Happy Thanksgiving!

[yorkieville]

Hi, Everyone.

I know, that as MSer's and Limbo-Lander's, it is not an easy day for any of us.

Myself, I am parked on the couch.

I want to say, I am very thankful to be part of this forum, and for all of the support each one of you has given me.

I also want to say, to the Newbies and the Limbo-Lander's: DON'T GIVE UP!

It took 6 long years to get diagnosed. Two of those years, I spent in bed, the nerve pain in my spine was so unbearable. After those 1st two years, my D.O. found a combo of pain meds that eased some of the nerve pain, and some of the low back pain.

If you haven't read my story, read it. I hope it will inspire you to keep searching for a doctor like like my MS Specialist that knows that we can have MS  without visible lesions.

This past Spring, the MS progressed to the point that I couldn't get up in the mornings and go to daily mass. I got sick at the beach, collapsed, couldn't get air. Learned that the sun and heat are not my friends.

The muscles in my legs and thighs got so tight, even the massager couldn't relax them, and they would throb horrendously. And my back pain didnt allow me to stand for more than a few minutes.

I had to step down as a Eucharistic Minister.  That hurt more than the MS.

I am going to begin Copaxone this weekend. And I am very thankful.

I'm not so concerned about myself having MS, I'll be 59 in February. But I pray so hard that doctors will take younger people more seriously and begin treatment, early.

I hope each one of you will find away to enjoy today.

Love,
      Sheila

[yorkieville]

Hi, Deb

Thank you-med was delivered Tuesday-just waiting for my Home Health Care Nurse to call me back & set up a day to show me how to use the Auto-Ject. We spoke on Tuesday & agreed to wait until after Thanksgiving

.I am so sorry that you have lived in LimboLand for over 10 years. I agree, not knowing is worse than MS. I understand the relief you felt when your doctor finally figured out what was wrong.

This is what is so frustrating about MS-it is so hard to get a diagnosis.

Rich & I spent a quiet Thanksgiving at home. And he will put the tree up about a week before Christmas.

Thank you for your prayers, you're in mine, as well.

I want to repay the kindness I have recieved, by reaching out to others that lived in LimboLand. Maybe it will give people the encourgaement to keep searching for the answers.

Sheila

[Deb61]

I am so happy that you're starting your medicine!  Let us know how it works out for you . . .

I have lived in Limboland for over 10 years.  I know it's horrible.  In many ways it's worse than being told it's MS.  I was actually relieved that my doctor found out what was wrong with me to have hope restored in getting treatment for what I was going through.

Today, I'm going to celebrate Thanksgiving with my family.  I'm so thankful to have such a wonderful family.  My husband is doing all of the cooking.  My house is decorated for Christmas . . . I'm so excited!  

I'll be saying so prayers for you, my friend.  You're so kind to think of others when you've had such a rough go of things.  I hope the day goes well for you on your medicine!

Deb

[yorkieville]

Hi, Dagun.

I am praying that you get the best diagnosis, and quickly.

I cannot forget the people that live in Limboland, because I lived there for 6 years. I know how hopeless it can feel.

My very best to you.
Sheila

[yorkieville]

Hi, Ren.

I hope your Thanksgiving Day was nice.

Yes, the couch is a very familar place, isn't it? But, it's better than the bed I was stuck in for the 1st two of the 6 years.

I truly want the Limbolander's to get diagnosed, earlier than I was diagnosed.

Thanks-I hope the Copaxone helps me.

Sheila

[yorkieville]

Hi, Lulu.

I never even got dressed on Thanksgiving Day. It is such an effort anymore.

Did you cook?

Rich put Marie Callendar's Turkey dinners in the oven.

Thank you, I hope that anyone that reads my story will learn they should never stop searching for the answer.

xoxo
Sheila

[Dagun]

Yes Sheila, ofcourse you are right my Thanks giving day will be the day that I get to know what this is (hoping though for the "best" diagnosing I can get , whateverer that is :)). Thank you for your kindness and thinking of us, the Limbolanders.

My best to you,
Dagun

[rendean]

Thanks for  wishes Sheila and for the encouragment you give to our limbolanders! And, yes parked on the couch is a familair position:).

Hoping your Copaxone goes seamlessly.

Ren

[Lulu54]

Hey Sheila, I know exactly what you mean about being parked on the couch. My  morning after finds me still in my night clothes even though I've been  up for 5 hours.  It would be nice if I can just sit and recupperate all day.  

I am so glad you are sharing your story - so many need to hear that should not give up on the search for answers.

best, L

[yorkieville]

Hi, Pam.

Thank you! Sorry I missed your message. I went to bed, early last night. Seems like I need more & more sleep, these days.

This is truly the best forum on the 'Net. People care about each other here-I think it is because we are sick, therefore, we have compassion for others who are also, sick.

When I had my initial dx, (Neuro retrracted it-got cold feet) I came here and I learned a lot about MS.I had already known quite a bit-I have a cousin who died  due to MS in March of '08. He lived with it for 18 years-nomedication was available to help him.

But, here, I learned so much more, and have made wonderful friends, that stay in touch via e-mail.

I don't come in much anymore, I'm so fatigued all of the time, and my eyes are blurry. But I do try to stop in once in awhile.

I read now, more than post.

Sheila :)

[drsdonthelp]

Happy Thanksgiving to you too! I am so Thankful for this forum as well, it was the first forum I have ever been to and I have felt so loved and welcomed here. I do not have MS but I do have Lyme and if it weren't for Medhelp, I wouldn't have received a dx, and would still be wondering what was wrong with me.

Pam :)

[yorkieville]

Thank you, Dagun.

Your Thanksgiving Day will be the day, you are diagnosed.

I will add you to my prayer list of Limbo-Lander's. Believe, that you will be "Saved". I believed, but, there were times, when I thought it was hopeless, but my husband would continue to reassure me that the doctors would figure it out.

We are having a quiet day at home. I used to host the family holidays, but six years ago, I had to stop.

My best to you, and just continue to search for the doctor that will diagnose you.

My Very Best to You,
Sheila

[Dagun]

Thank you Sheila and happy Thanksgiving to you. I am a Limbolander waiting to be "saved", I am from Iceland and we do not have this tradition here. We just have many gatherings around Christmas and New year with our family and sometimes even our bigger family (our parents siblings and their families).

I hope you manage to have a really nice day even though "parked on the coach". I am sure Copaxone will help you feel better. Good luck with everything.
My best,
Dagun