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12832842 tn?1448728801

Copaxone/body ache/ no sleep?

Hi.. Last night was day 3 of the 40 mg copaxone shot. So I made it through my first week. Again, I manually inject and that's working well. No welts / rash/ pain... Last night however I couldn't sleep! At all! My heartbeat  was slightly elevated, but I'm wondering if it's neves or anxiousness due to not sleeping. This am I awoke to flu like body aches. Mostly lower back.. Legs... Is this comin w/ copaxone? Is it maybe my body reacting to the medicine? Any thoughts or experience w/ a similar outcome?
Thx!!
Andi
6 Responses
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338416 tn?1420045702
I had been taking Copaxone for three months when I got my first IPIR. It takes about fifteen minutes for it to subside.
Helpful - 0
12832842 tn?1448728801
Hi. I never heard of copaxone having any flu like symptoms. So I was surprised by the achy ness I had the day after. It's Monday..
Helpful - 0
667078 tn?1316000935
If you have not had the heart fluttery symptom yet it probably will never happen. If it happens it comes and goes quickly. Less time by far than a  panic attack. Writing fears down or saying them aloud takes the power away.

I got myself so worked up about a LP they had to sedate me to do it. I was a mess. I thought about it too long. I read too much about it. It was crazy..

I am on a chemo drug which can cause death and I am not afraid. It is strange. I just tell myself it won't be me. My doctor does not want me to die.

Anxiety can do a number on us. Sometimes knowledge does not help. What is you never heard about that side effect?

Alex
Helpful - 0
12832842 tn?1448728801
Yes.. I suppose that's it. I get nervous before each shot. I'm always scared that' THIS may be the one.. ( ipr ) .. I need to find a way to relax. Maybe I should switch to morning. Instead of it lingering all day like a cloud. Thx for your input! I wasn't expecting the flu like deal as I thought w/ copaxone that wasn't the norm. Oh well. Guess there is no norm anymore!!!
Helpful - 0
667078 tn?1316000935
I have never heard of Copaxone causing sleeplessness. What you describe is more anxiety. You have a lot to be anxious about. It is normal to pay a lot to every little thing your body is doing right after diagnosis.

Alex
Helpful - 0
Avatar universal
Hi Andi, it is possible that you are keyed up about starting a DMD and it ismaking it difficult to sleep.

I did Rebif not Copaxone but I think that all of the injectables have flu-like side effects.

I always took ibuprofen or acetaminophen and did my shot before bed so I could sleep through the worst of the side effects and even then I would wake up achy and with a slight fever.

Try to relax a bit before bed, you have had a crazy amount going on lately with a dx and your first DMD so you may be still running on adrenaline.

I hope things get better for you soon,

Corrie
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