Nice to see you have found us and I am looking forward to getting to know you better as will many others here I am sure!

Lots of Hugs,

Rena