I had been taking Copaxone for three months when I got my first IPIR. It takes about fifteen minutes for it to subside.
Hi. I never heard of copaxone having any flu like symptoms. So I was surprised by the achy ness I had the day after. It's Monday..
If you have not had the heart fluttery symptom yet it probably will never happen. If it happens it comes and goes quickly. Less time by far than a panic attack. Writing fears down or saying them aloud takes the power away.
I got myself so worked up about a LP they had to sedate me to do it. I was a mess. I thought about it too long. I read too much about it. It was crazy..
I am on a chemo drug which can cause death and I am not afraid. It is strange. I just tell myself it won't be me. My doctor does not want me to die.
Anxiety can do a number on us. Sometimes knowledge does not help. What is you never heard about that side effect?
Alex
Yes.. I suppose that's it. I get nervous before each shot. I'm always scared that' THIS may be the one.. ( ipr ) .. I need to find a way to relax. Maybe I should switch to morning. Instead of it lingering all day like a cloud. Thx for your input! I wasn't expecting the flu like deal as I thought w/ copaxone that wasn't the norm. Oh well. Guess there is no norm anymore!!!
I have never heard of Copaxone causing sleeplessness. What you describe is more anxiety. You have a lot to be anxious about. It is normal to pay a lot to every little thing your body is doing right after diagnosis.
Alex
Hi Andi, it is possible that you are keyed up about starting a DMD and it ismaking it difficult to sleep.
I did Rebif not Copaxone but I think that all of the injectables have flu-like side effects.
I always took ibuprofen or acetaminophen and did my shot before bed so I could sleep through the worst of the side effects and even then I would wake up achy and with a slight fever.
Try to relax a bit before bed, you have had a crazy amount going on lately with a dx and your first DMD so you may be still running on adrenaline.
I hope things get better for you soon,
Corrie