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MS Hug? Is this what im feeling?

Hi everyone, i have been expereince starnge neuro symtpons since i had my flu shot in september. i am much better then i was but still not 100%. As we speak i have a weird pain in my hip and waist area, almost like burning and crushing feeling. Im not sure if im been paranoid or not. All my mris have been normal. ssep normal, ncs, and emg normal. and input would be greatly appreciated! thank you
Best Answer
987762 tn?1671273328
COMMUNITY LEADER
The MS Hug is associated with spinal cord lesions, and it's typically described as being a tight banding feeling, boa constrictor, bra too tight etc that either fully or partially surrounding the upper torso. The MS Hug more often causes contracting or spasming intercostal muscles (muscles between each rib), diaphram spasms (respiratory muscle under the lower ribcage) but it can be experienced around the waist too, it just depends on the location of the spinal cord lesion.

Personally, when the Hug is bad the spasms and pain is similar to natural child birth, wave after wave after wave of intense pain, mine is in the intercostal muscles of the entire left side (front to back) of my ribcage and you can literally see the left side of my ribcage contract down and not release as it's suppose to do.

When it's good the intercostal muscles spasms are not as painful, I think that's because it's not the entire left side, just individual ones flutter spasming or thumping so it's not locking down the ribcage. I've currently got two intercostal muscles fluttering and doing the occasional thump, they've been doing their rhythmic spasm non stop for a couple of months, weird lol and they've freaked my husband out a few times but thankfully no pain, so to me it's good.

What you've described doesn't make me think of the MS Hug, but you probably should see your doctor because it could be something like a kidney infection or gastric related, worth getting it checked out by your family doc...

Cheers........JJ

  
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Avatar universal
I am having similar issues after a tetanus vaccine.  Did your symptoms ever get better?  
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667078 tn?1316000935
I would start with my GP.

Alex
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15288417 tn?1446902183
Hi,
I would say to get yourself checked out, even if it's to find out what is going on and if needed get whatever treatments needed too. Hope you do.
I've recently experienced the MS hug myself, is exactly how jj and jenphilly have explained it!
Being all new to what I'm experiencing, I didn't have a clue what was going on to me either.
Only after being on here (which is a great site with lovely people who help) I got some answers.
Take care of yourself, hope you'll be ok.
T
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Avatar universal
Hi everyone thanks for feedback ... No I haven't seen in a chiropractor . Maybe I should go get tested for Lyme ? I'm still just wondering if I'm still having crazy reaction to flu shot ! Current symtpkns bottom of left foot weird sensations that come and go and left leg burns and hurts . Back of lower head sore and neck so sore . Weird inner tremor almost when I am on toilet or standing up . Not sure if related to neck injury and new symtp happened yesterday left small part of cheek buzzed on and off for a few hours and hasn't happened again since ??? Ms ? Or just healinf still ? Any thoughts
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Avatar universal
Hi JJ, thanks for responding. I am just extrememly worried , the pain has been on and off this whole weekend. its my sides and my back that are sore. My ssep was normal, along with mris of neck, back and brain. but i do understand you can still have ms even though these tests are normal
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1979418 tn?1432135441

I don't think anyone can tell you for certainty what you're feeling...  but I can only share for me what the hug is like.   The hug usually involves the diaphragm and chest muscles.  For me its the diaphragm going into a spasm and its a crushing chest pain and not feeling like I am able to breath.  Does not usually last for extended times, but kinda happens in waves, where I'll have a 15 minute or longer episode, it releases, but then might happen again in a few hours.  

Not sure how others would describe their experience, but its much like a bear hug (from a really mean nasty bear!!).  

I hope you are feeling better!  
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